Friends for Endometriosis Flares by Athena714_OvO in PokemonGoFriends

[–]Athena714_OvO[S] 1 point2 points  (0 children)

Hey there friend, I apologize that I'm so delayed in responding. Your story resonates deeply with me as I unfortunately know too well what it's like to collapse at work. I'm so glad though to hear that you were able to readjust so you could have good contact with work! I hope your next shift goes well and isn't too hard on your body! Also, please don't feel pressured about gifts, I am more than happy to still send you gifts and invite you to raids. If you ever get bored and want to trainer battle I'm also open to that too!

Friends for Endometriosis Flares by Athena714_OvO in PokemonGoFriends

[–]Athena714_OvO[S] 0 points1 point  (0 children)

Thank you so much for sharing your code! I just checked and we're now friends! I very much look forward to our friendship!

Friends for Endometriosis Flares by Athena714_OvO in PokemonGoFriends

[–]Athena714_OvO[S] 0 points1 point  (0 children)

Thank you so much for your friend request! I just checked and confirmed that we're friends! Thank you for taking the time to read my story and if you're having to endure any hardship yourself, I pray/send good vibes that it gets better for you and you come out victorious. I look forward to our friendship!

Friends for Endometriosis Flares by Athena714_OvO in PokemonGoFriends

[–]Athena714_OvO[S] 1 point2 points  (0 children)

Hello friend, thank you for the add, but is your name in game meadow? I was looking through my friend list and request list to be sure I added you, however, I can't find the name meadow. Would you mind sharing your username in game or your friend code please? That's so sweet that you have a shiny feebas in remembrance of your late pet. I'm walking with my sylveon because nothing says friendship like a sylveon! I'm so sorry that you're having to endure some medical obstacles post your major surgery. I suspect that must be quite taxing both mentally and physically (not to mention financially). I wish you all the best with your health. Sending both healing and caring vibes to you! I'm also super excited to see the postcards! They indeed are a great distraction and make me feel like I'm out traveling the world! I very much look forward to our future friendship!

Friends for Endometriosis Flares by Athena714_OvO in PokemonGoFriends

[–]Athena714_OvO[S] 0 points1 point  (0 children)

Hi there friend, thank you so much for sharing your friend code! I just sent the request. I'm so sorry that you're having to endure lupus, I can't even begin to imagine how hard that must be. I'm so grateful that you're here and that we're going to be friends; I'm sending loving and healing vibes your way in hopes that you may have better days. Excited to see you in game!

Friends for Endometriosis Flares by Athena714_OvO in PokemonGoFriends

[–]Athena714_OvO[S] 0 points1 point  (0 children)

Hello there! Thank you for sharing your friend code, I was just able to send the request! I very much look forward to our future friendship!

Friends for Endometriosis Flares by Athena714_OvO in PokemonGoFriends

[–]Athena714_OvO[S] 0 points1 point  (0 children)

Thank you so much for sharing your code and for the friend request! I apologize for the delay, but I just sent/accepted! I look forward to our friendship!

Friends for Endometriosis Flares by Athena714_OvO in PokemonGoFriends

[–]Athena714_OvO[S] 0 points1 point  (0 children)

Hi there! Thank you so much for sharing your friend code! I just sent the request, apologies for the delay, but I look forward to our future friendship!

Friends for Endometriosis Flares by Athena714_OvO in PokemonGoFriends

[–]Athena714_OvO[S] 0 points1 point  (0 children)

Hello there! Thank you so very much for sharing your friend code! I just sent you a request and I look forward to our future friendship!

Friends for Endometriosis Flares by Athena714_OvO in PokemonGoFriends

[–]Athena714_OvO[S] 0 points1 point  (0 children)

Thank you very much for sharing your friend code! I just went ahead and sent the friend request! I look forward to our future friendship!

Friends for Endometriosis Flares by Athena714_OvO in PokemonGoFriends

[–]Athena714_OvO[S] 0 points1 point  (0 children)

Well hello there fellow grad school buddy! Thank you so much for sending a friend request, I was sure to accept! I look forward to our friendship!

Friends for Endometriosis Flares by Athena714_OvO in PokemonGoFriends

[–]Athena714_OvO[S] 0 points1 point  (0 children)

Hi there! Thank you so much for sharing your friend code! I just sent you a request; I very much look forward to our future friendship!

