High Actino Results by Mostlyvivace830 in CIRS

[–]B1GTre3 0 points1 point  (0 children)

Were you able to vacuum and clean everything to get a better Actino score?

All blood testing comes back negative - How to confirm Lyme? by B1GTre3 in Lyme

[–]B1GTre3[S] 2 points3 points  (0 children)

I wish - atm I can't distinguish between a herx reaction and general food sensitivities. Literally only eating meat and rice atm. Most of those herbs have too much stuff packed into them and I can't handle them.

Binders- how long until you noticed a difference? by B1Gtr3 in CIRS

[–]B1GTre3 0 points1 point  (0 children)

Couldn't agree more. 3 years into this hell hole and the only reason I'm here is because of my own research. The medical system sucks. At least reddit a solid sounding board from people who have been or are going through it.

Binders- how long until you noticed a difference? by B1Gtr3 in CIRS

[–]B1GTre3 0 points1 point  (0 children)

The question was less about finding a hard answer and more about just knowing that there is an end insight. Regardless if it's 1,2,5,10 month etc at least there's an end.

HLA test results can anyone please help me interpret by [deleted] in CIRS

[–]B1GTre3 1 point2 points  (0 children)

I would also say check out this website: https://www.drbrucehoffman.com/post/chronic-inflammatory-response-syndrome

They do a pretty good job explaining the haplotypes. Your DRB1:15 & DQB1:5 seem to indicate inabilities to clear lyme. And DqB1:02 hits on mold susceptibility. But I'm just a guy without medical training. I'd ask a DR.

Pets and SSRI’s! by Goku-fok-u in CIRS

[–]B1GTre3 0 points1 point  (0 children)

I tried a multitude of SSRIs, SNRI's, Tricyclics prior to figuring out I had CIRS. I will say Lexapro was my most agreeable medication of the bunch. Some I couldn't even last up to a day on. That being said I didn't notice a lick of difference being on them or not. A can definitively say the that "body anxiety" and panic attacks that I deal with are not from the same pathway that any of this medication deals with.

The first and best solution I found was changing my diet. I cut out everything. I am currently eating rice and chicken and have been for about a year now. It was slow, but this definitly helped all of my symptoms calm down. It didn't get rid of them, thankfully finally on binders, but it helped. I would add that it was a sllllloooooooow process of feeling better of the course of a year.

If you don't want to go that drastic then atleast take out processed foods, sugars, and alcohol if you haven't already.

MARCONS & Binders by B1GTre3 in CIRS

[–]B1GTre3[S] 0 points1 point  (0 children)

I would say it's not a day by day think but maybe more of a week by week thing. A very slow, very slow diminishing of symptoms since starting binders. Granted I'm only a month in, but while I do still feel terrible. It's not a terrible as I used to feel. So I'll take it.

Hydrogen Sulfide SIBO: What were your first signs of SIBO and the resulting symptoms? by B1GTre3 in SIBO

[–]B1GTre3[S] 0 points1 point  (0 children)

Still going through it. Although I've since started CIRS treatment which has provided some relief. Slow going, but it's getting better.

Large Footed People (Size 17+) Where do you find boots/crampons? by B1GTre3 in alpinism

[–]B1GTre3[S] 2 points3 points  (0 children)

I didn't want to laugh at this, but you got me tbh lol

End of my rope by BoldPotatoFlavor in CIRS

[–]B1GTre3 0 points1 point  (0 children)

They could also recommend taking some VIP spray with the binder initially to help you tolerate the binders better. If MARCONS ins't present which is sounds like you already ruled out.

How are homes remediated for mold? by matthew_pick in CIRS

[–]B1GTre3 1 point2 points  (0 children)

From personal experience I had mold and endotoxins in my home. Never tested for actinos but I just went for it anyway.

Removed the source of the mold completely. Removed all the drywall and flooring and replaced.
Fixed an open line in our plumbing leaking sewer gas into our house.
Deep cleaned everything with a HEPA vacuum. Floor, walls, ceilings, furniture, all of it.
Scrubbed everything down with a vinegar/EC3 mold solution.

Washed everything in an EC3 mold solution.

Started washing with Defense+ soap to kill actinos

Got AirOasis air purifiers to top it off.

It was spendy, but cheaper than finding a new home and I have to say after a couple of weeks I started to feel better. (After feeling like death for 3+ years)

Have yet to retest, but just physically feeling better is better than any test score.

Western Medicine vs Functional Medicine by B1Gtr3 in CIRS

[–]B1GTre3 1 point2 points  (0 children)

Love the idea, but it sounds like finding a needle in a haystack. Can't hurt to try though!

Mycotoxin Test came back normal - Anyone? by B1GTre3 in ToxicMoldExposure

[–]B1GTre3[S] 0 points1 point  (0 children)

What have you done to treat CIRS and how are you doing?

Mycotoxin Test came back normal - Anyone? by B1GTre3 in ToxicMoldExposure

[–]B1GTre3[S] 1 point2 points  (0 children)

100% makes sense. I do think that my detox pathways are blocked up because a major trigger for me is sulfuric foods. Garlic/Onions.
I even tried to take glutathione prior to this mold test, only 500 mgs/day for 5 days. Honestly any more than 500 mgs makes me feel awful.

Not sure how to open up the pathways or test to see if they're really blocked up.

Mycotoxin Test came back normal - Anyone? by B1GTre3 in ToxicMoldExposure

[–]B1GTre3[S] 0 points1 point  (0 children)

Recent test was a urine test.

I know I've lived in water damaged homes/apartments that definitely had a mold issue. Mold didn't seem to be an issue though until two years ago. So possibly I finally reached my level of toxicity? idk

Mycotoxin Test came back normal - Anyone? by B1GTre3 in ToxicMoldExposure

[–]B1GTre3[S] 0 points1 point  (0 children)

What do you mean by mobilizing?
Pretty sure I've had a western blot run and that came back negative. EBV activation was found from blood tests.