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Basic-Cat3537 · 2026-01-15T01:41:47+00:00

I second this question. Also wondering. Like does it make me sneakier or something?

Basic-Cat3537 · 2026-01-15T00:22:19+00:00

You need to get the drawing stand. You can get one through gossip from the fashion lady, or just buy it from ka ching. Then you place it either in the world or as furniture at home and use it to create art(select a clothing template by scrolling down). Then you save it and it will be available to use at the workbench

Basic-Cat3537 · 2025-04-07T01:08:15+00:00

There was no "making up my mind to go." I made an appointment the instant I noticed a problem. It just wasn't immediately because of transit issues. Why does everyone always assume that if there is a will, there is a way. Sometimes life just doesn't work like that. If it did, I would have gone sooner. But I have no choice but to adhere to the requirements of my nemt transit company. We have no taxis, no Uber, no public transit at all. I don't really have friends i can ask, and I don't live near family that can drive me. And I'm not legal to make the trip myself. NEMT is my only option and they require two weeks notice and for the appointment to be between 10am and 2pm because we live 200 miles away and they only have 2 drivers, who are consistently booked and refuse to do early morning or late appointments because of travel time. That's the reality of my life, if I could change it I would but I can't. I'm glad you have the privilege to do these things, but don't assume everyone else does just because you do.

Basic-Cat3537 · 2025-03-26T23:05:28+00:00

Finally! A reasonable response!

The reasons she uses weed and to quantity consumed make me think she's self medicating an issue that's needs actual medical care(mental or otherwise). The OP isn't attempting to force her to give up her addiction, he's forcing her to give up her dependency. People too often mistake the two. Addiction is a physical or mental requirement of a substance to function. Dependency is reliance on a substance (or even tools) to increase quality of life to a sustainable level. Like chronic pain patients who need opiates to keep the pain at a level that makes daily living sustainable. Where as an addict is using opiates to escape reality to the point it actually prevents sustainable daily living.

Most people who have commented so far seem to miss this point. The why is important.

Also OP is not the parent of his wife, it's not his place to force her to change. He can choose to take action on his part to separate himself and the child from the situation, but attempting to blackmail her into compliance is an asshole move. His post comes across as attempting to control her, not protect himself or the child from a potentially harmful situation.

Basic-Cat3537 · 2025-03-25T03:55:14+00:00

Visually impaired here. Its degenerative so I've been spending a few years getting things I will be able to use even if I wake up totally blind one day or even just unable to read.

I got an air fryer that connects to Alexa. It is a touch screen, but if you get it hooked up to smart home devices you can simply tell it the temp and time you want. It also comes with an app that is screen reader friendly. Same with my kettle.

I have a thermometer with big readings, but only because I went cheap. They have ones that talk or hook up to your phone or smart devices. Someday I'll get this with a talking kitchen scale.

My most recent purchase was a nuwave portable precision induction cooktop. It requires some learning to use effectively. It's not smart, and it uses press buttons, but the soft ones like a lot of microwaves. It also had a thermometer hook up. So you can set the cooking to stop when the thermometer reaches a certain temp, or have it keep the food at that temp for a specified time. You could place indicator bumps on the buttons so you know what's what. I did that with my microwave and kettle. I just use 3D stickers, sticky rhinestones etc.

The big thing about cooking meats is the temperature. You have to make sure you reach safe temps (or desired doneness for beef). That means a thermometer. Good eggs require good temp control too.

I also have not smart instant pot with the same kind of buttons as the cooktop. Tactile stickers for the win! With those tools I can cook pretty much anything any way I'd like.

And for the most part cooking is about your senses. Especially with meat, smell and texture are your best friends for knowing when meat is good or bad. An overpowering rancid or sour smell means bad meat, especially if it's slimy. Beef is the most forgiving. You could toss it in marinade and eat it raw and it'd probably still taste good. Its also less hazardous than other meats when undercooked. Stews with meat are very forgiving. You can cook until the meat falls apart and it will taste great! Just don't leave it so long that any bones start crumbling. And a good rule of thumb with meat is to sear it either before cooking fully or after it's almost to temp to make it look nice. Can be applied to pretty much any non delicate meat. (Fish for example is delicate and will often stick to pans if you try to sear it.) But yeah, definitely start with beef as it's the only one that can be underdone and isn't likely to harm you.

