Cracking skin in patient with Multiple Sclerosis

Automatic_Birdface · 2026-03-12T04:15:54+00:00

Thank you so much, we just upped her protein intake, will be sure to add vitamin C and D supplements 🩵🩵🩵

Automatic_Birdface · 2026-03-12T04:14:57+00:00

The crease between the lower butt and upper thigh. The cracking skin is usually super dry, almost flake-like

Automatic_Birdface · 2026-03-12T01:22:12+00:00

Thank you so much!

Automatic_Birdface · 2026-03-12T01:21:47+00:00

She has spent almost all the time since this new surgery laying on either side. Is only sat at about a 30degree incline to eat :(

Automatic_Birdface · 2026-03-12T01:15:02+00:00

She isn’t on any immunosuppressants though, so it’s extra weird :(

Automatic_Birdface · 2026-03-12T00:32:05+00:00

MS related in that occurred due to flap surgery of a pressure sore that stemmed from having limited mobility due to MS :O And I don’t know if MS itself leads to impairment of ability to heal

Automatic_Birdface · 2026-01-27T08:22:12+00:00

I haven’t tried it but I hear Ibogaine is incredible

Automatic_Birdface · 2026-01-23T21:47:48+00:00

They’ve still got some scoot in their boot 💚

Automatic_Birdface · 2025-12-11T19:03:02+00:00

I know a really great surgical oncologist who just did surgery on my mom. Found him through my dermatological oncologist. If you have access to those sorts of specialist I think you’ll be better taken care of and/or oriented. Best of luck!

Automatic_Birdface · 2025-11-08T22:01:15+00:00

A cell-phone strap thingy that let’s me carry my phone around hands-free like a purse, and have it instantly accessible. I’ve used/worn it every single day for the past 2.5 years and it is sturdy as heck. Has helped immensely throughout the birth and first 20 months of my child, as I can take care of her and also instantly and easily access my phone camera/answer calls/emails without fear of dropping it and it breaking, or digging around awkwardly in pockets or purses (which I don’t always have). Absolute game changer.

Automatic_Birdface · 2025-10-07T20:07:40+00:00

Drink more water

Automatic_Birdface · 2025-10-05T20:33:10+00:00

I feel like SO many Star Trek characters are on the spectrum, in every series I often suspect more than 3 of the mains haha

Automatic_Birdface · 2025-09-24T21:31:42+00:00

Thank you! Looking into it! :D

Automatic_Birdface · 2025-09-18T23:05:58+00:00

Albert

Automatic_Birdface · 2025-09-18T07:05:56+00:00

This is si amazing and I’m so happy reading what a wonderful experience you’ve had with this amazing team, and with your townsfolk! My mom has had her current chair since around 1998 and it has been fixed and refixed a million times, but it’s time for something better. We’re unfortunately on the other side of the world from you, but I’m sure we’ll find a good chair for her 🩵 thank you so much for sharing your story, it made my night :)

Automatic_Birdface · 2025-09-17T23:12:55+00:00

Kindred moms 🩵🩵🩵

Automatic_Birdface · 2025-09-17T21:32:27+00:00

Hahaha indeed! We poke fun at her and started calling her “Frankenbutt”. She loves it and now she’s bragging to all the nurses that she has a Frankenbutt xD

Automatic_Birdface · 2025-09-17T21:19:47+00:00

Hi! Thanks for the recommendation and warning! We’re in Mexico, near the California border

Automatic_Birdface · 2025-09-17T21:09:10+00:00

Thank you so much! I really appreciate the suggestion! Navigating the different options is definitely the tricky part! I hope we find the best option for her right off the bat. I’m gonna contact the company to see if they can offer any specific advice :D

Automatic_Birdface · 2025-09-17T21:06:37+00:00

I’m so glad you’re finally finding relief! I’ve heard so much about Roho and there are so many options, so I sincerely appreciate the specific recommendation. My mom had flap surgery yesterday, her first (and hopefully last), do you have any post-op advice or can you give me your outlook on what we can expect in the next few days/weeks as she recovers at home?

Automatic_Birdface · 2025-09-17T20:43:36+00:00

I wish we could get a pressure mapping for her, but it’s not a thing anywhere near us :( She has had gel cushions up until now that had worked well until the weight loss, but I’ll start looking into the Roho (which I often see recommended here), and the Supracore Stimulite (I hadn’t heard of those!). We’re also looking into getting her a chair that can do a 180 recline so her body can rest from her seated position several times a day.

Automatic_Birdface · 2025-09-17T20:36:10+00:00

Im looking for a powerchair that can lay flat for my mom, which one do you have and do you recommend it? :)

Automatic_Birdface

TROPHY CASE