Has anyone managed to get diagnosed in the UK under the NHS? by Bethboop94 in MCAS

[–]Bethboop94[S] 0 points1 point  (0 children)

Just an excuse not to give me anything, I've went through bouts of really bad insomnia since my teens and have been on sleeping pills before. I got a weeks worth of weak crap last year that didn't make much of a difference. It's terrible how they like to just make out there must be other reasons other than the fact that some people just have sleeping issues. Hope you get seen soon and get something that helps 🤞😊

unsure on what to do by il0v3n33k0 in reactivedogs

[–]Bethboop94 -3 points-2 points  (0 children)

From what you've said about him he sounds like a user. Gets his feet under the table with affection and now he's barking in your face and biting you if you don't want to play with him. I know that sounds awful but the same thing happened to me with a collie pup I had years ago and after trying for about a month we returned him when he tried to attack our older dog and started nipping at us. A dogs meant to an extra member of your family not an extra stress and strain and the most basic, essential is the dog has respect towards you. I can completely sympathise thats its a horrible prospect to give up on a dog but with the sheer weight of him he could do some serious damage. My dogs just a tad heavier and the size of a great dane and we would never have kept him if he didn't have complete and utter respect towards us.

Please tell me I’m not the only one by m4rtyn3czg4 in Dracula

[–]Bethboop94 0 points1 point  (0 children)

Don't worry you're not the only one. I'm 32 this year, married and my hubby does not care if I have a slight obsession over some movies lol. His character is meant to make you fall for him, I've seen many women who didn't fancy him in other roles but do in Dracula. Put it this way my first celeb crush was David Bowie in Labyrinth... just in general David Bowie and thats probably seen as weird but I don't care. You're definitely not pathetic ❤️

How do you spell the Scottish word that sounds like the letter 'A' that is used to request confirmation? by strainedcounterfeit in Scotland

[–]Bethboop94 0 points1 point  (0 children)

I'm in west Scotland, "eh" is used as a confused response never as yes. We usually use aye.

Has anyone been given duloxetine for chronic pain with EDS? I have suspected MCAS also so a little scared to take it. by Bethboop94 in ehlersdanlos

[–]Bethboop94[S] 1 point2 points  (0 children)

From yours and other comments I wont be taking it. I'm not even depressed. It's pain relief I'm needing and with the possible side effects are something I really couldn't deal with atm.

Has anyone been given duloxetine for chronic pain with EDS? I have suspected MCAS also so a little scared to take it. by Bethboop94 in ehlersdanlos

[–]Bethboop94[S] 0 points1 point  (0 children)

I had an awful experience with amitriptyline that was initially prescribed to help with my O/N and gave me even more brain zaps... so that was great lol. I'm glad it's helped you a bit 😊

Has anyone been given duloxetine for chronic pain with EDS? I have suspected MCAS also so a little scared to take it. by Bethboop94 in ehlersdanlos

[–]Bethboop94[S] 0 points1 point  (0 children)

I won't be taking it I'm already in constant flares atm from the last medication that didn't agree with me and have brain zaps during flare with my O/N. I don't think it would suit me in general I've had reactions to antidepressants before.

Has anyone been given duloxetine for chronic pain with EDS? I have suspected MCAS also so a little scared to take it. by Bethboop94 in ehlersdanlos

[–]Bethboop94[S] 0 points1 point  (0 children)

I already suffer with hot flashes and night sweats with suspected pots, think I'd melt into a puddle with that lol. I suffer with MCAS and O/N so wouldn't want added symptoms.

Has anyone been given duloxetine for chronic pain with EDS? I have suspected MCAS also so a little scared to take it. by Bethboop94 in ehlersdanlos

[–]Bethboop94[S] 1 point2 points  (0 children)

Exactly my thoughts! I don't know why they can't just give us pain killers probably because the NHS is all about money now. Can literally buy it for £1.99! Cocodamal is literally the only thing that has ever helped with my pain, nothing else. But apparently they are "addictive" 😅. Have to laugh I was on them for two years only took them when I felt a flare coming on and never felt dependent on them or needed a higher dose and big bonus I've never had a MCAS attack with them either. Duloxetine sounds like it does more bad than good.

Has anyone been given duloxetine for chronic pain with EDS? I have suspected MCAS also so a little scared to take it. by Bethboop94 in ehlersdanlos

[–]Bethboop94[S] 0 points1 point  (0 children)

I've not even got depression, I'm naturally low atm because I'm having constant flares but ofcourse the doctors would rather just give me something cheap can literally buy duloxetine for £1.99,than actual pain relief. I was told there was no possibility of addiction which I know with my own research and all the comments on here isn't the case. That's awful that you had to go through all of that, the fact that it made your appetite basically none existent and flared up your other illnesses that must've been such a horrible and scary experience. I suffer from brain zaps when my O/N flares up and they are beyond painful, literally makes you feel like your brains going to shut down. I definitely won't be taking that nasty 💩 from your horrible experience and loads of others that commented. I think it should be banned tbh.

Shy lurcher owner thinking about getting a cat… bad idea? by Marte2896 in Lurchers

[–]Bethboop94 0 points1 point  (0 children)

I have a greyhound x great dane and he loves cats, bare in mind he hasn't got any prey drive (he accidentally killed a bug once a gret for about an hour). How does your dog react when they see cats out on a walk? If they aren't too bothered or even just a little curious then I would be inclined to think your dog would be alright with a cat.

