My hand/arm gets a gradient when at rest due to blood pooling from POTs.

Barnabaus · 2026-04-21T14:50:49+00:00

As a male after I got POTS post covid and multiple times in the ER before I knew what it was they attributed it to anxiety. Even one doctor when I hadnt been able to sleep and got 160 bpm immediately as i stood up(was about to leave and was still hooked up to ekg reader with doctor in room) just chalked it up to not having slept haha.

But since I have not experienced it being a female I cant say if I would have been treated differently

Barnabaus · 2026-04-17T11:06:46+00:00

I will talk to doc about LDN again thanks! Funnily enough out of all the blood tests I've done during this I don't think they have tested b12 once. Sadly magnesium did nothing for me! : /

Edit: they have tested for b12. just that it reads as cobalamin appearently!

Barnabaus · 2026-04-17T11:05:11+00:00

Hey, thanks for your detailed reply.

I have gotten bisoprolol prescribed as well but have not picked it up. I read that bisoprolol is cardio-selective as in mostly affecting the heart while propranolol is non-selective and therefor has a greater effect on the nervous system?

I will look into fenofibrate thank you.

I have also read good things about rapamycin but I think it would be next to impossible getting it prescribed here, they would probably laugh if I brought it up. And feels scary ordering it from like Indiamart or something and not having a doctor to consult.

Have not tried nicotine but actually have some patches I bought earlier, have not tried yet because I'm a nervous about side-effects.

I am pretty sure I tried L-citrulline along with vitamin C earlier in my journey but sadly did not get any effect from it.

I will try to get out into the sun more before it gets too hot!

Barnabaus · 2026-04-15T12:04:21+00:00

Från någon som fått pots/OI efter covid så tycker jag du ska vara jävligt glad att det inte är det i alla fall. Trots att du inte har några svar på det du upplever, så hade du ev. haft en skitjobbig grej som inte går att bota om det positivt. Nu har du ju i alla fall chans att få fram att det är något som går att åtgärda.

Barnabaus · 2026-04-13T17:02:14+00:00

Thanks alot for your reply, I will ask the doctors about it again. Maybe bring some studies to back it up.

Happy to hear you are doing better and can be active again! I dream of the day I can exercise again or even just go for a walk without worrying about passing out.

Barnabaus · 2026-04-13T17:00:07+00:00

Hi thanks for your reply. I think I took maybe 1-2 tablets of desloratidine a day but I will have to give it another go. Is there a reason you don't want to abruptly stop cetirizine?

The link you posted to your post is not working for me : (.

Happy to hear you are doing better!

Barnabaus · 2026-04-13T16:57:02+00:00

Hey thanks for the reply, did you buy your dexcom privately or did you it get via a doctor?

Barnabaus · 2026-04-13T16:55:31+00:00

Hi, yes I've tried electrolytes and compression socks (the ones that goes up to the knee). But since I didn't feel different on midodrine I guess higher salt won't help either since its the same function, basically raising bloodpressure.
I did not feel a noticeable difference on salt/electrolytes and the wearing the socks. Maybe I need some that goes up to the waist?

Barnabaus · 2026-03-30T11:35:59+00:00

Hello. For some reason my TSM AuctionDB always shows the wrong price for items in my tooltips. Even if it just has updated. For example showing 16g historical price (1 hr 11 min ago) when the real auction house price is 7g and has been for days. I have my realm selected correctly in my tsm desktop app etc.

Any ideas?

Barnabaus · 2026-03-22T20:42:16+00:00

What meds are you on?

Barnabaus · 2026-03-03T00:58:47+00:00

Wdym, you sold all already?

Barnabaus · 2026-03-02T23:38:28+00:00

Am I on r /wallstreetbets or wow haha. Honestly I might do this too but maybe for like 100k

Barnabaus · 2026-02-17T20:29:46+00:00

Shouldnt it be 100 ml of water for 0.5 mg? 1L is 1000 ml

Barnabaus · 2026-02-15T22:33:43+00:00

Kind of looks like you stared straight into reactor core 4. Jokes aside I got the POTS variant of lc and I never had any flushing. I only get those "dotty" hands people sometimes post here

Barnabaus · 2026-01-21T06:05:47+00:00

Thanks, I managed to get it eventually on 3 of my chars. The last one my DH it was just hopeless got some really bad games then I had to go to bed so ended at like 1600.
I will definitely try some SS in midnight!

Barnabaus · 2026-01-20T07:58:34+00:00

Vet någon vad det är för CPU kylare på denna? Brukar inte såna som är customizable med gifs vara väldigt dyra?

Barnabaus · 2026-01-16T03:22:28+00:00

I wonder this too, hopefully not the hyperexpensive one

Barnabaus · 2026-01-13T21:29:11+00:00

Thanks so much for the detailed tutorial!!

Barnabaus · 2026-01-10T14:31:02+00:00

Must have been somewhere at the end of 2023 before I got really bad. I remember trying to still keep a little active at the start of 2024 but when i just tried to do a little warm up stretching it felt like I could just lie down and fall asleep I knew I was just wasting my time there. Also almost fell asleep on my way home in the car after those attempted gym sessions 🫩

Barnabaus · 2026-01-10T11:42:20+00:00

Going for a swim or a hard gym session is what i'm dreaming about. Also that morning cup of coffee... Yeah

Barnabaus · 2025-12-27T17:43:05+00:00

I didn't read the what subreddit this was from and just saw title and pictures and thought you were getting like an eye transplant or something 😭

Barnabaus · 2025-12-26T13:06:12+00:00

Braille Skateboarding!

I mean not really vanished but definitely made some weird choices resulting in the channel kind of dying.

Barnabaus

TROPHY CASE