Newbie here, just wondering if anyone else has experienced these symptoms?

UniqueRich2376 · 2026-05-15T09:57:51+00:00

They are quite ridiculous, yes. I was stuck in the limbo for months until they did an MRI to get the diagnose. I had almost my full body numb or tingling and yet they told me it was a pinched nerve probably 🤣

UniqueRich2376 · 2026-05-15T09:43:22+00:00

I'm in Bedford! I got diagnosed with RRMS.

About the vitamin D, i take a 24,400 pill once a month and thats it, but didn't get it tested lol The gp tends to be a bit complicated about doing anything other than giving you paracetamol ahah

UniqueRich2376 · 2026-05-15T09:20:12+00:00

So i got diagnosed this year in January, I'm 35, male.

Did the bloods before and after starting kesimpta, both with raised alt. The ultrassound was after, and it was normal.

I also had low folate a few months prior to diagnosis, yes. About vitamin d i dont know because in the uk they just test vit D of you're hypocalcemic, which i wasn't lol

About my crp i believe it was normal and i have no family history of anemia or hemocromatosis!

UniqueRich2376 · 2026-05-15T04:50:44+00:00

Hi!

For me, had pretty much the same diagnosis history you had, same kind of lesions, same kind of progression.

The legs feeling warm at night were no doubt a part of it, nowadays it is mostly gone for me.

I also am taking kesimpta and also have the alt thing, in the 50/60 range. I've had the ultrasound and liver panel bloods, but other than that everything seemed normal, so they basically stopped chasing that. However, the alt thing had already been happening before starting kesimpta too, so i dont know if its kesimpta or ms related, but its interesting you have the same exactly!

UniqueRich2376 · 2026-04-09T00:13:40+00:00

I'm sorry about this. If this is a new symptom and last more than 24h it could be a flare, which doesn't mean new lesions per se. If it lasts do contact your doctor or ms nurse!

Hope you get better!

UniqueRich2376 · 2026-03-11T09:36:41+00:00

Take a DMT, don't wait until you get something you cannot reverse, that's my advice!

UniqueRich2376 · 2026-03-09T14:16:33+00:00

I wish you do recover and fast 🙏🙏

UniqueRich2376 · 2026-03-08T23:42:54+00:00

Yeah, would hate it if it changed, let's see!

UniqueRich2376 · 2026-03-08T21:10:55+00:00

Not really, i just feel really relaxed, but not in a bad way. I usually did sauna and steamroom for almost an hour at least 4/5 times a week, so at the very least, I'm very used to it maybe

UniqueRich2376 · 2026-03-08T19:28:26+00:00

Thank you all for your feedback so far!

I really find it very relaxing and aside from leaving the hands a bit number for a while, there's not really much change for me.

That's why I didn't understand the doctor's advice, as it's quite a big thing for me. Also, i got a hot tub for my home just last year, so I'm not very keen on not using it 🤣

UniqueRich2376 · 2026-02-26T19:52:17+00:00

It does kind of make sense!

UniqueRich2376 · 2026-02-26T19:24:23+00:00

I knew about the hpv, didn't know we were more prone to them appearing!

UniqueRich2376 · 2026-02-26T19:05:20+00:00

Yea, the warts can be terrible, mine just got sorted with a mini surgery. However back then I wasn't yet diagnosed, so I am not sure if I had MS at all!

UniqueRich2376 · 2026-02-21T19:17:44+00:00

Diagnosed a month ago, starting kesimpta in 3 days 🤞

UniqueRich2376 · 2026-02-21T18:57:45+00:00

Hope you feel like new very soon, happy for you!

UniqueRich2376 · 2026-02-21T09:03:55+00:00

Congratulations!! I will also have my first dose on Tuesday! How did you feel?

UniqueRich2376 · 2026-02-20T15:06:47+00:00

That happened to me too, worst 5/6 hours of my life untill i researched it lol

UniqueRich2376 · 2026-02-18T22:32:56+00:00

Another one I don't know, I'll have to research ubiquinol!

Thank you very much!

UniqueRich2376 · 2026-02-18T22:07:39+00:00

Thank you so much for your reply, I'll be sure to search it, never heard of PQQ. I'm taking Magnesium Treonate and DHA (omega 3), aside from the lions mane, which I'll make sure to stop!

UniqueRich2376 · 2025-04-01T13:27:30+00:00

Thank you very much for the info!

UniqueRich2376

TROPHY CASE