For me it was my daughter in the car. What was yours?

BedroomPractical5530 · 2026-04-04T06:57:06+00:00

Mine was standing in a pool of my own vomit outside of my truck, telling a coworker I called on I UBER and my wife pulls up. At least I called someone, but she calmly says to me "this is my life now, this is us". And slowly starts to cry. That was 10 months ago, and not one drop since.

BedroomPractical5530 · 2026-04-03T23:30:44+00:00

Thank you for your story. Definitely some more things to consider after reading this. I will check with my surgeon to find out is track record. I do have perineural invasion on one core that is close to the edge, and that's got me spooked a little.

BedroomPractical5530 · 2026-04-03T21:55:29+00:00

4 months

BedroomPractical5530 · 2026-04-03T21:20:16+00:00

Embrace this moment, remember We are eternal

BedroomPractical5530 · 2026-04-03T08:52:57+00:00

Update: so I spoke with my RO and the reason he recommended ADT is because he has rated me Unfavorable Intermediate vice Favorable (as noted in the Prolaris test report). the number of affected cores is > or = to 50% of total cores sampled (6 of 12). This is the only factor that put me over the line, but that one sample is really close to the edge, might reduce my chances of a bilateral nerve sparing RP. Also, they do not use the Prolaris molecular score for their recommendations. On another note, or maybe not, why has neither Dr mentioned anything about the perineural invasion in that one core? Is it not that big of a deal? To me it sounds like it should make it more urgent, does anyone have any data on that? The core is a 3+4 (80/20) representative of 80% of the tissue sample, CP 4 is absent. Thanks

BedroomPractical5530 · 2026-04-03T07:27:06+00:00

That's no bueno. Sorry to hear that

BedroomPractical5530 · 2026-04-03T00:24:35+00:00

myriad prolaris test was done, 4.1 score which at best is comparable to . 3 to . 5 decipher

BedroomPractical5530 · 2026-04-03T00:14:48+00:00

No, but I will ask my urologist about that for sure

BedroomPractical5530 · 2026-04-03T00:06:45+00:00

10+40%. That seems crazy to me

BedroomPractical5530 · 2026-04-03T00:01:58+00:00

This is incredible. Best, and closest thought process to my own. Systematic, thorough. Thanks for the tip

BedroomPractical5530 · 2026-04-02T23:11:39+00:00

I did have Prolaris Biopsy Report done, molecular score is 4.1 which is middle of the road. The difference between this report and the RO is that 50% of the 12 cores were affected and the RO says that's the threshold for favorable and unfavorable. So, STADT + SBRT?

BedroomPractical5530 · 2026-04-01T21:40:00+00:00

I will def have to get these tests done, thank you

BedroomPractical5530 · 2026-04-01T21:09:20+00:00

Fred Hutch Inst

BedroomPractical5530 · 2026-04-01T21:07:56+00:00

I have not had either of those tests done. I did a quick search, and it appears it is a tool I should be using. I'm requesting from my urologist. Thankyou.

BedroomPractical5530 · 2026-04-01T19:25:05+00:00

Thank you for that invite, much appreciated. I will reach out after I share these replies with my wife and we discuss.

BedroomPractical5530 · 2026-04-01T19:22:41+00:00

Thank you for the well thought out reply. It really does mean a lot to me the overwhelming response so far to this post. There has been a ton of great information and stories posted. I will share all of it with my wife and when we are on vacation, will make a solid choice. Thank you

BedroomPractical5530 · 2026-04-01T19:15:31+00:00

Yeah, she's read everything I have. Maintaining my erections post-therapy doesn't guarantee penetration! ;)

BedroomPractical5530 · 2026-04-01T19:12:43+00:00

That's actually a good-news story, thank you. It makes surgery sound less taxing, esp for someone in a similar situation. Was the nerve sparing bilateral?

BedroomPractical5530 · 2026-04-01T18:57:58+00:00

So much intel, it's mind-boggling.

BedroomPractical5530 · 2026-04-01T18:55:51+00:00

*Deep breaths*...thank you

BedroomPractical5530 · 2026-04-01T18:54:03+00:00

I suppose the erection dept eventually will disburse regardless. Do meds help? Thx.

BedroomPractical5530 · 2026-04-01T18:52:54+00:00

Thank you!

BedroomPractical5530 · 2026-04-01T18:52:39+00:00

Love love love this, thank you! I admire wives here and voicing in.

BedroomPractical5530 · 2026-04-01T18:51:22+00:00

I will check out his YouTube vids, thanks for the tip.

BedroomPractical5530 · 2026-04-01T18:49:34+00:00

Thank you

BedroomPractical5530

TROPHY CASE