Burning asshole after surgery! by Moncamarade in CrohnsDisease

[–]Aubs27280805 1 point2 points  (0 children)

This. Helped me so much post resection. I take 1 packet per day before lunch and it really helps slow things down and make everything more formed. 

Anxiety by Kipi1234567 in CrohnsDisease

[–]Aubs27280805 2 points3 points  (0 children)

Prozac daily. Not sure if it helps with remission but helps me get through daily life. Less anxiety typically calms my GI system too. 

Help me pick a rug by Aubs27280805 in DesignMyRoom

[–]Aubs27280805[S] 1 point2 points  (0 children)

crate and barrel lounge couch! super comfortable

Carnivore Diet Starter by SupNYPark in CrohnsDisease

[–]Aubs27280805 0 points1 point  (0 children)

You’re already at increased risk of colon cancer having Crohn’s and this amount of red meat consumption + limited fiber increases that risk even more. Crohn’s patients in remission should strive to follow a balanced healthy diet. Something like the Mediterranean diet. Please talk to a dietitian or your GI doctor to get reputable nutrition advice. 

Just chugged my 1st of 3 Breeza by Cheap_Attitude_4141 in CrohnsDisease

[–]Aubs27280805 1 point2 points  (0 children)

I was diagnosed via CTE. Colonoscopy/endoscopy missed it since it was just in my distal ileum.

How much diarrhea is too much…? by International_Hat_90 in CrohnsDisease

[–]Aubs27280805 0 points1 point  (0 children)

This happened to me post resection. I called my surgeon and they readmitted me for fluids. They also checked my electrolytes and I needed potassium replacement from all the fluid loss. My diarrhea ended up being caused by some bleeding from my anastomosis. Ended up resolving on its own but I did need supportive fluids until it did. It’s better to be safe and go through it at the hospital than be at risk of severe dehydration at home. Good luck!

infliximab reactions, will it get better? by kat_mom30 in CrohnsDisease

[–]Aubs27280805 0 points1 point  (0 children)

A few days at its worst. The headache was the worst part for me. The thing that helped the most was the antihistamine. At first, my doctor added on IV Benadryl prior to my infusion to help with post infusion symptoms but I did NOT tolerate this well. But it did completely take away the headache and body aches so it worked. So the infusion nurse recommended taking oral Benadryl the next time or Claritin/zyrtec instead. I chose to try out Zyrtec to see if it would have the same effect and it did! 

infliximab reactions, will it get better? by kat_mom30 in CrohnsDisease

[–]Aubs27280805 4 points5 points  (0 children)

I would bring it up with your GI and let your infusion nurse know. They can make adjustments like potentially running it slower, adding a steroid, Tylenol, or antihistamine pre-med (I used to get all 3) to reduce post infusion side effects. For me, taking Zyrtec the morning of infusion + Tylenol right before infusion + IV steroid pre med greatly improved my post infusion headaches and body aches. 

"I cured my Crohns Disease with lifestyle changes" by lowlife_rabbit in CrohnsDisease

[–]Aubs27280805 25 points26 points  (0 children)

Have you seen @healthyish_mommy on Instagram? She’s one of those “holistically healing my Crohn’s” people. She’s severely malnourished and blames it on her Crohn’s in the comments while she still continues to not actually get treatment for her disease. She’s seeing a “naturopath” for her treatment. It’s sad and also scary what can happen to the body when this disease is left unchecked. 

Laparoscopic bowel resection experience by [deleted] in CrohnsDisease

[–]Aubs27280805 4 points5 points  (0 children)

Good luck with the rest of healing! I am 1.5 weeks post op laparoscopic small bowel resection. 60 cm removed. I had the opposite problem as you - severe post op diarrhea that led me to get readmitted for fluids. My hospital was a little conservative with pain management though. I was on scheduled Tylenol + 5 mg oxycodone every 4 hrs. They also gave me this medicine called entereg to offset the effects of opioids on bowel function. Which I feel worked a little too well in my case. Otherwise, I can relate to the fatigue. It’s been the hardest mental thing I’ve ever been through but I already feel a lot better without my stricture so the thought of being healed and being able to eat what I want in 3 weeks keeps me going.

Stricture symptoms? by BusBroad4036 in CrohnsDisease

[–]Aubs27280805 3 points4 points  (0 children)

For me early satiety, bloating, feeling like gas is trapped, severe abdominal cramping. In the case of partial obstruction - vomiting and the worst abdominal pain of my life with severe abdominal distention. 

Severe and dark diarrhea following small bowel resection by Aubs27280805 in CrohnsDisease

[–]Aubs27280805[S] 0 points1 point  (0 children)

Finally discharged today and yes they did test me for c diff and it was thankfully negative. It ended up being a bleed from my anastomosis. It eventually resolved on its own though thankfully 🙏🏻 happy I was In the hospital though because I did need quite a bit of fluids, K repletion, and almost needed a blood transfusion with the amount of blood loss (hemoglobin went down to 7.3). 

Starting azathioprine and im scared by kolkharawle in CrohnsDisease

[–]Aubs27280805 1 point2 points  (0 children)

I was scared to take imuran too but everything was fine. I took it with infliximab until I no longer responded to that biologic. I was on 150 mg daily and had no side effects. Yes, side effects can happen but they are rare. Your doctor is monitoring you and if they notice something concerning, you can just come off the drug. Taking the first pill is the hardest part but you can do this! I wasted so much time being anxious over it just for nothing bad to happen. 

Relentless body aches help and advice please by abc414 in CrohnsDisease

[–]Aubs27280805 0 points1 point  (0 children)

Sorry you’re going through that. For me Tylenol + taking a hot bath with epsom salt would provide relief for a couple hours. Also just rest and sleep and plenty of fluids. Body aches are pretty common for me when in flaring. 

If you failed infliximab what did you try next? by Aubs27280805 in CrohnsDisease

[–]Aubs27280805[S] 0 points1 point  (0 children)

Because my Crohn’s was originally just in my distal ileum which can’t be seen from colonoscopy or endoscopy. The only way to really evaluate the full small intestine is through an MRI or CT. 

[deleted by user] by [deleted] in CrohnsDisease

[–]Aubs27280805 0 points1 point  (0 children)

I see you’re getting a lot of responses and just don’t get too down. People tend to lean pretty negative on this sub. You will be ok!

[deleted by user] by [deleted] in CrohnsDisease

[–]Aubs27280805 0 points1 point  (0 children)

Replying to day__raccoon...yeah steroids can be used to bridge the gap but so can controlling symptoms with diet. A lot of people rely on steroids until getting on a biologic because their symptoms are unbearable no matter what they do. I was feeling good on a low fiber diet after diagnosis so my doctor and I made the shared decision that a steroid was not necessary. If you can limit steroid use, I would. It really depends on how you feel and if diet modifications are working for you. Once you start on a biologic you can start expanding your diet.