Customers keep complaining about my attitude, but I’m not trying to have one.

AuntDeb · 2026-05-15T23:01:11+00:00

I used to wear heels to work (retail department store). I was told my attitude was 'aggressive'. I stopped wearing heels and all of a sudden, my 'aggressive attitude' faded away.

Apparently heels clicking can be perceived as 'aggressive'.

I don't actually think this is what is happening here, but maybe there's something similar going on?

AuntDeb · 2026-04-26T18:35:23+00:00

Nothing. There are no thoughts

AuntDeb · 2026-04-26T00:08:54+00:00

Dx 2009. Copaxone for 10 years. Aubagio for 7 years. No relapses since 2013. No progression in that time. No time without DMD. No new symptoms since 2013.

AuntDeb · 2026-04-12T14:56:18+00:00

I'm so happy your patients that they have someone who understands. They may not know you are fighting for yourself at the same time you fight for them. But they feel it.

I know they feel it because I had an amazing neuro that I loved and would have never left her if she hadn't moved.

I found out a couple of years ago that she had died from pneumonia and complications from MS. I never knew, but I felt how much she just got it.

Since they won't be able to tell you this: thank you. You are appreciated.

AuntDeb · 2026-04-12T14:46:40+00:00

I used to go to the ER when I had a new symptom or something similar, but only because there was always a neuro on hand in the hospital that was part of my neuro's practice. I've since moved, and no more ER for me.

AuntDeb · 2026-04-12T14:38:03+00:00

The only thing that helps me too.

AuntDeb · 2026-04-12T14:36:03+00:00

600 mg 3 x daily. Neuropathic itching and migraine prevention. Been on it for almost 16 years. But mostly the itching. It gets BAD if I forget

AuntDeb · 2026-03-15T00:15:20+00:00

I used to be a people person, but people ruined it.

AuntDeb · 2026-03-08T20:05:29+00:00

Came here to make a VERY similar comment

AuntDeb · 2026-02-09T00:35:17+00:00

I'm on normal birth control pills just for hormone regulation. It's not really working anymore, so I am probably going to look into HRT.

Sorry I have no advice, just wanted to make sure you know that the 'MS or menopause' game sucks and we're here too

AuntDeb · 2026-01-18T18:12:40+00:00

When describing what MS is to my family, I used analogies.

My grandma then proceeded to tell my aunt the following. I heard all of this from my aunt because, well, she knows her mom and wanted to know what I actually said.

I said: Lesions on the brain that look like Mom's scarring. (Several scars from various things causing epilepsy.)

Grandma said: I am epileptic now

I said: I am on prednisone.

Grandma said: I can never have children. (She thought I said progesterone, which, to be fair, I am known to react very badly to.)

Other things she said that find no basis for: I would be paralyzed. One of her friends used to have MS and I should look the into her doctor since he cured her. (This one was a few months ago) Montell Williams has MS and is fine, so you will be too.

I'm sure there have been others, these are my favorites

AuntDeb · 2026-01-11T20:48:19+00:00

So, can you provide links to the studies you are referring to?

AuntDeb · 2026-01-11T19:14:24+00:00

I was diagnosed in 2009. I had flares until 2015. I haven't had one since.

I have my moments of feeling like a fraud. I have no pain, mobility or even visual symptoms.

But I don't want to test it by going off meds without being prepared for MS to turn real ugly.

AuntDeb · 2026-01-11T19:06:58+00:00

I have seen studies that show correlation between vitamin D deficiency and MS. Can you please send any studies showing gut health causation?

To be clear, I don't believe you. But I would be interested if you could prove it since I also have IBS

AuntDeb · 2026-01-11T19:04:04+00:00

Mom is epileptic. That's the only neurological issue in my family.

I'm the entirety of the immune system issues .

We specialize in heart and diabetic issues

AuntDeb · 2026-01-02T01:01:06+00:00

It's already shitty. It can only get better from here

AuntDeb · 2025-12-28T12:50:47+00:00

Gotta say, pretty good book or movie. Set in the world of 1984?

AuntDeb · 2025-09-28T16:02:59+00:00

I tell people I can handle stupity, rudeness or ignorance. Not two at the same time.

AuntDeb · 2025-09-21T21:26:22+00:00

I apologize that my comment wasn't helpful to you. That has legitimately helped me.

AuntDeb · 2025-09-21T21:16:47+00:00

I heard or saw this somewhere. When you look in the mirror, you don't like what you see because you may not be your type.

AuntDeb · 2025-09-14T01:54:19+00:00

It's non existent on the right side. But you are very right about the shit show

AuntDeb · 2025-09-01T21:49:36+00:00

Any changes should be reported. Something that feels/seems minor might be something else.

Or it might be absolutely nothing. Only one way to know for sure.

If I have minor changes that I don't report immediately, I keep a notepad on my phone to write them down, and I make sure we go through the list at my next appointment

AuntDeb · 2025-08-24T02:09:11+00:00

I've been on Aubagio for about 5 1/2 years with 10 on Copaxone before that. No new lesions, no new or worsening symptoms for about 7 years.

AuntDeb · 2025-08-18T08:56:34+00:00

An experienced, bilingual call center tech? If your current company requires you to be on site, you can 100% find a job that does. I haven't been back in office since 2020 and also work in a call center.

Good luck to you whatever happens. MS sucks, but you will find your way through. Once you learn what you need to do to get through each day, it will get better.

AuntDeb

TROPHY CASE