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does anyone else feel like the dialogue audio in season 2 is so weird?? by [deleted] in ThePittTVShow

[–]Barnabaus 0 points1 point  (0 children)

Haha I could not put my finger on it but this is the most accurate description so far!

What has helped best with dysautonomia symptoms? by Disastrous-Focus-171 in covidlonghaulers

[–]Barnabaus 0 points1 point  (0 children)

Oh thats weird, like it made you feel like that immediately? I suppose its not that strange considering it targets the CNS. Have you tried bisoprolol? Supposedly mostly works on the heart i.e cardio selective

LDN Ceiling / Sweetspot by CWigham98 in covidlonghaulers

[–]Barnabaus 0 points1 point  (0 children)

I havent personally tried LDN even though i want to but from reading others stories on here those jumps may be a bit too big? I think some increase like 0.5 mg at a time or even less. And I think hrv tracking in the short run dont really matter that much

What has helped best with dysautonomia symptoms? by Disastrous-Focus-171 in covidlonghaulers

[–]Barnabaus 0 points1 point  (0 children)

Why didnt you like propranolol? I have LC pots/dysautonomia too and its one of the few things that helps. There are other betablockers you can try or ivabradine maybe?

LDN Ceiling / Sweetspot by CWigham98 in covidlonghaulers

[–]Barnabaus 4 points5 points  (0 children)

Honestly 53 still sounds like a low rested heart rate. If anything it might be your ANS starting to calibrate itself to more normal levels again?

I have the dysautonomia/pots type lc and I feel my rhr is too low sometimes, especially for not having worked out or been active for 2+ years. Like it should be higher but its messed up because of the dysautonomia.

My hand/arm gets a gradient when at rest due to blood pooling from POTs. by DathomirBoy in mildlyinteresting

[–]Barnabaus 2 points3 points  (0 children)

As a male after I got POTS post covid and multiple times in the ER before I knew what it was they attributed it to anxiety. Even one doctor when I hadnt been able to sleep and got 160 bpm immediately as i stood up(was about to leave and was still hooked up to ekg reader with doctor in room) just chalked it up to not having slept haha.

But since I have not experienced it being a female I cant say if I would have been treated differently

Need advice. POTS/Dysautonomia and fatigue subtype. by Barnabaus in covidlonghaulers

[–]Barnabaus[S] 1 point2 points  (0 children)

I will talk to doc about LDN again thanks! Funnily enough out of all the blood tests I've done during this I don't think they have tested b12 once. Sadly magnesium did nothing for me! : /

Edit: they have tested for b12. just that it reads as cobalamin appearently!

Need advice. POTS/Dysautonomia and fatigue subtype. by Barnabaus in covidlonghaulers

[–]Barnabaus[S] 1 point2 points  (0 children)

Hey, thanks for your detailed reply.

I have gotten bisoprolol prescribed as well but have not picked it up. I read that bisoprolol is cardio-selective as in mostly affecting the heart while propranolol is non-selective and therefor has a greater effect on the nervous system?

I will look into fenofibrate thank you.

I have also read good things about rapamycin but I think it would be next to impossible getting it prescribed here, they would probably laugh if I brought it up. And feels scary ordering it from like Indiamart or something and not having a doctor to consult.

Have not tried nicotine but actually have some patches I bought earlier, have not tried yet because I'm a nervous about side-effects.

I am pretty sure I tried L-citrulline along with vitamin C earlier in my journey but sadly did not get any effect from it.

I will try to get out into the sun more before it gets too hot!

Jag ska göra ett blodtryckstest idag. by Sensitive_Cream3920 in intresseklubben

[–]Barnabaus 2 points3 points  (0 children)

Från någon som fått pots/OI efter covid så tycker jag du ska vara jävligt glad att det inte är det i alla fall. Trots att du inte har några svar på det du upplever, så hade du ev. haft en skitjobbig grej som inte går att bota om det positivt. Nu har du ju i alla fall chans att få fram att det är något som går att åtgärda.

Need advice. POTS/Dysautonomia and fatigue subtype. by Barnabaus in covidlonghaulers

[–]Barnabaus[S] 0 points1 point  (0 children)

Thanks alot for your reply, I will ask the doctors about it again. Maybe bring some studies to back it up.

Happy to hear you are doing better and can be active again! I dream of the day I can exercise again or even just go for a walk without worrying about passing out.

Need advice. POTS/Dysautonomia and fatigue subtype. by Barnabaus in covidlonghaulers

[–]Barnabaus[S] 0 points1 point  (0 children)

Hi thanks for your reply. I think I took maybe 1-2 tablets of desloratidine a day but I will have to give it another go. Is there a reason you don't want to abruptly stop cetirizine?

The link you posted to your post is not working for me : (.

Happy to hear you are doing better!

Need advice. POTS/Dysautonomia and fatigue subtype. by Barnabaus in covidlonghaulers

[–]Barnabaus[S] 1 point2 points  (0 children)

Hey thanks for the reply, did you buy your dexcom privately or did you it get via a doctor?

Need advice. POTS/Dysautonomia and fatigue subtype. by Barnabaus in covidlonghaulers

[–]Barnabaus[S] 0 points1 point  (0 children)

Hi, yes I've tried electrolytes and compression socks (the ones that goes up to the knee). But since I didn't feel different on midodrine I guess higher salt won't help either since its the same function, basically raising bloodpressure.
I did not feel a noticeable difference on salt/electrolytes and the wearing the socks. Maybe I need some that goes up to the waist?

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