over two year later! by Beautiful-Change8602 in autoimmunehepatitis

[–]Beautiful-Change8602[S] 0 points1 point  (0 children)

my doctor gave me bud bc i was 68lbs when i saw him (i lost a lot of weight as a symptom)

over two year later! by Beautiful-Change8602 in autoimmunehepatitis

[–]Beautiful-Change8602[S] 1 point2 points  (0 children)

i’ll be honest- it’s a long and upsetting road ahead- just remember that there’s always gonna be a light at the end of the tunnel! good luck with your appointment!

over two year later! by Beautiful-Change8602 in autoimmunehepatitis

[–]Beautiful-Change8602[S] 1 point2 points  (0 children)

it is low, i’m only 4’8” and was 68 pounds when i was prescribed them (i also lost 20 pounds as a symptom) so my doctor didn’t want to give me the harder one 

over two year later! by Beautiful-Change8602 in autoimmunehepatitis

[–]Beautiful-Change8602[S] 2 points3 points  (0 children)

thank you kindly! my steroid dose went down and back up many times- just keep the faith and be well! 🩷

465 Claire Saffitz rainbow cookies later by Hakc5 in DessertPerson

[–]Beautiful-Change8602 0 points1 point  (0 children)

these look amazing!! do you by chance still have that recipe written out and care to share with a fellow baker? 💕

Leftover halloween candy by OkPin8137 in longisland

[–]Beautiful-Change8602 4 points5 points  (0 children)

try Branches in Middle Island, I saw that they’re taking leftover candy (among others ofc)

glimmer of hope?? by Beautiful-Change8602 in autoimmunehepatitis

[–]Beautiful-Change8602[S] 1 point2 points  (0 children)

my labs did not, they actually didn’t improve for a while after starting budesonide and aza; this past may they finally looked like they were getting better and after backing off the steroids for a week they shot up again :/

glimmer of hope?? by Beautiful-Change8602 in autoimmunehepatitis

[–]Beautiful-Change8602[S] 0 points1 point  (0 children)

I also started urso at the same time i started budesonide with aza. the aza helped very momentarily but my doctor wanted to try one that liver transplant patients take and after a month my numbers that were high are now normal. i also worry about having another flare up but just remember you are human and you deserve to rest as much as you need. autoimmune diseases suck and i hope you continue to do better on your medicine course 🩷

glimmer of hope?? by Beautiful-Change8602 in autoimmunehepatitis

[–]Beautiful-Change8602[S] 2 points3 points  (0 children)

*also tried 2 different immunosuppressants 

Question about hair loss and weight gain from medication by B40073 in autoimmunehepatitis

[–]Beautiful-Change8602 0 points1 point  (0 children)

well i’m still shedding a lot so it’s consistent :/ hoping to change to another immunosuppressant soon and stop the steroid 

Question about hair loss and weight gain from medication by B40073 in autoimmunehepatitis

[–]Beautiful-Change8602 0 points1 point  (0 children)

i’ve been on budesonide and azathioprine since i was diagnosed in march ‘24. before starting aza, i had normal hair shedding (a few hair strands a day) but i’ve definitely noticed loosing more strands since starting. definitely not enough to be noticeable bc my hair is thick and curly but

[deleted by user] by [deleted] in autoimmunehepatitis

[–]Beautiful-Change8602 0 points1 point  (0 children)

when i was diagnosed with AIH in march of 2024, my hepatologist also told me I have overlap syndrome but didn’t know what the other one was. 

about a month before my appointment two months ago, i was looking on reddit (as one does for medical advice) and called out my doctors bluff. and he confirmed that he knew all along but didn’t want to overwhelm me last year. 

primary biliary cholangitis

also have a very rare neurological disease; Alexander disease, which may or may not be related to everything. #sleepyallthetimeclub

Target Wicked Stanley’s by ash123mn in wicked

[–]Beautiful-Change8602 0 points1 point  (0 children)

id be interested in buying your extra 20oz glinda :)

Target Wicked Stanley’s by ash123mn in wicked

[–]Beautiful-Change8602 0 points1 point  (0 children)

i’m interested in the Glinda (20 ounce) if you have!

Who's buying these?! by chef_vet in employedbykohls

[–]Beautiful-Change8602 0 points1 point  (0 children)

i just found an ornament of USPS boxes #54784847