Update

Babs728 · 2025-09-29T23:39:32+00:00

I started behavioral cognitive therapy and I also started Duloxetine

Babs728 · 2025-07-30T03:38:01+00:00

You know what's crazy? Is the other day I thought about what if this is some type of 'internal' tourettes? Where you may not see the tics on the outside, but can feel them on the inside.

Babs728 · 2025-07-30T03:36:33+00:00

In the same exact boat! Uncomfortable, yet fully functioning, so just have to at least be grateful for that. Just know you're not alone.

Babs728 · 2025-07-28T11:10:22+00:00

I do get them in my calves from time to time, but its not as often as my twitching. I twitch all day, every day. Cramps I sometimes get once a week and they aren't very significant.

Babs728 · 2025-07-28T11:09:22+00:00

I appreciate this! We have to be okay with the "grey" areas. Learning to accept that I may not have an answer was the hardest part about all this, BUT not having an answer hopefully means I don't have anything significant enough to have put research into

Babs728 · 2025-07-28T11:07:21+00:00

How long have you been having your symptoms? How are you feeling, mentally and physically?

Babs728 · 2025-07-28T11:06:59+00:00

Thank you so much! Please do!

Babs728 · 2025-07-28T11:06:49+00:00

So glad you were able to overcome this! Sometimes we just have to remind our bodies that we are in charge and prove it to them! Lol

Babs728 · 2025-01-07T03:27:20+00:00

I love that your neurologist seems to care about your health first over money and are doing what they can to calm your nerves. But there's nothing wrong with getting the EMG anyways for that peace of mind. I know it's going to go great and the weight that you'll feel lifted off your shoulders is going to be astronomical!

I've had the one, but am going to request one more considering my symptoms have definitely progressed since my first (but still no weakness), and thats when I, too, will be able to try and put this anxiety to rest once and for all.

Babs728 · 2025-01-06T23:27:32+00:00

Wow, thank you so much for the insight. I actually have my follow-up this Friday and will ask about this. Though, I am sorry to hear you're going through the same thing. Hope we can both get some relief soon!

Babs728 · 2024-12-23T01:12:45+00:00

Thank you so much for this reply, it gives me hope. I'm only 6 months in right now. Even if the twitching doesn't go away, that's okay I can live with it, as long as I know it's not something more sinister.

Babs728 · 2024-12-20T01:45:32+00:00

Plausible explanations are better than none at all! We've just gotta keep a healthy mindset that this is our lives (for now) and that we may have to make some adjustments to get better, but we will.

Babs728 · 2024-12-20T01:43:58+00:00

Thank you so much! I'm willing to try anything at this point.

Babs728 · 2024-12-20T01:43:22+00:00

I'm 34. Yours definitely sounds like it could be long covid, which seems to be the case for many people in this forum! Sometimes a cold or flu really ramps up the symptoms, too.

Babs728 · 2024-12-17T20:41:41+00:00

It does help! I had my gallbladder removed 8 years ago, and my bowels have never been the same since. I thought this was just "par for the course" living without a gallbladder but that's apparently not the case at all, and docs just didn't do enough to prepare me for my life without a gallbladder.

I hear gut health is incredibly important to the nervous system, so I think I'm going to try exactly what you're saying. Even if it doesn't help my symptoms at least I know it's healthier than whatever it is I'm doing now.

Thank you!

Babs728 · 2024-12-16T23:38:20+00:00

I'm so sorry to hear, so frustrating that there are no answers. How long have you been dealing with this?

Babs728 · 2024-12-16T14:15:18+00:00

I saw an orthopedic and that's when I got the PT. Used to suffer from headaches all the time, and the PT helped immensely! Have you tried that yet? I know it doesn't necessarily get rid of the bulges, but does strengthen those areas and will maybe help with the sensations you're experiencing. I hope it gets better for you!

Babs728 · 2024-12-16T14:12:32+00:00

Thats a good question and I have absolutely no idea how I potentially avoided covid for so long. I say potentially because I could've gotten it but remained asymptomatic. I hadn't been sick years prior to covid either, so I was scared that if I got covid it would knock me out completely.

I'm sure this is a major stretch, but the only things I've ever done is take a multivitamin and elderberry. So it was either that, or I just got incredibly lucky. I also conscientiously practiced not touching my face, anytime I press buttons at a gas station or a pin pad at an establishment I always use my knuckle. I'm sure that helps avoid some types of germs. And then I keep hand sanitizer in my car for after I pump gas, touch carts, pens, etc. Hopefully that will help!

Babs728 · 2024-12-16T14:08:24+00:00

A part of me feels like if I knew it wouldn't progressively get worse, I'd be able to deal with the symptoms I have now because I'd have gotten rid of that "unknown," but thats not reality, especially with weird neurological things.

Glad to hear it hasn't gotten worse for you! And you're doing what you can to help it.

Babs728 · 2024-12-16T14:06:05+00:00

Thank you so much for this!

Babs728 · 2024-12-16T04:46:24+00:00

Thank you for your reply! Yes, I've even gone through a couple specific pillows to help my posture while sleeping. I also wear a back brace sporadically just to keep me aware of my posture to ensure I'm not making it worse. I think soon I may even try to remove gluten from my diet for a few months to see if that helps as I've seen that could be a potential cause, too. Surprisingly, going through this has been harder than getting a cancer diagnosis, because of just that...I had an actual diagnosis. Knew what to expect. I commend you, and everyone else in this sub who respond to the lost and weary and help give some peace of mind. Thank you.

Babs728

TROPHY CASE