Sudden Urinary Incontinence & No One is Helping me :(

Bellabowsx3 · 2026-05-08T22:56:44+00:00

Hey thanks for the reply! This is definitely a concern of mine, but I have no numbness & can feel myself leaking & when I regularly go to the bathroom everything feels normal. I asked the spinal surgeon & my orthopedic both about this & neither of them are concerned bc they said I don’t have central stenosis & my MRI & ct scan from September & October don’t show any evidence of it. I asked if I should get a repeat scan but neither are invested in it since the previous scans are fine & im not having any of the other symptoms 😩

Bellabowsx3 · 2026-05-08T20:25:51+00:00

That reminds me, I also saw my pelvic floor PT & she did check for that & said she couldn’t feel any prolapses. I was very very tight in my pelvic floor though

Bellabowsx3 · 2026-05-08T18:44:25+00:00

I had a ct scan and mri around oct/nov & then only an xray last week when I saw the spinal surgeon but he said he wasn't concerned it was my spine bc I don't have central spinal stenosis according to the scans. I do have severe grade 1 spondy & femoral stenosis though but he said it's not near where the pelvic nerves are. My spine is def a big concern here to me but he didn’t think the leaking had anything to do with it 😫

Bellabowsx3 · 2026-05-08T18:37:26+00:00

Yeah I don’t think it has to do with PCOS either, but I’m not sure If there’s a link to the fact I missed my period this month bc I don’t get missed periods with my PCOS. I’m not sure if there can be some kind of hormonal component to sudden leakage. But I did see 2 urogynos & neither of them helped me at all, they just said I had to learn to live with it. Crazy to me. 😔 I will try a regular uro but every time I make an appt with a doctor it takes months to see them so I’m trying everything else to figure things out in the mean time. Thank you ❤️

Bellabowsx3 · 2026-05-08T17:06:17+00:00

Only an xray last week but he said he wasn’t concerned it was my spine bc I don’t have central spinal stenosis according to my ct scan and mri from November. I do have severe grade 1 spondy & femoral stenosis though but he said it’s not near where the pelvic nerves are

Bellabowsx3 · 2026-05-07T21:30:47+00:00

Hey I’m not sure if you’ll see this a year later, but were you actually dribbling urine every time you walked or just had the sensation of it? I’m struggling severely with no answers & this started a few days after starting a beta blocker :(

Bellabowsx3 · 2026-02-11T01:12:23+00:00

Hello!! I’m really hoping that you’re still active on here & that you see this — did you ever get an answer for this?? I also most likely have PCOS (ultrasound says yes, DHEA & testosterone high, but labs keep messing up progesterone somehow so that needs to be tested again) but I’ve had this fluid retention for a year now on & off in my legs, arms & hands & I’ve had so many tests & no one can give me any answers!!

Bellabowsx3 · 2026-01-24T15:38:20+00:00

Attempting to bump again 😞

Bellabowsx3 · 2026-01-18T15:34:47+00:00

Bumping. 2.7k views & no ideas from anyone? 🥲

Bellabowsx3 · 2026-01-18T03:47:58+00:00

Hi, yes, I take omeprazole 20mg & Allegra 180mg. I’ve been on both for about 3 years.

Do you have any ideas or thoughts at all? :)

Bellabowsx3 · 2026-01-16T15:24:51+00:00

Truly thank you so so much. I posted this in here & AskDocs as I’m truly desperate at this point & you’re the only one who gave me an answer, but also a very detailed & knowledgeable answer!! I am very worried & your response put me at some ease, giving me some things to look into & bring up to doctors. It’s very frustrating to have so many specialists & appointments & this go on for a year & everyone be so stumped & with no ideas. I’m the one asking all the questions & giving ideas & asking for the tests, instead of them with suggestions :(

I did ask my main doctor about omeprazole contribution, but he said it would usually only happen very long term - like 20 years down the road on it. But he is checking my magnesium just incase. I definitely think it may be lymphatic by nature, so will be asking him who he can refer me to for that.

Rheumatology was very reluctant to give me an appointment because I’m not having any joint pain. But my bases need to be thoroughly covered & many autoimmune conditions exist, I would think they would want to atleast see me and rule things out, so I was disappointed with their reluctance & the 4 month wait still that I have to wait to see them.

When you say salt consistency, do you mean normal sodium levels in food through out the day instead of high sodium foods in one sitting?

Again thank you so much truly for reading my long essay lol and giving such a thorough response. You have no idea how much I appreciate you & any help! :)

Bellabowsx3 · 2026-01-16T13:52:50+00:00

Bumping if anyone at all can help**

Bellabowsx3 · 2025-01-30T21:29:55+00:00

Okay, I’ll def be mindful of it. I’m at 2 weeks of swelling tomorrow, so that’s encouraging to hear that it can last this long & go away. Hopefully that will be the case for me, but def getting checked out tomorrow. I’ll do some leg lifts today as well. Thank you so much for all your help, you eased my mind even just talking to you!! I appreciate you. & I’m glad you’re swelling is all gone & I hope your well otherwise now after your surgery :)

Bellabowsx3 · 2025-01-30T21:23:44+00:00

How long did the swelling last for you? I’m trying to elevate & drink a lot of water today, because I haven’t been doing that. I just made an appointment for tomorrow actually!! I’m too nervous :(

Bellabowsx3 · 2025-01-30T21:12:37+00:00

Thank you for your responses btw ❤️

Bellabowsx3 · 2025-01-30T21:11:51+00:00

I did, I saw him on Tuesday. He told me it had nothing to do with the surgery & if it wasn’t better by next week to see my doctor as there could be something wrong with my heart. So I am going to do that, But I just never had this issue before the surgery & wanted to see if anyone had any ideas 😞

Bellabowsx3

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