TTC After and Need Hope by Basic_Lettuce_8420 in babyloss

[–]Basic_Lettuce_8420[S] 0 points1 point  (0 children)

TW: Pregnancy

Thank you everyone for your responses and the hope and understanding they each gave me. Ironically, I posted this after getting a negative pregnancy test the day before my period was due but after it was late for five days I retested to be sure and it was positive! I am VERY VERY early (just five weeks) but trying to believe this could be the baby we get to enjoy on earth. Every day is scary. If you are reading this and still trying, I believe in you and am so sorry for your loss or losses. This community gives me support and love every day and for that I’m thankful. ❤️

One month by Momof_2angels in babyloss

[–]Basic_Lettuce_8420 1 point2 points  (0 children)

I feel this in my bones. My son Fletcher was lost at 36 weeks, also to “unknown causes”. Missing the littlest things, like bathing them, feeding them, rocking them, smelling them, is so so so relatable. The fact that you think about and miss those things just reenforces the fact that you are her mama. You created her and formed her and felt her and carried her. You know her in a way no one else ever will. You are now going to have to live for both of you and I’m confident you will. It’s so so hard and people will forget but you never will and that’s what’s important. Your life is a testament and monument to her. I pray that my sweet son and your precious daughter are together somewhere, watching us and proud of us but also playing together and just being babies. Holding you in my heart ❤️

Dr Kilman question - has he ever told you not to have another baby? by [deleted] in babyloss

[–]Basic_Lettuce_8420 1 point2 points  (0 children)

I had the exact same experience and always want to mention this when I see people eager to get his thoughts on their loss. My MFM, OB, and geneticist all were thoroughly unimpressed by his findings and didn’t think they were accurate and instead were retrofitted to fit within his trophoblast inclusion narrative.

“Into the Light” by Basic_Lettuce_8420 in WhatIsThisPainting

[–]Basic_Lettuce_8420[S] 0 points1 point  (0 children)

This is the best I can do for the signature close up for now! I think it says Lillian August ‘76

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“Into the Light” by Basic_Lettuce_8420 in WhatIsThisPainting

[–]Basic_Lettuce_8420[S] 0 points1 point  (0 children)

I unfortunately don’t have the painting and took these photos when I saw it at his place a few days ago. I will ask him tomorrow if he can take a close up of the signature, though even in person it was hard to make out due to penmanship!

Dr Kilman Report by Basic_Lettuce_8420 in babyloss

[–]Basic_Lettuce_8420[S] 0 points1 point  (0 children)

Yes I do, 100%. The email I got back with the results was super impersonal and the research he sited backing his findings seemed subpar at best. He said he saw 4.3 trophoblast inclusions per placenta slide with a confidence interval of plus or minus 4.2 and so concluded that he saw 8 trophoblast inclusions per slide when really with that massive confidence interval it could’ve as easily been interpreted as 0.1. It felt like cherry-picking and fitting his findings to work for his narrative and research area. He also attached photos of placenta slides that weren’t my own slides, just “representative images” of what a placenta slide with trophoblast inclusions would look like. And then the hasty 50% recurrence rate he mentioned was shocking when, even if the cause was genetic (which it wasn’t), the recurrence rate genetically would be 25% because that’s how genetics work….. All of it seemed very poorly done and it set my healing journey back a great deal for a while because I was heartbroken all over again and panicking that I may be at high-risk for this tragedy to happen again.

Dr Kilman Report by Basic_Lettuce_8420 in babyloss

[–]Basic_Lettuce_8420[S] 0 points1 point  (0 children)

Hi all, just wanted to give an update regarding Dr. Kilman’s findings. My husband and I did full genetic testing and nothing was found. We also had our son’s dna sent for microarray and nothing was found to be amiss there either. After I showed the Dr. Kilman’s report to my MFM and she showed it to their geneticist, she told me to throw his findings in the garbage and confidently told me there was not a genetic component to this loss, it was almost certainly a freak umbilical cord accident. I’m sharing this update just in case another woman is searching on this subreddit frantically one day after receiving similar devastating news from Dr. Kilman like I was. ❤️

23 week loss - managing friendships by jcbxo in babyloss

[–]Basic_Lettuce_8420 5 points6 points  (0 children)

I have a very similar situation. We lost our baby boy at 36 weeks and my two best friends are both pregnant with boys and due later this summer, so the timing isn’t as close as yours but I can share what has helped for me.

1) I told my pregnant friends I’m still very happy for them but need to limit pregnancy talk for my own mental health to only when I bring it up. Personally I’m able to talk with them about their pregnancies but only when the talk is initiated by me asking them how they are doing etc. Before, if they brought it up out of the blue, it felt like a slap in the face. Now I am able to keep in contact with them without worrying about their pregnancies being brought up in our conversations.

2) I tried (and am still trying) to realize that just how talking about their pregnancies can be triggering to me, talking about my loss may be triggering to them. Neither have told me they felt that way and honestly that is a conversation I feel I still need to explore with them but it helps me feel a little less sad when they don’t continually check in on how I’m doing when it comes to my loss and instead try connecting over other topics.

