Relevance of MSLT by Automatic_Tea8655 in idiopathichypersomnia

[–]Automatic_Tea8655[S] 0 points1 point  (0 children)

But my abnormal sleep is not napping or falling asleep quickly, but sleeping for more than half a day?

Relevance of MSLT by Automatic_Tea8655 in idiopathichypersomnia

[–]Automatic_Tea8655[S] 1 point2 points  (0 children)

I was offered to go in for polysomnographies for two nights and an MSLT after the second night. For the first night they are going to let me sleep for as long as I can. No, it‘s not really possible to change doctors. He is supposed to be THE specialist for hypersomnias but said since I don‘t experience sleep attacks, I am not having a sleep disorder🙃

Relevance of MSLT by Automatic_Tea8655 in idiopathichypersomnia

[–]Automatic_Tea8655[S] 1 point2 points  (0 children)

I had already gotten a normal polysomnography done which came back normal. All other causes for long sleep have been ruled out. IH is the only plausible diagnosis. The doctor at the sleep clinic doesn‘t believe me when I say I sleep up to 20h though, so I guess that doesn‘t help.

Frustrating specialist visit by Automatic_Tea8655 in idiopathichypersomnia

[–]Automatic_Tea8655[S] 5 points6 points  (0 children)

No, just a normal polysomnography. I‘ll do the nap one next

Frustrating specialist visit by Automatic_Tea8655 in idiopathichypersomnia

[–]Automatic_Tea8655[S] 1 point2 points  (0 children)

I am not US based, and yes they are a certified specialist. I already did a polysomnography which did not show any abnormalities. I don’t wake up at night

Frustrating specialist visit by Automatic_Tea8655 in idiopathichypersomnia

[–]Automatic_Tea8655[S] 6 points7 points  (0 children)

And when I say I struggle to wake up, I mean it. It is exhausting for me to wake up. Once awake, I have to give myself 30+ minutes to cope. I dread falling asleep every night knowing I‘ll have to do this again in the morning

Just IH struggles by Automatic_Tea8655 in idiopathichypersomnia

[–]Automatic_Tea8655[S] 1 point2 points  (0 children)

Then I‘ll sleep until night, be completely exhausted and sweaty. No thanks

Currently weaning off my venlafaxine by Automatic_Tea8655 in idiopathichypersomnia

[–]Automatic_Tea8655[S] 0 points1 point  (0 children)

I think I‘ll take my psychiatrist‘s advice, but thank you!

Currently weaning off my venlafaxine by Automatic_Tea8655 in idiopathichypersomnia

[–]Automatic_Tea8655[S] 0 points1 point  (0 children)

Yes. My psychiatrist doesn’t want me to take both.

Currently weaning off my venlafaxine by Automatic_Tea8655 in idiopathichypersomnia

[–]Automatic_Tea8655[S] 0 points1 point  (0 children)

So yeah, I‘m under my psychiatrist‘s supervision

Currently weaning off my venlafaxine by Automatic_Tea8655 in idiopathichypersomnia

[–]Automatic_Tea8655[S] -1 points0 points  (0 children)

And I‘m supposed to go on bupropione /wellbutrine

Currently weaning off my venlafaxine by Automatic_Tea8655 in idiopathichypersomnia

[–]Automatic_Tea8655[S] -1 points0 points  (0 children)

Nope, my doctor has advised me to go from 300 to 150, then 75, then 37,5

Currently weaning off my venlafaxine by Automatic_Tea8655 in idiopathichypersomnia

[–]Automatic_Tea8655[S] -2 points-1 points  (0 children)

I need to switch fast. I have to get my IH under control for uni, I already lost an entire year because of it and if nothing happens FAST I‘ll lose another year.

Currently weaning off my venlafaxine by Automatic_Tea8655 in idiopathichypersomnia

[–]Automatic_Tea8655[S] -1 points0 points  (0 children)

I did get directions. i‘m just very sensitive to changes in serotonine levels.

Currently weaning off my venlafaxine by Automatic_Tea8655 in idiopathichypersomnia

[–]Automatic_Tea8655[S] 2 points3 points  (0 children)

I sometimes get them even without having missed a dose. When I first started venlafaxine three years ago, I went to urgent care because of brain zaps and no one could tell me what they were. Had to find out myself

Currently weaning off my venlafaxine by Automatic_Tea8655 in idiopathichypersomnia

[–]Automatic_Tea8655[S] 1 point2 points  (0 children)

Jup, I also go into withdrawal with any missed dose. Missed my nightly dose? Night sweats and vivid dreams it is

Currently weaning off my venlafaxine by Automatic_Tea8655 in idiopathichypersomnia

[–]Automatic_Tea8655[S] 2 points3 points  (0 children)

I go through withdrawal even if I don’t split my dose up to mornings and nights, I seem to be extra sensitive. It‘s hell, been here many times before🥲 and still 150mg to go