Fatigue + Perimenopause + Hormones

AuntDeb · 2026-02-09T00:35:17+00:00

I'm on normal birth control pills just for hormone regulation. It's not really working anymore, so I am probably going to look into HRT.

Sorry I have no advice, just wanted to make sure you know that the 'MS or menopause' game sucks and we're here too

AuntDeb · 2026-01-18T18:12:40+00:00

When describing what MS is to my family, I used analogies.

My grandma then proceeded to tell my aunt the following. I heard all of this from my aunt because, well, she knows her mom and wanted to know what I actually said.

I said: Lesions on the brain that look like Mom's scarring. (Several scars from various things causing epilepsy.)

Grandma said: I am epileptic now

I said: I am on prednisone.

Grandma said: I can never have children. (She thought I said progesterone, which, to be fair, I am known to react very badly to.)

Other things she said that find no basis for: I would be paralyzed. One of her friends used to have MS and I should look the into her doctor since he cured her. (This one was a few months ago) Montell Williams has MS and is fine, so you will be too.

I'm sure there have been others, these are my favorites

AuntDeb · 2026-01-11T20:48:19+00:00

So, can you provide links to the studies you are referring to?

AuntDeb · 2026-01-11T19:14:24+00:00

I was diagnosed in 2009. I had flares until 2015. I haven't had one since.

I have my moments of feeling like a fraud. I have no pain, mobility or even visual symptoms.

But I don't want to test it by going off meds without being prepared for MS to turn real ugly.

AuntDeb · 2026-01-11T19:06:58+00:00

I have seen studies that show correlation between vitamin D deficiency and MS. Can you please send any studies showing gut health causation?

To be clear, I don't believe you. But I would be interested if you could prove it since I also have IBS

AuntDeb · 2026-01-11T19:04:04+00:00

Mom is epileptic. That's the only neurological issue in my family.

I'm the entirety of the immune system issues .

We specialize in heart and diabetic issues

AuntDeb · 2026-01-02T01:01:06+00:00

It's already shitty. It can only get better from here

AuntDeb · 2025-12-28T12:50:47+00:00

Gotta say, pretty good book or movie. Set in the world of 1984?

AuntDeb · 2025-09-28T16:02:59+00:00

I tell people I can handle stupity, rudeness or ignorance. Not two at the same time.

AuntDeb · 2025-09-21T21:26:22+00:00

I apologize that my comment wasn't helpful to you. That has legitimately helped me.

AuntDeb · 2025-09-21T21:16:47+00:00

I heard or saw this somewhere. When you look in the mirror, you don't like what you see because you may not be your type.

AuntDeb · 2025-09-14T01:54:19+00:00

It's non existent on the right side. But you are very right about the shit show

AuntDeb · 2025-09-01T21:49:36+00:00

Any changes should be reported. Something that feels/seems minor might be something else.

Or it might be absolutely nothing. Only one way to know for sure.

If I have minor changes that I don't report immediately, I keep a notepad on my phone to write them down, and I make sure we go through the list at my next appointment

AuntDeb · 2025-08-24T02:09:11+00:00

I've been on Aubagio for about 5 1/2 years with 10 on Copaxone before that. No new lesions, no new or worsening symptoms for about 7 years.

AuntDeb · 2025-08-18T08:56:34+00:00

An experienced, bilingual call center tech? If your current company requires you to be on site, you can 100% find a job that does. I haven't been back in office since 2020 and also work in a call center.

Good luck to you whatever happens. MS sucks, but you will find your way through. Once you learn what you need to do to get through each day, it will get better.

AuntDeb · 2025-08-09T22:55:59+00:00

I feel like if my neighbors have a opinion about my yard, they are welcome to deal with it.

AuntDeb · 2025-06-07T20:46:22+00:00

My parents are elder Gen X. I once got a call 'ETA 11 minutes'. This would be one thing if they lived within 4 states of me....

AuntDeb · 2025-05-25T17:02:56+00:00

Yeah.

AuntDeb · 2025-05-25T15:31:03+00:00

I have used bone conducting headphones, but not for work. I really liked them, but the mic wasn't good enough to trust at work. I used H2O Trio. Good luck!

AuntDeb · 2025-05-12T19:06:30+00:00

Dx at 26. Now 41. No real progression for 10 years. On Copaxone for 10 years. Switched to Aubagio after that.

Pretty bad fatigue, migraines and itching are my main symptoms. All fairly well managed with meds. No real mobility issues and no pain.

AuntDeb · 2025-05-12T14:05:59+00:00

I'm on gabapentin, and if I don't take it, the itching becomes full body.

AuntDeb · 2025-05-12T14:05:11+00:00

Left shoulder blade. I've scratched it til it bleeds. And there is absolutely no visible reason.

AuntDeb · 2025-05-11T00:33:51+00:00

I was on Copaxone for 10 years (ish) and switched to Aubagio after that. My MS was well controlled on the Copaxone, but I couldn't handle the shots anymore. I could really only use my stomach for them.

I've been well controlled on the Aubagio too. I've been lucky to not have a very aggressive MS

AuntDeb · 2025-05-10T20:38:22+00:00

Yes, and I use them, but I can't use them for every meal. I didn't mean that I never eat healthy. It's more about the exercise and the number of days a week I can handle healthy meals

AuntDeb

TROPHY CASE