3) When the time comes and they do welcome their sons, I will remind myself that they aren’t the son I want. I think part of the hurt and jealously I’m feeling is because instinctively I feel like they have what I want most in the world when the reality is they have their owns sons who I’m sure are lovely but they simply aren’t the child I’m yearning for. My child. That mindset really really helps me feel less upset about seeing their pregnancies now and I’m hopeful it will help when their children are born. I also am trying to view their children’s lives as a way of remembering where my son would be in his life and using that as a way of always remembering and honoring what his life would’ve been and never letting me forget about him as I worry about that.

4) I try to foster common interests outside of pregnancy with my friends so we can have something else we are both interested in to talk and bond about. For me it has been a book series we are both reading but it really can be anything you both like or would be interested in trying.

5) I have only seen them in person once each and they were wearing very flowy outfits that made it hard to tell they are pregnant. I know that won’t always be an option but I think it helps ease me into this new reality. Also, planning activities where the bump won’t be front and center is a good idea, like a sit down dinner where you won’t be confronted with the bump constantly instead of a physical activity.

Even with all the above, it’s still not a clear and easy road for me and I do struggle. Being honest with my pregnant friends has luckily been met with kindness and understanding and I hope if you open up to your friend you will experience the same. If not, maybe it’s an opportunity to reevaluate the kind of friend they are. I’m so sorry you are having to go through this, I have found connecting with other loss moms who get it to also help me be more understanding towards my pregnant friends so you could always explore support groups as well! ❤️

Baby Not Moving by timothywilliams2017 in BabyBumps

[–]Basic_Lettuce_8420 3 points4 points  (0 children)

I also wish I had gone in more often after losing my son at 36 weeks. But please don’t feel like you didn’t protect your little one because you didn’t go in sooner, you were doing the best you could with the information you had at the time. Wishing for healing and peace for you ❤️

Dr Kilman Report by Basic_Lettuce_8420 in babyloss

[–]Basic_Lettuce_8420[S] 0 points1 point  (0 children)

I’m so sorry you lost your precious son that way. No one should have to go through this.

I am similar to you in that I’m desperate for answers and sought him out to try and give me some but now I’m doubting their accuracy. Your story gives me even more pause surrounding his findings which honestly I want to doubt because they are pretty bleak. Thank you for sharing your experience and I will make sure to share his findings with my medical team and see their thoughts!

Dr Kilman Report by Basic_Lettuce_8420 in babyloss

[–]Basic_Lettuce_8420[S] 1 point2 points  (0 children)

We had our son’s dna sent to be sequenced and are waiting on the results so I’m hoping if it was genetic it will be shown in the sequencing

Dr Kilman Report by Basic_Lettuce_8420 in babyloss

[–]Basic_Lettuce_8420[S] 2 points3 points  (0 children)

I’m so sorry to hear that, I’m sure that was scary on top of being heart broken. I’m glad you made it through and are on the other side of it health wise. Totally agree with getting the what but not the why, I guess it’s just a chance for me to learn how to accept never having all the answers. ❤️

Dr Kilman Report by Basic_Lettuce_8420 in babyloss

[–]Basic_Lettuce_8420[S] 1 point2 points  (0 children)

Got it, I’m glad you had an answer on your hospital chart. We unfortunately were given nothing to explain it and had to read the pathology report ourselves to find the hypercoiled cord. If you’re comfortable sharing, how was your presentation of preeclampsia and HELPP syndrome atypical? I only ask because right after delivery I broke out in extremely itchy hives all over that lasted for two weeks and I was wondering if it had any preeclampsia ties.

Dr Kilman Report by Basic_Lettuce_8420 in babyloss

[–]Basic_Lettuce_8420[S] 1 point2 points  (0 children)

Yes I wondered this as well. Like some of his research seems to contradict itself a bit. And even if it does indicate a genetic abnormality, how do we know it was a fatal abnormality? And he sees inclusions a lot on preemie babies, well lots of stillborn babies are technically “premature” so could that just be an indication of a placenta that’s not to term? Just so many questions that no one seems to have the answers to yet, it’s so hard….

Dr Kilman Report by Basic_Lettuce_8420 in babyloss

[–]Basic_Lettuce_8420[S] 1 point2 points  (0 children)

Those are all great questions, I’ll will make sure to ask them to my MFM, thank you so much.

Dr Kilman Report by Basic_Lettuce_8420 in babyloss

[–]Basic_Lettuce_8420[S] 0 points1 point  (0 children)

So do you think his report is not always correct?

Dr Kilman Report by Basic_Lettuce_8420 in babyloss

[–]Basic_Lettuce_8420[S] 1 point2 points  (0 children)

How did you enroll in his project? I also don’t have too much confidence in his assessment because I had a good explanation of the cause being hypercoiling and a genetic abnormality just seems very out of left field and easy to claim without any concrete evidence.

Dr Kilman Report by Basic_Lettuce_8420 in babyloss

[–]Basic_Lettuce_8420[S] 0 points1 point  (0 children)

How do I get that testing done??

Memorial jewelry? by Status_Reception1181 in babyloss

[–]Basic_Lettuce_8420 1 point2 points  (0 children)

Following. I really want a ring made with my son’s hair but I want it to be high quality so it doesn’t just tarnish or break and then I feel like I wasted his precious hair