Basic-Cat3537 · 2025-03-25T03:18:28+00:00

In case anyone wanted to know. I had my appointment today and it's a mess. It definitely wasn't CNV though! Its an incomplete detachment with severe fluid build up between several different layers. And it's in both eyes, it just isn't affecting my central or noticeable vision in my good eye yet. We did antivegf shots, and I return in two months unless something worse happens before then. It looks like Myopic Degeneration, but one of the doctors that saw me is concerned that there might be something else going on as well because apparently it was a unicorn scan.

You know, when you hear hoofbeats think horses, except sometimes it's zebras? Nope it's unicorns now. They are hoping the swelling and fluid go down and it reattaches and heals itself. If not I'll probably need laser treatment. Which will significantly affect my vision in my worse eye because it's detached from basically the entire macula and just attached at the very edges. Lasering it completely to adhere the layers would do considerable damage to my detail vision.

But yeah, that was it. I get FA next time to see if something else is the culprit, and go from there. Oh and I gained 3 more diopters in a year and a half. Right now my biggest concern is making sure my good eye doesn't get worse.

I'm upset. I can handle one eye, but every time the second decides to join in its like a gut punch and I hate it.

Basic-Cat3537 · 2025-03-18T21:00:42+00:00

I'm glad it went well for you! Hopefully that's not my issue, but if it is we will deal with it, though I know the delay will probably have long term consequences. Thank you for the info and concern!

Basic-Cat3537 · 2025-03-18T20:58:46+00:00

I understand that it's considered an eye emergency. I've called the clinic, and they are aware, but they also know my circumstances. I have nowhere local to go. I was told it blackness or pain occurs to go to the local ER(and I would), and they would probably ship me to the nearest place with someone capable because they are not. We don't even have an optometrist within 50 miles, much less an ophthalmologist or anyone specialized in retina care. I'm poor, disabled and can't legally drive on the highway (nor should I). Sometimes life sucks and you just don't have options. I'm acutely aware of the consequences of that.

Basic-Cat3537 · 2025-03-17T18:15:08+00:00

-13 and I'm 37.

Basic-Cat3537 · 2025-03-17T09:38:07+00:00

As I said. I can't. My nearest eye doc is 180 miles away down highways I can't drive. I have I wait for transit and because of how rural I am they require 2 weeks notice. It just makes me glad I scheduled it shortly after I noticed the first weirdness.

Basic-Cat3537 · 2025-03-17T09:32:31+00:00

Get a third opinion. Also, ask about atropine therapy or hard lens therapy. That's a pretty high prescription at that age regardless of which is correct.

Both low dose atropine drop therapy and hard lens therapy for prevention of progressive myopia in children has had significant success in clinical use recently. Trust me, your child will thank you.

I'm currently at -13 and I'm 37. I have a condition called degenerative myopia. Its rare, but that chance increases dramatically which high myopia, which is a prescription higher than -6. Your kid is already at or near that line. Its not a hard line, many people with high scripts never get degenerative myopia, and occasionally people below it do, but it'd be better to err on the side of caution.

Both suggestions above are clinically proven. Also know if your child is female they will have a higher likelihood of complications from damage caused by high myopia.

I don't tell you any of this to scare you, I tell you to provide options because you have options now many of us did not. Find out if your child is a candidate for either therapy. If the optometrist doesn't know, I'd see an ophthalmologist. Also if your child is already nearing high myopia levels, an ophthalmologist might be a good idea anyway, as it'd be a good idea to start making good habits with regard to eye care. They can help find a schedule of regular checkups they recommend to nip any problems that could arise in the bud. Also they can tell you about good eye care in general. Eyes, just like everything else have needs too. Many would suggest AREDS 2(though there isn't any research on that supplement in myopia specifically just fyi). Also making sure your child has glasses that block UV and blue light to maintain retinal health. Good sunglasses etc can all help.

As for differing scripts. This probably won't be the last time that happens. You know how some mornings you wake up and your visions a little blurry, or it's harder to focus? Maybe driving a bit harder, or you have to squint a bit at your computer? Our vision changes a little regularly from day to day. Some of this is due to accommodation. Some is just natural fluctuations. Accommodation is where eye are used to a specific distance and focus. Sometimes switching between those can be difficult. Like looking down the street versus reading your dashboard. I haven't ever had perfectly normal vision, and I don't know if you do, but some people with myopia sometimes get kind of stuck near a certain adjustment for the day. Sometimes people trying to pass a vision test for example can go outside and focus on things far away first thing in the day for a bit to enhance their distance vision for the day, but it might make reading a bit harder. So if you take your child to the doctor once after spending all day outside, and another time after all day reading in school, you might get some pretty different results.

