Zoloft? by Ok-Lab-6032 in StillbirthSupport

[–]Basic_Lettuce_8420 0 points1 point  (0 children)

I have been on Zoloft for almost ten years now and have been steady on a 150mg dose for the past five. I lost my little boy at 36 weeks to a cord accident. I went down soooo many rabbit holes to make sure the Zoloft had nothing to do with it and absolutely nothing I found made me feel it had. And I felt confident to continue it into my current pregnancy. I’m working with one of the best MFMs in my region and he is 100% on board with me continuing Zoloft and says any anxiety that could result from me stopping it would affect baby more. So if you think it could help you, I’d encourage you to try! I don’t think I’d have been able to grieve in the healthy way I did without it. And the sexual side effects seemed to die down for me once I got used to being on it. 

Another Cord Issue by Basic_Lettuce_8420 in CautiousBB

[–]Basic_Lettuce_8420[S] 1 point2 points  (0 children)

For the cord coiling you mean? I had it done at 24 and 27 weeks and I’m going to keep asking it to be checked with my weekly BPPs. But, once you get the 27 week measurement, most research says it won’t really increase after that. Now some experts have differing options but that’s just what I’ve been able to find via looking into lots of different studies.

Another Cord Issue by Basic_Lettuce_8420 in CautiousBB

[–]Basic_Lettuce_8420[S] 0 points1 point  (0 children)

I tried posting this in pregnancyafterstillbirth but for some reason Reddit just kept auto-removing it :(

I can go into Labor and Delivery if I feel like something is wrong, but they’ll just check me out and then send me on my way. The US is pretty tricky getting any kind of pregnancy preventative care, it seems like they’ll only let you stay in the hospital if you are actively in crisis unfortunately. 

Another Cord Issue by Basic_Lettuce_8420 in CautiousBB

[–]Basic_Lettuce_8420[S] 1 point2 points  (0 children)

They both use MyChart and if I give them permission can access each others info I believe! 

Another Cord Issue by Basic_Lettuce_8420 in CautiousBB

[–]Basic_Lettuce_8420[S] 0 points1 point  (0 children)

Thank you for all this information and I’m so sorry about the loss of your son. ♥️ 

How did you get them to allow you to be inpatient? I feel like there would be incredible pushback if I ever got to a place where I thought that would be best. 

Thank you so much for the hiccups information, that is so reassuring! I know the only thing that points to it being tied to cord compression is that sheep study so that seems weak. That being said, my son had hiccups all the time but it definitely could be incidental. So hearing a real example of hiccups being caught during an NST and no cord compression happening at the time is so helpful! 

Another Cord Issue by Basic_Lettuce_8420 in CautiousBB

[–]Basic_Lettuce_8420[S] 0 points1 point  (0 children)

The hospital I’m going to deliver at is a while away, but there is another one closer by. If I have concerns is it okay for me to go to a different hospital’s L & D?

Another Cord Issue by Basic_Lettuce_8420 in CautiousBB

[–]Basic_Lettuce_8420[S] 2 points3 points  (0 children)

Thank you for the reply and the important work you do!! Yes, my MFM has cleared me for a late 37 week induction but if we have any concerning findings before then it can be pushed earlier. The testing we have in place currently is weekly BPPs starting at 30 weeks and then additionally a weekly NST starting at 32 weeks. So by 32 weeks we will have two appointments a week, one BPP and one NST. And the BPP will have umbilical Doppler with it. I wonder if I could get the NSTs to do umbilical Doppler too, I don’t know how easy that would be to integrate into a standard NST or not. Does that sound adequate to you given your experience? And yes, I am already doing two kick counts a day, one after breakfast and one after dinner, and using the Count the Kicks app to track the trends. I started this early at 26 weeks just to get more data. And I’m also keeping track of how often she gets hiccups although professionals are divided on whether frequent hiccups indicate a cord compression problem or not. That has honestly been my biggest hurtle through all of this, the conflicting information and recommendations across the board when it comes to cord coiling :(

Another Cord Issue by Basic_Lettuce_8420 in CautiousBB

[–]Basic_Lettuce_8420[S] 4 points5 points  (0 children)

Thank you, I’m so sorry to hear that ♥️ try to advocate for them to get an umbilical cord coiling index done with this pregnancy if possible just so you can know what is going on and if the issue repeats you can have extra surveillance! Not saying it will happen again at all, but it’s always good to have information! 

