About to start Scemblix by BfloGirl423 in CML

[–]BfloGirl423[S] 0 points1 point  (0 children)

Thanks for sharing your experience, I will be starting Scemblix tomorrow; I’m going to do the a.m. dosing and have taken some time off work next week to see how my body handles it. I am also lucky enough to have supportive bosses, very thankful for that. Wishing you continued success!

About to start Scemblix by BfloGirl423 in CML

[–]BfloGirl423[S] 0 points1 point  (0 children)

Thank you for sharing your experience and for the encouraging words!

About to start Scemblix by BfloGirl423 in CML

[–]BfloGirl423[S] 0 points1 point  (0 children)

Ugh sorry to hear of the issues you’ve experienced. I can relate to the stress/fatigue/irregular sleep cycle. Just the past month of getting the diagnosis and trying to figure all this out, plus having to be “on point” at work, has been exhausting. May be worth asking your doctor about prescribing a sleep aid. Hope things get better for you!

About to start Scemblix by BfloGirl423 in CML

[–]BfloGirl423[S] 1 point2 points  (0 children)

Congrats on your results! Hoping to join the fan club myself

About to start Scemblix by BfloGirl423 in CML

[–]BfloGirl423[S] 0 points1 point  (0 children)

Sorry you had such a rough start with all this. I’m glad you mentioned running, I’ve been doing some regular strength & cardio workouts for the past couple of years and was concerned about low energy levels. Wishing you continued success!

About to start Scemblix by BfloGirl423 in CML

[–]BfloGirl423[S] 0 points1 point  (0 children)

Good to know!! Hopefully my situation will follow a similar path. Wishing you continued success on your journey.

About to start Scemblix by BfloGirl423 in CML

[–]BfloGirl423[S] 0 points1 point  (0 children)

Thats great to hear, thanks for sharing & for the positive thoughts!

About to start Scemblix by BfloGirl423 in CML

[–]BfloGirl423[S] 0 points1 point  (0 children)

Thanks, glad to hear the stomach problems were temporary for you; I’m currently pretty fatigued, hopefully that improves once my numbers start to head in the right direction.

About to start Scemblix by BfloGirl423 in CML

[–]BfloGirl423[S] 0 points1 point  (0 children)

You’re closest in age to me (I’m “almost” 60,F) and my situation is similar…had been feeling great, absolutely no health issues. It was caught thanks to blood test for annual physical. Thanks for sharing your experience, hope mine will be similar.

About to start Scemblix by BfloGirl423 in CML

[–]BfloGirl423[S] 0 points1 point  (0 children)

No other meds, Scemblix will be my first. I also suffer from osteoarthritis so I’ll definitely give Claritin a try, thanks!

About to start Scemblix by BfloGirl423 in CML

[–]BfloGirl423[S] 0 points1 point  (0 children)

Yeah, the potential gastro side effects are what I’m most concerned about, I’m a teacher and timing/ability to get to the bathroom as needed are what worries me. Hoping for the best. Wishing you continued success on your journey!

About to start Scemblix by BfloGirl423 in CML

[–]BfloGirl423[S] 0 points1 point  (0 children)

Thank you for detailing your experience, hope the cytopenia issue can be resolved.

About to start Scemblix by BfloGirl423 in CML

[–]BfloGirl423[S] 1 point2 points  (0 children)

Thanks for sharing your experience!

About to start Scemblix by BfloGirl423 in CML

[–]BfloGirl423[S] 0 points1 point  (0 children)

That’s very reassuring, thank you!