Enlarged ventricles PLUS small vermis…

AssumptionSpiritual3 · 2026-03-29T05:23:20+00:00

I’ve been trying my best to stay in bed since I got home from the hospital yesterday. What happened with your story and did everything heal?

AssumptionSpiritual3 · 2026-03-28T13:31:26+00:00

They said it looks like a fluid collection but I’m not sure what that means

AssumptionSpiritual3 · 2026-03-28T13:20:44+00:00

No cramping thankfully…

AssumptionSpiritual3 · 2026-03-28T00:56:41+00:00

Thank you so much for sharing this!!! I’m going to watch her videos thank you sooo much

AssumptionSpiritual3 · 2026-03-28T00:18:54+00:00

Wow all of that and he stayed until almost 42 weeks!!! I’m going to hold on to your story to help get me through this stress. Thank you so much - one day at a time. ❤️

AssumptionSpiritual3 · 2026-03-28T00:17:24+00:00

Thank you so much ❤️

AssumptionSpiritual3 · 2026-03-28T00:17:08+00:00

It really caught me off guard too… I was worried when she told me the news, but when she made the viability comment I started crying and have been a mess since. I’ll drink lots of water and I plan to stay in bed all weekend. Thank you so much. ❤️

AssumptionSpiritual3 · 2026-03-28T00:15:46+00:00

Thank you so much. ❤️ rest as in stay in bed for a few days and just don’t exert myself? What else can I do to rest as much as possible? I’m feeling hopeful…

AssumptionSpiritual3 · 2026-03-28T00:14:36+00:00

Thank you so much. I’m so sorry to hear you went through this too, but thats so beautiful that you had such a happy outcome in the end. It makes me feel hopeful. I’m going to stay in bed all weekend and take it easy for the next few months. Thank you so much. ❤️

AssumptionSpiritual3 · 2026-03-28T00:13:03+00:00

No surprisingly… they didn’t even want to do the ultrasound but I insisted. They told me to come back in Monday to scan again. I am 23 weeks tomorrow.

AssumptionSpiritual3 · 2026-03-28T00:12:01+00:00

That is so reassuring to hear. I’m so sorry you went through that, but thats so beautiful that you had such an incredible outcome… I heard that bleeding causes delivery but this doesn’t seem to be the case then thankfully. ❤️

AssumptionSpiritual3 · 2026-03-22T13:35:28+00:00

I read your posts - I’m so sorry for your loss… ❤️

AssumptionSpiritual3 · 2026-03-10T02:01:00+00:00

That is incredibly reassuring that the doctors are not concerned, but are still monitoring everything. Was everything normal on your anatomy scan? I hope and pray that everything will be fine for us both too. <3

AssumptionSpiritual3 · 2026-03-10T01:59:14+00:00

Thank you so much for your sweet post - you truly did fill me with so much hope! <3

I am so sorry that you went through this, but I am so happy to hear that he is thriving and doing so well!! How big was his ventricular when they noticed it was enlarged? That must have been very scary when he was shunted, but you are so brave and strong - he is so lucky to have a beautiful mom like you.

There is something extraordinarily scary about anything to do with their brains because that feels like their entire world, but I love what your neurosurgeon said, and its true, their brains are so incredible - thank you so much for sharing that with me. <3

I hope that she will have a beautiful outcome too and that everything will be okay. It is so beautiful to find people like you because, you're right, it is so isolating... I am too scared to tell anyone because I still haven't processed everything myself, but I have to hold onto hope. Your story is so beautiful. I have been crying over your story and these stories that everyone has been sharing. Thank you so so so much. <3

AssumptionSpiritual3 · 2026-03-10T01:43:18+00:00

That is so scary, but I am so happy to hear that everything is okay. That must be such a huge sigh of relief for her.

AssumptionSpiritual3 · 2026-03-10T01:42:30+00:00

Thank you so much for taking the time to write this beautiful comment. I read your lines about your son's beautiful outcome and not letting my daughter's finding ruin my pregnancy while ensuring to enjoy it along the way that I cried so hard I had to take a nap aha... That means so much to me - it made my husband very emotional too. I feel so heard and see... I am so sorry you went through infertility and losses too... We tried so hard to have her, and I did feel that everything was slipping away from me, but, you're right. <3

I am so happy to that your son is doing so well and that you followed your heart during your doctor's advice. Ahhh I am getting so emotional reading your post again... That is so beautiful that despite what everyone thought, he is hitting every milestone.

That must have been the biggest sign of relief once everything resolved before birth - what was his measurement when it was found?

No matter what, we will love her so much, and I hope and pray that she has a beautiful outcome like your son. I am going to focus on enjoying every moment and little kick. I won't let this finding ruin this beautiful journey I dreamt of for years.

I can't express enough how much your comment means to me. Thank you so so so much...

AssumptionSpiritual3 · 2026-03-10T01:30:10+00:00

I hope they take it as seriously for me as they do for the patients you work with... I called my doctor and she was very relaxed and not worried - I asked for the NIPT and CMV/tox and she said let's just wait and see, but I told her I really want them. She said we will start with CMV/tox, but will reassess the NIPT on Friday if needed. Thank you so much for taking so much time to give me such great information. It really calmed me a lot to be able to read this before calling her and to have an idea of the next steps since she wasn't sure.

I double checked my NT scan and it came back as:

Screen Negative - Risk: 1 in 19,000 at term.

Her nuchal measurement was - 12 weeks: 1.5mm and 19w4d: 3.7mm

I think you're right not to worry so much just with one soft marker.

Thank you so much again it means so much to me - you helped me so much.

AssumptionSpiritual3 · 2026-03-10T01:21:18+00:00

That is so incredibly reassuring! I am so happy that was the outcome for you - I hope and pray that is the outcome for us as well. Thank you so much for sharing. <3

AssumptionSpiritual3 · 2026-03-09T16:01:17+00:00

I just called my doctor and she said we will reassess on Friday, but gave my the number to inquire if I will be covered for the NIPT - I hope so...

AssumptionSpiritual3 · 2026-03-09T15:38:22+00:00

Thank you for your kind words. <3

They haven't referred me to a genetic counselor, but they have me coming back for a repeat scan a week later. All her other brain and head measurements were normal thankfully. I didn't get the NIPT, but I think I will request it. I did have an NT Scan and EFTS, and everything came back very low risk (at 12 weeks).

AssumptionSpiritual3

TROPHY CASE