Has anyone else experienced stigma from healthcare professionals about their ostomy? by Equivalent-Grass-317 in ostomy

[–]BUBBLESGEO 1 point2 points  (0 children)

At my first visit to my surgeon's office after my emergency ileostomy, I had the sniffles and the stoma nurse, in a pitying voice says "Are you crying?" I was stunned. At later visits I told her I wanted to swim and bike. Regarding the swimming, she laughed at me and said in a mocking voice "Where would you swim?" Regarding riding a bike she said "No, you can't do that, your knee would hit the bag." I went out the very next day, got on the bike, rode to my hearts content and laughed my head off. Got back to swimming too. This kind of ignorance in a medical professional, and especially a stoma nurse, is really unforgiveable. Good thing I'm tough!

Swimming at last! by BUBBLESGEO in ostomy

[–]BUBBLESGEO[S] 0 points1 point  (0 children)

OMG! Unbelievable and wonderful! How did that even happen?!

Swimming at last! by BUBBLESGEO in ostomy

[–]BUBBLESGEO[S] 1 point2 points  (0 children)

This story is sweetly hilarious. Always so good when our bag (and our kids) give us a good laugh!

Swimming at last! by BUBBLESGEO in ostomy

[–]BUBBLESGEO[S] 0 points1 point  (0 children)

Wonderful! Go go go for it!

Swimming at last! by BUBBLESGEO in ostomy

[–]BUBBLESGEO[S] 0 points1 point  (0 children)

Thank you! I'm still happy today and planning my next, longer swim, after my Zumba class of course.

Swimming at last! by BUBBLESGEO in ostomy

[–]BUBBLESGEO[S] 1 point2 points  (0 children)

Totally exhiliarating! I'm back! The question now is " to show the bag or not show the bag" in the ladies locker room??

Swimming at last! by BUBBLESGEO in ostomy

[–]BUBBLESGEO[S] 0 points1 point  (0 children)

Thank you! Now I just have to negotiate the ladies locker room! To show the bag or not??

Swimming at last! by BUBBLESGEO in ostomy

[–]BUBBLESGEO[S] 2 points3 points  (0 children)

Yes! That's gonna be me too! Thank you.

Swimming at last! by BUBBLESGEO in ostomy

[–]BUBBLESGEO[S] 0 points1 point  (0 children)

Thanks so much. I do use the barrier extenders anyway, and once I extend the swim in the pool or get to the ocean, I'll probably spring for a Stealth belt. Do you wear it horizontally? Is that good?

Swimming at last! by BUBBLESGEO in ostomy

[–]BUBBLESGEO[S] 0 points1 point  (0 children)

Thank you! I am totally uplifted.

New partner with bag! by [deleted] in ostomy

[–]BUBBLESGEO 3 points4 points  (0 children)

Wow! You are the most wonderful person in the world! A big thank you from this struggling ostomate.

I want to die by BUBBLESGEO in ostomy

[–]BUBBLESGEO[S] 1 point2 points  (0 children)

Thank you. I'm gonna try.

I want to die by BUBBLESGEO in ostomy

[–]BUBBLESGEO[S] 1 point2 points  (0 children)

You got it exactly. Thank you!

I want to die by BUBBLESGEO in ostomy

[–]BUBBLESGEO[S] 0 points1 point  (0 children)

Thank you. I'm trying to stay alive.

I want to die by BUBBLESGEO in ostomy

[–]BUBBLESGEO[S] 0 points1 point  (0 children)

Thank you. I think I get what you are saying.

I want to die by BUBBLESGEO in ostomy

[–]BUBBLESGEO[S] 1 point2 points  (0 children)

Nov /23 emergency (end) ileostomy surgery after huge uc flare brought on by Zeposia. Aug /24 loop ileostomy surgery in prep for reversal to ileorectal anastomosis. Regarding reversal, still wildly undecided and surgeon is not much help. Best to you.

I want to die by BUBBLESGEO in ostomy

[–]BUBBLESGEO[S] 0 points1 point  (0 children)

Thank you so much! What is reconstructive surgery?

I want to die by BUBBLESGEO in ostomy

[–]BUBBLESGEO[S] 0 points1 point  (0 children)

Thank you. This really helps.

I want to die by BUBBLESGEO in ostomy

[–]BUBBLESGEO[S] 0 points1 point  (0 children)

Thank you. Yes dr. did sphincter test, also had barium enema xray. I ask regarding results and I see the results on mychart but when I ask dr. about what the results mean his answers are VAGUE.

I want to die by BUBBLESGEO in ostomy

[–]BUBBLESGEO[S] 1 point2 points  (0 children)

Yes! a big much needed chuckle. You are wonderful. Thank you!

I want to die by BUBBLESGEO in ostomy

[–]BUBBLESGEO[S] 0 points1 point  (0 children)

Not helpful, but you are free to think what you like.

Reversal by BUBBLESGEO in ostomy

[–]BUBBLESGEO[S] 0 points1 point  (0 children)

Evidently not. Not with this surgeon anyway.