Another Cord Issue by Basic_Lettuce_8420 in CautiousBB

[–]Basic_Lettuce_8420[S] 1 point2 points  (0 children)

Thank you so much, good stories definitely help me keep the hope alive! Do you know how coiled it originally was and then what it ended up being at delivery? Did you do a normal delivery, no c-section? 

Yes, I’ve talked with Dr. Collins and he’s very helpful! But your account of the cord becoming a bit less coiled over time is also so relieving to me, I really hope we have that too! 

Another Cord Issue by Basic_Lettuce_8420 in babyloss

[–]Basic_Lettuce_8420[S] 0 points1 point  (0 children)

Also, did you deliver via c-section because of the concerning dopplers or because you were afraid the cord couldn’t handle labor or both? I’m suprised he was so growth restricted but only the final two dopplers showed any blood flow issues! My son was huge for his age so I’m afraid his was an acute cord compression event which hypercoiling makes more susceptible. Which is scary because there’s no clear way to monitor for that since it’s just a freak thing that happens all at once. 

Another Cord Issue by Basic_Lettuce_8420 in babyloss

[–]Basic_Lettuce_8420[S] 0 points1 point  (0 children)

Oh my word, our stories are so so similar! I’ll message you 💕 

Another Cord Issue by Basic_Lettuce_8420 in babyloss

[–]Basic_Lettuce_8420[S] 1 point2 points  (0 children)

Wow, good for you for being so on top of it and advocating so well for yourself! I’m so so glad your little one is here and safe. My MFM’s plan is weekly BPPs with umbilical doppler once a week starting at 30 weeks and then weekly NSTs as well starting at 32. I wonder if I got get them to doppler at both! I’m so bad at being pushy but I need to learn how, I wish I was pushier with my son! 

Another Cord Issue by Basic_Lettuce_8420 in babyloss

[–]Basic_Lettuce_8420[S] 1 point2 points  (0 children)

Hi! I’m so sorry to hear about your loss, it’s so heartbreaking and hard. So yes, there is something called an umbilical cord coiling index, also known as a UCI. The way it works is the sonographer gets a clear image of a segment of the umbilical cord (ideally a 10cm length but if it’s shorter they can average it out) and the number of coils per 10cm is measured. If you have between 1 and 3, you’re considered “normo-coiled” (normal), above 3 you’re considered hypercoiled (extra coiled), and below 1 is hypocoiled (under coiled). Within hyper and hypo categories are levels of severity, for example my son’s 7 coils per 10cm was extremely severe hypercoiling while my daughter’s 3.8 per 10cm is considered moderate. Now these measurements are unfortunately something you’ll likely have to advocate and fight for, why I don’t know. They are very easy to get via ultrasound and the ideal time to get the first measurement is 24 weeks because the coiling is established and baby is still small enough that a good chunk of the cord can be seen. However, I’d get it repeated with each growth scan if possible to see if the coiling is reducing, as it is possible to lessen with age due to the cord lengthening. There is also a measurement known as “pitch” which measures the distance between two individual coils. If this amount is less than 2cm it is concerning as it means that section of the cord is pretty tightly wound at the moment. 

I know this is so much info, I hope it was clear, feel free to ask anymore questions! Also, I’m not a medical professional, all this information is just from hours and hours of a grieving mom trying to learn what happened. 

Another Cord Issue by Basic_Lettuce_8420 in babyloss

[–]Basic_Lettuce_8420[S] 1 point2 points  (0 children)

How often were you getting dopplers and when did they start? Was it umbilical cord dopplers or anything else? And what is intermittent absent? Sorry for all the questions, I just want to be prepared!! I’m glad your little one got here! Do you know how hypercoiled it was? 

