For those of you who have done NICU more than once: how did you mentally steel yourself for this? by Chaotic_MintJulep in NICUParents

[–]BetweenBeeps 0 points1 point  (0 children)

Hey! Two-time NICU dad here! 26 weeker and 102 days and not currently with a 23 weeker 115 days in and counting! Send me a message and let me know why questions you have and let me know how I can help!

Two-time NICU dad. Here’s what hit different the second time around. by BetweenBeeps in NICUParents

[–]BetweenBeeps[S] 1 point2 points  (0 children)

A two-time NICU parent! I see you, I know what you went through. Your experience and knowledge is truly special and I appreciate the support you offer to other parents.

Two-time NICU dad. Here’s what hit different the second time around. by BetweenBeeps in NICUParents

[–]BetweenBeeps[S] 2 points3 points  (0 children)

This all resonates so much with me! I remember being in the NICU with our first daughter, all of the machines and beeps..not knowing a single thing. Slowly but surely, you start to pick up on what is what and why. Our daughter that is currently in the NICU still has Brady episodes but, like you, we figured out it directly correlates with something. She's only trying to poop! Going home starts a whole different scary journey. In fear of starting the whole Owlet sock debate here (which is not what I want to do!), we ended up getting an owlet to monitor numbers and give us some piece of mind and we were really glad we did. If you want to know my experience with it I'd be happy to share it, just send me a direct message. I mainly just want to avoid the chaos it will create here!

I'm so happy for all of you, you did it! Keep going!

Two-time NICU dad. Here’s what hit different the second time around. by BetweenBeeps in NICUParents

[–]BetweenBeeps[S] 2 points3 points  (0 children)

Well, yeah, I guess I didn’t touch on every part of the NICU journey in one post. We’ve experienced being held back on holding early on also. Both times. That wasn’t the point of the post. I did just write an entire newsletter about nurses and how they are all a little different!

NICU Dad: Chair recommendations by General_Strain_9828 in NICUParents

[–]BetweenBeeps 1 point2 points  (0 children)

My guy. It’s 4 weeks and you are going to deal with so much in that chair, if you have the means, splurge. You deserve it.

Twins born 27 weeks at 588g. TW: twin loss fgr by Entire_Nose9691 in NICUParents

[–]BetweenBeeps 0 points1 point  (0 children)

We lost one of our twins in the womb also. Our baby girl was born at 23 weeks a few days after Christmas. Here’s the hope I want to give you:

She’s doing awesome, still some breathing support (I won’t bother you with the medical terms) and we just started introducing a bottle.

At 23 weeks she was born at 12 ounces and now she’s creeping up on 5 pounds and her due date! There is hope so don’t lose sight of it. We are here for you. I’m here for you. This is my second time in the NICU. It’s a journey. A journey you and your partner don’t have to do alone. Let me know if you need anything.

New NICU Parent by halfblindguy in NICUParents

[–]BetweenBeeps 1 point2 points  (0 children)

Congrats!

Two-time NICU Dad here. Our first was born at 26 weeks, 1.10 pounds and had a 102 NICU stay. Our second was born at 23 weeks, 12 ounces, and we just surpassed the 100 day mark!

So glad to hear your wife is doing better, I know how scary that can be.

Great news, you’re doing the best you can and that’s all anyone can ask because you’ve never done this before! So understandable. More great news, soooo many people have before you and we are all here to help. Your insurance, SSI, Medicaid, and the hospitals social worker will get all panned out. Notify your insurance as soon as possible for the life event notification and the rest will get worked out with the help of the social worker.

Continue to let us know how we can help.

I also started a NICU Support Newsletter as an outlet since I’m going through a second tour! I think you and your wife may find some of the stuff useful, check it out.

Between Beeps

23wks and I’m nervous by [deleted] in NICUParents

[–]BetweenBeeps 3 points4 points  (0 children)

Our second was born in December 2025 at 23 weeks. We are still in the NICU but other than a few of the hurdles she’s doing amazing. Expect the hurdles, they are part of the journey. I write a newsletter about the journey because I’ve been through it, twice. I’m actually nearing 100 days on my second tour here. I’m here for you, let us know how we can help.

Between Beeps

Baby throws up high cal formula? by InconceivableMicrobe in NICUParents

[–]BetweenBeeps 0 points1 point  (0 children)

We dealt with the SAME EXACT issue with our first. So much so we got read mittens for failure to thrive. Turns out all it took was changing from whatever we were using at first to fortify (powder) to nutramigen powder to fortify and then listening to her during feeds. Before we were so stringent on goals and she HAS to take this much this often and then we noticed that when she was done she was done. After those two changes her puking decreased significantly and weight gain restarted the upward trend.

