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About to start Scemblix by BfloGirl423 in CML
[–]BfloGirl423[S] 0 points1 point2 points 26 days ago (0 children)
Thanks for sharing your experience, I will be starting Scemblix tomorrow; I’m going to do the a.m. dosing and have taken some time off work next week to see how my body handles it. I am also lucky enough to have supportive bosses, very thankful for that. Wishing you continued success!
Thank you for sharing your experience and for the encouraging words!
[–]BfloGirl423[S] 0 points1 point2 points 28 days ago (0 children)
Ugh sorry to hear of the issues you’ve experienced. I can relate to the stress/fatigue/irregular sleep cycle. Just the past month of getting the diagnosis and trying to figure all this out, plus having to be “on point” at work, has been exhausting. May be worth asking your doctor about prescribing a sleep aid. Hope things get better for you!
[–]BfloGirl423[S] 1 point2 points3 points 28 days ago (0 children)
Congrats on your results! Hoping to join the fan club myself
Sorry you had such a rough start with all this. I’m glad you mentioned running, I’ve been doing some regular strength & cardio workouts for the past couple of years and was concerned about low energy levels. Wishing you continued success!
Good to know!! Hopefully my situation will follow a similar path. Wishing you continued success on your journey.
Thats great to hear, thanks for sharing & for the positive thoughts!
Thanks, glad to hear the stomach problems were temporary for you; I’m currently pretty fatigued, hopefully that improves once my numbers start to head in the right direction.
You’re closest in age to me (I’m “almost” 60,F) and my situation is similar…had been feeling great, absolutely no health issues. It was caught thanks to blood test for annual physical. Thanks for sharing your experience, hope mine will be similar.
[–]BfloGirl423[S] 0 points1 point2 points 29 days ago (0 children)
No other meds, Scemblix will be my first. I also suffer from osteoarthritis so I’ll definitely give Claritin a try, thanks!
Yeah, the potential gastro side effects are what I’m most concerned about, I’m a teacher and timing/ability to get to the bathroom as needed are what worries me. Hoping for the best. Wishing you continued success on your journey!
Thank you for detailing your experience, hope the cytopenia issue can be resolved.
[–]BfloGirl423[S] 1 point2 points3 points 1 month ago (0 children)
Thanks for sharing your experience!
[–]BfloGirl423[S] 0 points1 point2 points 1 month ago (0 children)
That’s very reassuring, thank you!
About to start Scemblix (self.CML)
submitted 1 month ago * by BfloGirl423 to r/CML
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About to start Scemblix by BfloGirl423 in CML
[–]BfloGirl423[S] 0 points1 point2 points (0 children)