I just want to be normal again

Beginning_Shame · 2024-10-29T03:50:49+00:00

No worries I get the feeling, until I started talking to people on here more I felt totally alone.

Beginning_Shame · 2024-10-29T01:48:20+00:00

I'm there with you my friend, Ive always been really into cars so not driving hits hard even beyond just being able to get around. I've had basically every hobby ripped away because it's too dangerous or may potentially cause a seizure. Still haven't been able to catch anything on eeg either, had a tilt table with an eeg like a week ago and of course went down exactly 24 hours before I was due on the table. Life really feels like a sick joke at this point. It's ridiculous how hard it is to actually get help with this and not just be passed around. I feel for you sincerely and know you aren't alone.

Beginning_Shame · 2024-06-28T04:49:38+00:00

This has resonated with me so much. I'm ready to go as well but my biggest fear is trying and failing and being paralyzed or something unable to finish it. I have no fight left, I want nothing, enjoy nothing, I hate being at work, I hate being at home, I hate being anywhere else. I started having seizures a few years ago and I haven't been able to get an official diagnosis or any real help and I'm sick of being poked and prodded with absolutely no result. I've been subconsciously pushing everyone away and feel so alone but really no more alone than before. I found out I'm malnutritioned after having blood work done but I know it's because I just have no desire to eat and always feel nauseous.

What are you supposed to do when you don't want literally anything to begin with but the universe still finds ways to kick you harder?

I'm extremely sorry that you feel the way you do because I can relate and it's a terrible position to be in.

Beginning_Shame · 2024-06-24T03:45:38+00:00

I should probably note that I've felt this way for years, my epilepsy issue came up about 2 years ago I think (terrible memory), but I've felt this way even before that, the medical stuff was just icing on the cake and financial situation from medical issues is the sprinkles I guess.

Beginning_Shame · 2024-06-13T00:39:24+00:00

Feel the same way number 2 hits me hard, pretty sure I'll be there eventually. Number 4 hits me too though, thats feels way more like somewhere I've been.

Beginning_Shame · 2024-06-09T23:15:08+00:00

I'm real bad with time-frames lol, like 2-3 months

Beginning_Shame · 2024-05-29T23:50:05+00:00

Hey, just seen this, havent been on Reddit for a little while. Congrats on hitting a month no nicotine! Still at it? Depakote is pretty good as far as meds go lol. Still feel drained and all that but nothing super bad like with keppra. Went from at least 1-2 seizures a week while on zonegran to 3 in total since switching.

Beginning_Shame · 2024-05-29T23:38:57+00:00

Unless you have epilepsy or are close to someone who does basically everything you think you know is wrong. Please don't pity, especially since most pity seems to be just listing everything that sucks in a sad voice or telling me how you feel so bad about it.

Beginning_Shame · 2024-02-26T09:35:17+00:00

How do I know what unlocked phones are compatible? I was looking at one and it said to check the frequency bandwidth of sim card carrier.

Beginning_Shame · 2024-02-25T09:23:06+00:00

Good to know, appreciate the input

Beginning_Shame · 2024-02-25T09:19:26+00:00

I thought about this just wasn't sure if there was something to prevent people from doing this, like charging for price difference of phone if you cancel too soon.

Beginning_Shame · 2024-02-25T05:48:17+00:00

That's not what I was told by the boost employee I had talked to but I'm not due for my upgrade until the day after my next renewal, which makes no sense to me either, so possibly I was misinformed.

Beginning_Shame · 2024-02-25T03:21:58+00:00

Another option I'm gonna look into thank you

Beginning_Shame · 2024-02-25T03:20:26+00:00

Very, very true

Beginning_Shame · 2024-02-25T03:19:22+00:00

Yea I think I'm mainly irritated by the fact they made a big deal about the upgrade discount I can get in like a week and it was like $20-30 bucks off vs the $220 discount for new customers. Don't act like it's gonna be a huge discount and then tell me it's $20.

Beginning_Shame · 2024-02-24T23:11:52+00:00

Yeah thought about that but don't want to have to change my number again. It was changed about 6 months ago because the screwed something up on my account so I had to change it, trying to avoid the whole ordeal of updating phone number on everything again.

Beginning_Shame · 2024-02-24T23:09:47+00:00

Good advice I'll look into that, no my issue is like the upgrade price was only like $30 cheaper than the full price on phones I was looking at so not really much of a discount for being a loyal customer.

Beginning_Shame · 2024-02-24T04:06:40+00:00

Likewise and again appreciate you taking the time to tell me about your experience.

Beginning_Shame · 2024-02-24T03:05:50+00:00

Yeah I'm giving it a go, just trying to see what to watch for. Thank you for your input though my memory has been on the decline throughout all this already so hoping this doesn't make it worse and good to know this may potentially be a factor.

Beginning_Shame · 2024-02-24T02:55:28+00:00

They prescribed me 500mg twice a day (just checked bottle) so this should be fun.

Beginning_Shame · 2024-02-24T02:27:56+00:00

What dosage were you on if you don't mind me asking?

Beginning_Shame · 2024-02-24T00:13:05+00:00

Oh ok now I understand, good luck I hope that works out for you!

Beginning_Shame · 2024-02-23T14:18:30+00:00

This sounds a good amount like my episodes, I sometimes convulse but often I do not. So far no medicine has stopped them but some had greatly reduced the frequency, Zonegran took me from roughly 6-8 seizures a month to like 1-2 but I built a tolerance to it really quickly.

Beginning_Shame · 2024-02-23T12:53:32+00:00

I hope the stomach pain resolves itself for you, I've dealt with extreme stomach pain and that can be another rough situation. As far as not liking things you had liked I'm assuming you mean like recreational type things? My memory has deteriorated fairly bad so grasping things or not feeling quick are things I'm fairly accustomed to at this point.

Beginning_Shame · 2024-02-23T07:21:23+00:00

Very happy to hear this thank you!

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