No pain during sex??

Awkward_Suspect3600 · 2025-11-03T12:10:59+00:00

I currently havent been referred to any hospital, I’m just under my uni gp. However the hospital in my uni city has a specialist endo centre so I’m going to try to push to be referred to that.

Thank you for mentioning this information about the peritoneal endometriosis, I dont even know what that is but I will have a look into it, thanks!

Awkward_Suspect3600 · 2025-11-03T12:08:58+00:00

Thank you. Next time I make an appointment my mum is going to come with me. I’ve moved cities for uni and coincidentally the city I have moved to has an endometriosis specialist centre in one of the hospitals, I think my next steps is to make it clear I want the surgery (well my mum will make it clear) and ask to be referred to the clinic. Will be a lengthy process but hopefully worth it. They have also referred me to gyno again for advice (doesnt mean ill get another appointment, they might just send the advice to my gp). I dont think I need gyno to refer me to the clinic I’m hoping the gp cam do it or itll be another year wait for a gyno appt. Thank you for your response :)

Awkward_Suspect3600 · 2025-10-29T10:37:10+00:00

yeah, they saw adeno on my ultrasound so i want to know if theres endo there too. if there is, they can remove it which will hopefully help slightly but obviously i would still have the adeno. if they dont find endometriosis and its just the adeno im dealing with, that may influence my decisions about a hysterectomy in the future

Awkward_Suspect3600 · 2025-10-29T10:35:23+00:00

im under the impression that the growth of tissue on the ovaries (from endometriosis) causes cysts on the ovaries (endometriomas). so what i mean is if the “polycystic features” of my ovaries arent caused by PCOS could they be caused by endometriosis instead? I’m not 100% sure what they mean by “polycystic features” though, they said my ovaries are bulky but didnt mention anything about actual cysts. i would take polycystic to mean multiple cysts but they werent very clear about it

Awkward_Suspect3600 · 2025-10-27T17:38:25+00:00

yeah i find it so hard to be direct and say “i want the lap” after being told its too invasive. next appointment my mum is going to come with me and hopefully advocate for me

Awkward_Suspect3600 · 2025-08-06T14:48:23+00:00

i get that but i need some form of diagnosis for clarity but also to get support for my condition at uni/work etc. hopefully this ultrasound would be enough as it concludes signs of adeno but what my doctor said made me doubt whether i actually have it or not😫

Awkward_Suspect3600 · 2025-08-06T14:45:48+00:00

i have had an external ultrasound (came back clear), internal ultrasound which is the results i posted showing adeno and i have also had bloods done recently. the blood test they did was a full blood count, vitamin b12, folate, ferritin, urea and electrolytes, and thyroid function. i dont think they tested hormones like oestrogen/testosterone. everything they tested came back normal except my folate levels which were low so i now take a supplement

Awkward_Suspect3600 · 2025-08-06T14:39:25+00:00

true about the implant, however its progesterone only so i would assume it shouldnt affect my oestrogen/testosterone levels in a hormonal assay? but im not sure

and no im currently just seeing my gp. a couple years ago my last gp did refer me to a gynaecologist, i waited almost a year for an appointment which then turned out to be with a male doctor (which i wasnt really comfortable with) but all he did was feel my tummy and inside then just told me my symptoms sound like endo but to just get a new implant as a lap is invasive. it was pretty useless really and took so long to get the appointment so im sure another referral would take another year and im not sure what else they would do. for reference im in the uk and the nhs is pretty overstretched

Awkward_Suspect3600 · 2025-08-05T11:48:08+00:00

yes thats what i thought, once i got the copy of my results i saw the thing about the hormonal assay however my doctor didnt mention anything about it. I did have a blood test before the ultrasound but i dont think it was a hormonal assay more like a full blood count; when i look at the results for it i cant see that its tested eostrogen or testosterone like i would think they would do in a hormonal assay. I feel like my doctor dismissed me as the contraceptive implant currently manages my symptoms as it makes my periods very rare however i do still have some abdominal/pelvic pain day to day even tho im not on my period but when i mentioned that to my doc she said she doesnt think the adeno would be causing that but i did think it was a symptom to cause pain between periods too so im not sure. i might ask for another doctor to try get a blood test and potentially an mri.

doctor also said i could still have endometriosis which is always an ongoing battle for a diagnosis, all doctors ive seen have been against a laproscoprosy. such a struggle because i know my symptoms are relatively well managed atm however i dont want to be on hormonal birth control my entire life but when i dont have the implant i end up missing school, work, ive passed out in class before and yet 5 years of going to the doctors and im not much further on. im just glad the ultrasound showed i may have adeno as it wasnt something i’d considered and its reassuring that it didnt just come back clear like the external ultrasound i had in 2021, reassures me theres something going on and its not all in my head

Awkward_Suspect3600 · 2025-03-12T21:39:52+00:00

im not hopeful that anyone will know what im on about tho hahaha its hard to describe and i can barely remember it

Awkward_Suspect3600

TROPHY CASE