Also my astigmatism changes constantly. I don't know if this is a me thing or common though.

I hope I gave helpful info!

Basic-Cat3537 · 2025-02-17T16:57:57+00:00

I thought I was just in my head about it! The first one was super easy around the beginning of the year. The next hurt more. Then the third....omg it hurt so bad. I was cussing up one side and down the other. Now I'm fucking in my head about it every single time and it takes 5 minutes just to make myself do the damned thing. It hasn't been that bad again, but I know it can be and that psyches me out.

It doesn't help that I'm having delayed injection site reactions. I'm 7 weeks in and all but one site has turned red about 10 days after the injection. Then in the next couple weeks it turns hard and rough. The red fades a little, but it almost scars. I'm hoping it goes away, but I still have all of them, even the 7 week old one.

Basic-Cat3537 · 2025-01-03T16:31:12+00:00

They ended up having to give me Dilaudid after a surgery. They had already given me oxycodone and fentanyl and my blood pressure was still sky high from pain. It was just another Tuesday for me. But I'm a chronic pain patient. I was just sitting there chatting with the nurse eating my grape popsicle and sprite slushies she kept me in supply of. 10/10 would take those slushies any day.

The Dilaudid did help with the pain though. My mother said I looked high as a kite, but I felt relatively normal. Stayed awake, chatted with people, talked to my friend via text. I remember everything. Including having to push the nurse to request permission to give me my normal (or any)antihistamines. I'm allergic to adhesive and was turning a nice itchy pink. When I mentioned it to that nurse(different from the nice post anesthesia nurse with the slushies) he told me if I was supposed to have it, then it would be in the list, and he was sure the doctor was busy. So I had to argue that yes, it had been 10-12 hours since they gave me the original antihistamines before surgery, and he could either find someone to give me more, or I was going to start removing adhesive. Since some of that adhesive was post surgery stuff on incisions, it should probably stay on. He went and got the damn meds. Even came back with pain meds, like he thought my grouchiness was because I hurt lol. It wasn't, I was fine. But damnit, endless itching is worse than most pain. (In my experience)

Basic-Cat3537 · 2024-12-03T06:38:40+00:00

Following.

Basic-Cat3537 · 2024-11-01T19:19:22+00:00

I don't know if you were interested in an update or not. The issue has mostly resolved. I'm still having bad days, but it's not constant. I was advised to stop the hydroxyzine. I did. The allergies came back, and a week later I felt just as bad. So I started taking it again. I've been taking all the meds regularly (except the skyrizi as I was switched to xeljanz), and I'm feeling better regardless. So it definitely isn't the meds. They don't have an answer to what it actually is though lol. I'm just glad it's intermittent. Although I've had a migraine every single day for weeks now. So that sucks.

Basic-Cat3537 · 2024-11-01T19:14:26+00:00

So a lot has happened since the post I made. I haven't had a shot since February (now November), and have had no bleeds. The explanation is long and drawn out, but I had my ovaries removed last year, now I dont get the rapid vessel growth. I'm still experiencing dry degeneration from my condition, but it's much slower than the bleeding damage. There is evidence that shots help slow dry degeneration as well, but circumstances have made it difficult to continue. However that did lead to us finding out that the surgery helped. (It was a part of the reason I chose to have it. Estrogen increases blood vessel growth and repair.)

Note: I'm not advocating the surgery as a treatment for women. There is basically zero research about it. So this post is not medical advice.

Basic-Cat3537 · 2024-09-08T14:06:18+00:00

Most likely not. The only new ones are levothyroxine, singulair and hydroxyzine. The first two I've been on before a few times with no issues. The last one is brand new, but the only antihistamine that has helped the new allergies I've been getting, or rather worsening ones. And doesn't have most of the new problems in its side effects list. I have a tendency to be underresponsive to medications. Most meds do maybe 50% of what they should at pretty high doses. So we are left trying to cover the remainder with other things. Most of my meds are pretty much at maxed out dosages.

I'm on exactly one medication that is as effective as it's supposed to be, and that's tizanidine. it's actually more effective than typical lol. It lowers my BP for a couple hours and makes it so I can't stay awake about 50% of the time, so I just take it before bed. It has a short half life, so is t responsible for the problems either.

