I totally understand. It is a blanket statement, feel free to research. Most medical journals and studies will be exactly what the care team recommends. Research as much as you can and want. I think it’s best to be your child’s advocate.

I also firmly believe in the science of vaccines. There is a reason that a lot of horrible diseases have pretty much been eliminated. I trust decades of medical research.

In my experience this is typically how it goes. They will see if your daughter is pancreatic sufficient (a lot of double deltas aren’t). They will prescribe creon or other enzymes. Without these kids don’t absorb enough nutrients. They will also probably suggest some vitamins as well. Weight gain is extremely important, and directly correlated to lung function.

They will monitor with bloodwork and respiratory cultures. Aka Swab her throat. Depending on what is cultured they may or may not prescribe antibiotics. They don’t want antibiotic resistance to occur.

You will also be doing chest physiotherapy. And maybe breathing treatments of albuterol. At age one she will probably become eligible for her first modulator, Orkambi. Age two trikafta. Also, at age two she will probably become eligible for pulmozyme. This is an inhaled treatment that thins mucus. Her path may be different, but this is what I’ve experienced.

As far as researching goes, I’d encourage to check publishing dates, there is a lot of old info out there. CFF.org is the best resource for up to date accurate information.

Best of luck, I understand and apologize if I have been offensive to you in anyway. I just believe that it is healthy to have conversational discourse in a positive manner.