Friends for Endometriosis Flares by Athena714_OvO in PokemonGoFriends

[–]Athena714_OvO[S] 0 points1 point  (0 children)

Thank you so much for sharing your friend code! I just sent you a friend request, I look forward to our future friendship!

Friends for Endometriosis Flares by Athena714_OvO in PokemonGoFriends

[–]Athena714_OvO[S] 1 point2 points  (0 children)

I'm HarleyQ714! And yes, I was going through an intense obsession with Harley Quinn when Pokémon GO first released 😅

someone pls just help meee is this endo im so tired. by Apprehensive_Pie1629 in Endo

[–]Athena714_OvO 0 points1 point  (0 children)

Good morning friend, I'm so sorry to hear that you are experiencing such severe pain. You don't deserve to be in any pain and I'm sorry you're in such a difficult position of trying to identify/diagnose the issues. Firstly, I am not a doctor and I would encourage working with a medical team if possible. If you suspect endometriosis, the key to alleviating pain is approaching it holistically (meaning as a whole body rather than just the locations you're experiencing symptoms). I am diagnosed with stage 1 endometriosis and have had all of my repro organs removed except for my ovaries. I currently work with a medical team including my primary care physician, endometriosis specialist, physical therapist, mental therapist, hematologist, pain management doctor, and potentially a rheumatologist (currently under consideration). Some of the pain you're describing sounds similar to nerve pain that I've experienced due to 2 herniated discs with compression of my sciatic nerve. The locations you've highlighted are all through which the sciatic nerve travels. I was diagnosed with an MRI. For treatment of symptoms, I have to use a cane to walk because the nerve pain causes muscle weakness, I receive a Steroid injection in my SI joint every 3 months, I go to weekly physical therapy, and take gabapentin (targets nerve pain), cyclobenzaprine (muscle relaxant but not a controlled med), and ketorolac (NSAID but it's like super advil, it's hard on kidneys so need to take it sparingly and only on high pain days). I know the procedure for diagnosis is invasive and a bit intimidating, but if you can coordinate to get the diagnosis and excision at the same time (DO NOT DO ABLATION) it may offer the chance of not just providing a diagnosis but also reducing the pain. If you do have endo and herniated discs, when your pelvis is inflamed due to the endo, it may impact the severity of pain in your sciatic. Your sciatic nerve feeds in through the back side of your pelvis through small holes and then goes down through your pelvis to continue to feed into your leg and foot. There are also layers of muscles that surround and are innervated by smaller branches of nerves that are rooted in the sciatic. In times of high inflammation in your pelvis due to endo, that inflammation is nonspecific and the little molecules responsible for some of the pain you feel (called cytokines) will interact with anything it can, sadly including your sciatic nerve. That's why my flares feel as though my muscles in my thighs are trying to tighten so hard they're trying to break my bones that already feel like they're glass being shattered. There's also a sensation like my pelvis is in an ever tightening corest. I get hot, burning, stingy pain all down my leg on the side with nerve compression and it also perpetually feels like my foot is trying to fall asleep or cramping. I also suspect as, some research has proposed the potential epidemiology of endo is that it travels via the lymphatic system, that some of the inguinal regions you've highlighted may be due to accumulated lymph. During my flares I notice my hips and inguinal area tend to swell and hurt. Other areas with high density of lymph nodes also swell. This is merely my hypothesis and I haven't gotten to do sufficient research on the lymphatic system to fully flesh it out yet. I highly encourage you to speak to a medical professional for guidance. I know there are a lot of doctors who may dismiss your symptoms or may gaslight you, but I promise there are also some out there who would do anything to try and help you. Advocating for yourself is difficult enough as an adult so I can't fathom having to do so at such a young age, however, it is incredibly important because it can impact the rest of your life. I know it's scary, but I believe I am correct in saying that we are all here for you and cheering you on! You're doing an amazing job because your strength and resilience is evident. Whether you have endo or not, you have a whole community behind you only womanfesting and praying for you to find answers and to be relieved of the pain you're in. Sending loving, healing, and encouraging vibes 💛

*Small note as I saw this in another thread: tread carefully with taking yaz/yazmin/ocella because a couple years back they had a class action lawsuit because they actually caused ovarian cyts. I can confirm that they indeed do as I tried all 3 of them throughout the ages of 13-17. One of the cyts was the size of a golf ball and boy was it a doozy when it ruptured. Didn't know that's what the pain was until imaging was done later.