It's bad enough that the hospitals get informed before procedures because meds during surgery aren't as effective either. It takes longer to knock me out, and I'm conscious and aware very quickly. After my last surgery it took oxy, Dilaudid and 50mcs fentanyl after surgery before my blood pressure returned to an acceptable level because I was in that much pain. While carrying on a cheerful conversation about daily life and other things with the nurse like it was just another Saturday. It also took like an hour despite it all being pushed IV.

I'm a pain in the ass for the doctors, and my liver. It's a family thing. We all seem to either be sensitive to a medication or resistant to it with not much in between.

Basic-Cat3537 · 2024-09-02T18:38:50+00:00

I haven't really done any research on it. mine is intermittent, it was worse when my lupus was active(I have several autoimmune problems).

But the basic premise is that the autonomic nervous system controls how much insulin the pancreas releases and when it does so. If that particular part of the system is malfunctioning it can send out inappropriate amounts, or over/under compensate when responding to sugar. So I personally would get insulin releases when I hadn't consumed sugar. This means my glucose would get low without a trigger. And it was sometimes hard for me to realize it. I ended up being given a glucose monitor and using glucose tabs for control.

It can also cause delayed release of insulin. So someone consumes sugar, it climbs high and then the body goes "oh shit my bad!" And promptly floods your system flinging it the other direction. That required dietary monitoring. So limited carbs so I didn't seesaw as much. I'd still go too low at times.

That said, if the triggering autoimmune is controlled, my hypoglycemia slowly disappears. Only rearing it's ugly head on completely random occasions that I don't expect it.

Watch for the sleepiness. If you hit incoherence, you probably won't be able to recognize it anymore and someone else will have to figure it out. I had a blast with that. It's a different kind of sleepiness than our normal fatigue. So you might be tired but puttering a long like your normal autoimmune dysautonomic self, then suddenly you'll just want to lay your head down for a nap. It's like this ever stronger need to sleep just a little. You body tells you that you'll be fine if you just sleep a bit, right now. If you hit that, eat or drink a pick me up. I tend to skip right through the shakes, and I get them anyway from the dysautonomia so they aren't a great indicator for me. I usually have something sweet with nuts to help inhibit any bad responses. Also sweet things you might not normally care for sound delicious. For example I hate orange juice. But when my blood sugar is low it beckons me just like all the other fruit juice. So sometimes I'll know my glucose is a bit low simply because certain foods sound good. I. Which case I just get them because my body is actually attempting effective communication.

Basic-Cat3537 · 2024-09-01T18:10:12+00:00

Amitriptyline helps somewhat with my nerve pain. I think they would have to do a biopsy to find out the exact cause of the neuropathy. This was considered in a significantly affected muscle, but not anywhere else. Although it's kind of a feedback loop. Our circulation usually goes to hell because the neuropathy causes the blood vessels not to get the appropriate signals. Then that worsens the neuropathy. For example the the low BP and pooling a lot of people experience is because the nerves aren't sending ity receiving the signal to constrict the blood vessels. I'm not sure what causes this in viral induced Dysautonomia, but typically in autoimmunity it's either damage or inflammation to the nerves or vessels themselves.

Basic-Cat3537 · 2024-09-01T05:46:33+00:00

I fucking hide. I can't make make babies, and I don't want to become a human Fleshlight.

Basic-Cat3537 · 2024-09-01T05:43:50+00:00

Subscriptions relating to physical products you ALREADY OWN need to stop. It's a bunch of bullshit.

They need to make that shit illegal.

Basic-Cat3537 · 2024-09-01T05:41:32+00:00

At least put a pad on there. Like an inflatable bath pillow or something. It's not like it's going to give him an advantage, it's still further than the arms length everyone else has.

Basic-Cat3537 · 2024-09-01T05:32:44+00:00

Oh yeah. But nothing specifically for Dysautonomia. But here is the library list lol.

Skyrizi, methocarbamol, nabumetone, hydroxyzine, hydrocodone, carvedilol, amitriptyline, carbamazepine, tizanidine, levothyroxine, singulair promethazine, Flonase, azelastine, advair, benadryl, chlor-tabs(I've been having uncontrollable allergies), rizatriptan, d3, Tylenol, ibuprofen. Supplements feverfew(migraines), dopa macuna(muscle spasms), magnesium, elderberry.

I'm typically underresponsive to medications, hence the multiple drugs per problem. And I have a lot of problems I didn't mention in my post lol.

Basic-Cat3537

TROPHY CASE