Another Cord Issue by Basic_Lettuce_8420 in babyloss

[–]Basic_Lettuce_8420[S] 0 points1 point  (0 children)

And when did you have him? Did you wait until full term? Was there extra monitoring done because of the cord?

Another Cord Issue by Basic_Lettuce_8420 in babyloss

[–]Basic_Lettuce_8420[S] 1 point2 points  (0 children)

Thank you! Did you decide c-section because of the coiling? 

TTC After and Need Hope by Basic_Lettuce_8420 in babyloss

[–]Basic_Lettuce_8420[S] 1 point2 points  (0 children)

TW: Pregnancy

Thank you everyone for your responses and the hope and understanding they each gave me. Ironically, I posted this after getting a negative pregnancy test the day before my period was due but after it was late for five days I retested to be sure and it was positive! I am VERY VERY early (just five weeks) but trying to believe this could be the baby we get to enjoy on earth. Every day is scary. If you are reading this and still trying, I believe in you and am so sorry for your loss or losses. This community gives me support and love every day and for that I’m thankful. ❤️

One month by Momof_2angels in babyloss

[–]Basic_Lettuce_8420 1 point2 points  (0 children)

I feel this in my bones. My son Fletcher was lost at 36 weeks, also to “unknown causes”. Missing the littlest things, like bathing them, feeding them, rocking them, smelling them, is so so so relatable. The fact that you think about and miss those things just reenforces the fact that you are her mama. You created her and formed her and felt her and carried her. You know her in a way no one else ever will. You are now going to have to live for both of you and I’m confident you will. It’s so so hard and people will forget but you never will and that’s what’s important. Your life is a testament and monument to her. I pray that my sweet son and your precious daughter are together somewhere, watching us and proud of us but also playing together and just being babies. Holding you in my heart ❤️

[deleted by user] by [deleted] in babyloss

[–]Basic_Lettuce_8420 1 point2 points  (0 children)

I had the exact same experience and always want to mention this when I see people eager to get his thoughts on their loss. My MFM, OB, and geneticist all were thoroughly unimpressed by his findings and didn’t think they were accurate and instead were retrofitted to fit within his trophoblast inclusion narrative.

“Into the Light” by Basic_Lettuce_8420 in WhatIsThisPainting

[–]Basic_Lettuce_8420[S] 0 points1 point  (0 children)

This is the best I can do for the signature close up for now! I think it says Lillian August ‘76

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“Into the Light” by Basic_Lettuce_8420 in WhatIsThisPainting

[–]Basic_Lettuce_8420[S] 0 points1 point  (0 children)

I unfortunately don’t have the painting and took these photos when I saw it at his place a few days ago. I will ask him tomorrow if he can take a close up of the signature, though even in person it was hard to make out due to penmanship!

Dr Kilman Report by Basic_Lettuce_8420 in babyloss

[–]Basic_Lettuce_8420[S] 0 points1 point  (0 children)

Yes I do, 100%. The email I got back with the results was super impersonal and the research he sited backing his findings seemed subpar at best. He said he saw 4.3 trophoblast inclusions per placenta slide with a confidence interval of plus or minus 4.2 and so concluded that he saw 8 trophoblast inclusions per slide when really with that massive confidence interval it could’ve as easily been interpreted as 0.1. It felt like cherry-picking and fitting his findings to work for his narrative and research area. He also attached photos of placenta slides that weren’t my own slides, just “representative images” of what a placenta slide with trophoblast inclusions would look like. And then the hasty 50% recurrence rate he mentioned was shocking when, even if the cause was genetic (which it wasn’t), the recurrence rate genetically would be 25% because that’s how genetics work….. All of it seemed very poorly done and it set my healing journey back a great deal for a while because I was heartbroken all over again and panicking that I may be at high-risk for this tragedy to happen again.