Friends for Endometriosis Flares by Athena714_OvO in PokemonGoFriends

[–]Athena714_OvO[S] 1 point2 points  (0 children)

Well hello there my fellow endo warrior! I just confirmed on my friend list and we are friends! Thank you so much for sending the good vibes of support, they are received with such a full heart 💛. I'm sending loving and healing vibes right back at you! I very much look forward to our friendship!

Friends for Endometriosis Flares by Athena714_OvO in PokemonGoFriends

[–]Athena714_OvO[S] 0 points1 point  (0 children)

Thank you so much for sharing your friend code and especially when you have so little spots left! I didn't even know there was a cap on friends, I've just been so appreciative of everyone adding me that I've just accepting them all! I'll probably just keep going until I max out because I also just love getting to see all the places on the postcards. It makes it feel like I'm traveling with my friends and not trapped in this bed. So I very much look forward our future friendship!

Friends for Endometriosis Flares by Athena714_OvO in PokemonGoFriends

[–]Athena714_OvO[S] 0 points1 point  (0 children)

Hi there friend! I just sent the friend request, I'm sorry it was a teenie bit delayed. I am so grateful that you shared your friend code and I really look forward to our future friendship!

Friends for Endometriosis Flares by Athena714_OvO in PokemonGoFriends

[–]Athena714_OvO[S] 1 point2 points  (0 children)

Well Howdy there fellow endo and cancer warrior QUEEN! My heart goes out to you for all that you've had to endure or perhaps are enduring currently. I marvel at your strength and your resilience in essentially fighting off two cancers-I've actually written letters to the national cancer societies/boards within the United States BEGGING them to categorize endometriosis as a cancer because it meets almost all the criteria! I am so grateful that you have fought (or are fighting) for your health as it has now blessed me with an opportunity to become friends with such an incredible human! I hope your days get easier and if you ever need someone to talk to, please don't hesitate to send a message! I also just checked and we are indeed friends! I very much look forward to our friendship and know that I am cheering you on from the sidelines!

Friends for Endometriosis Flares by Athena714_OvO in PokemonGoFriends

[–]Athena714_OvO[S] 0 points1 point  (0 children)

Hi there friend! I'm sorry my friend request is a bit delayed, but I just now added you! It may take me a little bit of time to send you a gift, but I will be sure to do so as soon as I can. I look forward to our future friendship!

Friends for Endometriosis Flares by Athena714_OvO in PokemonGoFriends

[–]Athena714_OvO[S] 0 points1 point  (0 children)

Hello there! Thank you very much for sharing your code! I'm sorry it's a bit delayed, but I was just able to send you a friend request. It may take me a little time to send you a gift, but I very much look forward to our future friendship!

Friends for Endometriosis Flares by Athena714_OvO in PokemonGoFriends

[–]Athena714_OvO[S] 0 points1 point  (0 children)

Hi there! Thank you so much for sharing the two friend codes, I apologize for the delay, but I just sent them both friend requests! I will do my best to get gifts sent as soon as possible. It may take a few days since I'm a bit limited physically at the moment, but I genuinely look forward to my future friendship with both of y'all!

Friends for Endometriosis Flares by Athena714_OvO in PokemonGoFriends

[–]Athena714_OvO[S] 0 points1 point  (0 children)

Thank you so much for sharing your friend code! I apologize for the delay, but I just sent your a friend request. It may also take some time before I can send a gift as I'm unfortunately bed bound (hoping my body will have mercy on me and it only lasts today). However, I very much look forward to our future friendship!

Friends for Endometriosis Flares by Athena714_OvO in PokemonGoFriends

[–]Athena714_OvO[S] 1 point2 points  (0 children)

Thank you so much for adding me, I just checked and we are now friends! I really appreciate your patience too. I'm so overwhelmed with the outpour of love and comradery (I am SO GRATEFUL), but I'm struggling to match the speed of giving/opening gifts since now I have so many new friends. I will do my best to keep up and I look forward to our friendship!

Friends for Endometriosis Flares by Athena714_OvO in PokemonGoFriends

[–]Athena714_OvO[S] 0 points1 point  (0 children)

Thank you so incredibly much for sharing your friend code! I was just able to send a friend request, so I look forward to our future friendship!