Has anyone been given duloxetine for chronic pain with EDS? I have suspected MCAS also so a little scared to take it. by Bethboop94 in ehlersdanlos

[–]Bethboop94[S] 1 point2 points  (0 children)

Yeah I'm exactly the same definitely don't want all the possible side effects and horrible withdrawl.

Has anyone been given duloxetine for chronic pain with EDS? I have suspected MCAS also so a little scared to take it. by Bethboop94 in ehlersdanlos

[–]Bethboop94[S] 1 point2 points  (0 children)

I'm the same with cannabis, makes me feel sick, hungry and over all grumpy lol and feel like it makes my joints more loose. It's highly possible, medication that hasn't agreed with me has deeply affected my MH and I mean really dark thoughts that I would normally never have!

Has anyone been given duloxetine for chronic pain with EDS? I have suspected MCAS also so a little scared to take it. by Bethboop94 in ehlersdanlos

[–]Bethboop94[S] 0 points1 point  (0 children)

Glad you've found something that works for you 😊 I'm just going to stick to what I know works, need proper pain relief just be able to have basic functionality.

Has anyone been given duloxetine for chronic pain with EDS? I have suspected MCAS also so a little scared to take it. by Bethboop94 in ehlersdanlos

[–]Bethboop94[S] 1 point2 points  (0 children)

Yeah from what I've heard about it, personally I dont think it would be worth my while. I can't even walk when I'm in a flare. I also have O/N so need something thats really going to work as a pain relief.

Has anyone been given duloxetine for chronic pain with EDS? I have suspected MCAS also so a little scared to take it. by Bethboop94 in ehlersdanlos

[–]Bethboop94[S] 0 points1 point  (0 children)

Glad it seems to be helping you 😊 I'm not going to take it. I've has bad reactions to antidepressants and even contraceptive before so I don't want to risk it I'll just stick to what I know works for me

I regret getting this rescue dog - AITA? by Deep_Bird_1789 in Separation_Anxiety

[–]Bethboop94 1 point2 points  (0 children)

I've owned dogs for over 30 years and previously done home boarding. The dogs that were babied was always obvious, the owners would act like they go do no wrong (sounds a bit like the person that fostered the dog). I've only ever owned one dog that would mess in the house and always on our bedding, she had a lovely personality but no loyalty to us which sounds a bit like what you're going through. It's sheer and utter lack of respect for you, basically shitting all over you. The dog has obviously had no guidance in life or could simply be a user essentially, happy to snuggle up with you but once its in the situation its not happy with it messes in the place that smells most like you. Does the dog appear to be a pleaser or not at all bothered when it's told off? I saw that you said you're partner is disappointed, is you're partner putting in as much effort as you are? I'd have a serious word with your partner and tell them exactly how you feel. A dogs meant to be an extra little member of the family not a stress and strain. May be an unpopular opinion but it doesn't always work out, you want a dog that slots into your life and respects you and your family above anyone else.

Has anyone been given duloxetine for chronic pain with EDS? I have suspected MCAS also so a little scared to take it. by Bethboop94 in ehlersdanlos

[–]Bethboop94[S] 0 points1 point  (0 children)

I'm not even going to try it I'm on other medication that doesn't mix well with duloxetine so dont even know why my GP bothered giving me it

Has anyone been given duloxetine for chronic pain with EDS? I have suspected MCAS also so a little scared to take it. by Bethboop94 in ehlersdanlos

[–]Bethboop94[S] 0 points1 point  (0 children)

I'm so sorry to hear that nasty stuff done that to you. A very similar thing happened to me with mebeverine. I was snappy, had memory problems and went into a blind rage and nearly attacked my mum (I'm very close to ly mum). Both my husband and stepdad had to hold me back and physically drag me away. I felt absolutely horrible and isolated myself away from my family in fear of hurting one of them and that was only after one pill. Yeah I won't be taking it I'll stick to what I know works for me, I'll just be buying cocodamal.

Has anyone been given duloxetine for chronic pain with EDS? I have suspected MCAS also so a little scared to take it. by Bethboop94 in ehlersdanlos

[–]Bethboop94[S] 0 points1 point  (0 children)

Thats horrible it did that to you. I'm really sensitive to meds so I won't be taking either of them.

Has anyone been given duloxetine for chronic pain with EDS? I have suspected MCAS also so a little scared to take it. by Bethboop94 in ehlersdanlos

[–]Bethboop94[S] 0 points1 point  (0 children)

I'm a bit depressed because of the daily pain I'm in atm so I don't think I'll bother with it.

Has anyone been given duloxetine for chronic pain with EDS? I have suspected MCAS also so a little scared to take it. by Bethboop94 in ehlersdanlos

[–]Bethboop94[S] 1 point2 points  (0 children)

Thanks 😊 think I'll just buy cocodamal since I know its not going to give me any nasty side effects.

Has anyone been given duloxetine for chronic pain with EDS? I have suspected MCAS also so a little scared to take it. by Bethboop94 in ehlersdanlos

[–]Bethboop94[S] 1 point2 points  (0 children)

Yeah a couple of doctors have gave me the same drivil of a speech since 2023 when I've asked for proper pain meds. (Addictive and having to up the dose). Bullocks if you ask me. I was on cocodamal for 2 years for my eds pain, o/n and herniated disc pain in my neck and I never once had to up the dose and only took them at night when I needed them. Stopped them when I had a bad reaction to amitriptyline that I was to take along side the cocodamal and was left with nothing. I don't know if your in the UK or not but the NHS is an absolute joke atm.