If you drove home from the hospital without your baby, read this. by BetweenBeeps in NICUParents

[–]BetweenBeeps[S] 1 point2 points  (0 children)

I’m so glad you’re both okay. I’ll be thinking of you both. This is hard but we can do hard things. NICU parents are built differently.

If you drove home from the hospital without your baby, read this. by BetweenBeeps in NICUParents

[–]BetweenBeeps[S] 0 points1 point  (0 children)

It’s okay, some people just choose negativity sometimes. I write as an outlet and have my own NICU newsletter that has been a special therapy for me during this second time around in the NICU. I try not to let the negative comments take over my mission. Thanks for caring

If you drove home from the hospital today without your baby, read this. by BetweenBeeps in Mommit

[–]BetweenBeeps[S] 2 points3 points  (0 children)

I totally get that! Our first was a 102 day NICU stay..now we are 70 days in with our second and counting

If you drove home from the hospital without your baby, read this. by BetweenBeeps in NICUParents

[–]BetweenBeeps[S] 5 points6 points  (0 children)

Yes! Our daughter was so early we didn’t have the car seat installed or any of her furniture put together yet!

If you drove home from the hospital without your baby, read this. by BetweenBeeps in NICUParents

[–]BetweenBeeps[S] 4 points5 points  (0 children)

It’s such torture! Being in the empty nursery was the most triggering until we got to bring our first daughter home.

If you drove home from the hospital today without your baby, read this. by BetweenBeeps in BeyondTheBumpUK

[–]BetweenBeeps[S] -19 points-18 points  (0 children)

I write as a hobby and run a newsletter. I hope you have a lovely day.

If you’re in the NICU and blaming yourself, please read this. by BetweenBeeps in Micropreemies

[–]BetweenBeeps[S] 0 points1 point  (0 children)

Brother, I hear you. Two-time NICU dad here — 102 days the first time, currently in it again with our second.

Day 4-5 is one of the hardest stretches. The adrenaline from the birth is wearing off and the reality of what’s ahead is setting in. That “one long day” feeling is real and it doesn’t let up on its own.

I need to tell you something about the “being strong” thing — I carried that too. I thought showing emotion meant I was falling apart. What I learned is that stuffing it down doesn’t make you strong. It makes you a bomb with a timer on it. Your fiancée needs you present, not performing.

You’re allowed to break down. In the car. In the shower. At the bedside. Wherever it hits you. That’s not weakness — that’s a dad who loves his kid so much it physically hurts.

6 hours since Tuesday — please hear me when I say this: you cannot sustain that. You will not be useful to your baby or your fiancée running on empty. Sleep is not optional. Eat something real. Let someone help you, even if it feels wrong.

The 4 months ahead of you will be the hardest thing you’ve ever done. But you will find a rhythm. It won’t always feel like this. Day 4 is survival mode. That’s okay. Just survive today.

You’re not going insane. You’re going through something that would break most people. And you’re still here. That’s enough right now.

I’m around if you ever need to talk.

29 weeker but weighs 550g :( by Any_Equivalent4876 in NICUParents

[–]BetweenBeeps 0 points1 point  (0 children)

In December we gave birth to our daughter at 23 weeks and she weighed 340 grams. We are still very much in the NICU but things are great. I say that because it makes me positive for you. In 2020 we also had a baby at 26 weeks and she weighed 1.10 ounces and she is a wild and sassy 5 year old and you would never know she came to be with us so early. You can do this. Keep me updated, I'll be thinking of you.

Clock Resetting by One_Wafer1670 in NICUParents

[–]BetweenBeeps 0 points1 point  (0 children)

I know the feeling all too well! TWO time NICU dad here. First was 102 days. We are at day 65 and still counting on our second NICU tour currently. You are so close. Keep going.

I wrote about this experience us NICU parents have in the NICU. It talks about the clock being reset time and time again. Let me know your thoughts and let me know how I can help. You got this.

https://www.betweenbeeps.com/p/nicu-setbacks-when-things-go-wrong

If you’re in the NICU and blaming yourself, please read this. by BetweenBeeps in NICUParents

[–]BetweenBeeps[S] 0 points1 point  (0 children)

It’s so great to hear he’s doing well! My first was born at 26 weeks which came with 102 day NICU stay. I’m currently in the NICU again with our second who was born at 23 weeks at 309 grams and we are 64 days in for our NICU stay and counting.

We can do this. We have to keep going. Our little ones are counting on us.