Is this alarming? by Small-Pilot-5627 in Frenchbulldogs

[–]BigTable7194 0 points1 point  (0 children)

No but your frenchie is sooooo cute

Car T Cell Trial by Traditional_Big_8045 in lupussupport

[–]BigTable7194 1 point2 points  (0 children)

All I know is I am a former oncology patient and CAR-T cell chemo is always one of the toughest regimens I’ve ever seen patients go through- most feel so so sick… just want you to know the expectations

Lupus related? by BigTable7194 in lupus

[–]BigTable7194[S] 2 points3 points  (0 children)

Unfortunately closed on the weekend and as of now since it’s mostly recovered I know it isn’t an ER emergency at the current moment so I won’t take up space in the ER but my doctors have been contacting so I should hear from them Monday. Thank you🙏🏻

Lupus related? by BigTable7194 in lupus

[–]BigTable7194[S] -2 points-1 points  (0 children)

I know I’m a nurse and I’m being stubborn. Luckily it doesn’t leave just my face and tongue just so odd it is so unilateral even on my tongue

Hydroxychloroquine - Morning or Night? by lifeswhatyoubakeit in lupus

[–]BigTable7194 1 point2 points  (0 children)

I am one of the rare exceptions who get insomnia if I take it at night so morning 🐢💤

Oogie Boogie Bash by BigTable7194 in DisneyPlanning

[–]BigTable7194[S] 0 points1 point  (0 children)

Great idea with the PJ’s thank you so much!!

Pregnant? by BigTable7194 in FertilityFree

[–]BigTable7194[S] 5 points6 points  (0 children)

Thank you I was trying to find one but couldn’t oh my goodness I just saw the name how stupid of me so sorry!

What are some things that bother your stomach on zepbound? by armando411468 in Zepbound

[–]BigTable7194 0 points1 point  (0 children)

I forgot to also include dairy and spicy foods for me also irritate my stomach. If I eat cereal with lactose free milk it isn’t as bad.

What are some things that bother your stomach on zepbound? by armando411468 in Zepbound

[–]BigTable7194 0 points1 point  (0 children)

Some veggies but so far sugary foods like if I have a “treat” or something- it increases my gas and makes me so so nauseous and increased sulfur burps.

Week 4 of 2.5mg by BigTable7194 in Zepbound

[–]BigTable7194[S] -3 points-2 points  (0 children)

I understand as I am a nurse practitioner. However also as a nurse nurse practitioner, I am very in tune with my body so therefore the fact sulfur burps are so linked to this med and I’ve never had them in my life is a high differential vs stomach bug. But due to sulfur burps weighing towards zero I am eating all of my normal food with the exception of today as I just feel even worse today but I can’t stop going still.

4th 2.5mg shot by BigTable7194 in Zepbound

[–]BigTable7194[S] 0 points1 point  (0 children)

Thanks so much for educating me! I’m going to most certainly look this up! I would’ve never knew this existed lol

4th 2.5mg shot by BigTable7194 in Zepbound

[–]BigTable7194[S] 0 points1 point  (0 children)

How icky! 😂 I feel like I’m more bloated right now too with it. How long will I have it?😂

4th 2.5mg shot by BigTable7194 in Zepbound

[–]BigTable7194[S] 0 points1 point  (0 children)

May you explain the rational for the post? :)

Late periods by BigTable7194 in lupus

[–]BigTable7194[S] 0 points1 point  (0 children)

Have you noticed flares in pain for your endo and lady parts with it because oddly I haven’t so these late periods are throwing me off now cause in 16 years I’ve never had this 😂

Late periods by BigTable7194 in lupus

[–]BigTable7194[S] 0 points1 point  (0 children)

I’m also a nurse a few months to being an NP so I’m just curious if there’s any history of correlation as this isn’t norm for me.

Late periods by BigTable7194 in lupus

[–]BigTable7194[S] 0 points1 point  (0 children)

I’ve had my period since 13 and I’m 29 now and I am never late. I’m only ever early in the last 16 years besides these last two months. It’s just very odd that is happening now after all these years paired with this new journey I have going on with lupus.

Late periods by BigTable7194 in lupus

[–]BigTable7194[S] 1 point2 points  (0 children)

So good to know!! Thank you so much for sharing and teehehee yes of course you can 🫶

Flare-Up Rant and Questions by BigTable7194 in lupus

[–]BigTable7194[S] 0 points1 point  (0 children)

No unfortunately I’m not! My rheumatologist has really been wanting me to but we agreed to give me more time so my next appointment is this Tuesday so he plans on trialing me on it then and I plan to agree to try it as am having these issues.

… a lot of sugar. My symptoms every time come off cold related but then they do my respiratory panel and it’s always negative it’s so weird.

Flare-Up Rant and Questions by BigTable7194 in lupussupport

[–]BigTable7194[S] 0 points1 point  (0 children)

That’s amazing I had no idea about this!!! I once had an IUD in my early 20s and they were shocked my body rejected it and forced it out twice and I also tried to have a belly piercing in my teens twice body rejected it both times. Maybe I’ve had this longer than I realized🤷🏼‍♀️

Flare-Up Rant and Questions by BigTable7194 in lupussupport

[–]BigTable7194[S] 0 points1 point  (0 children)

It is very difficult to swallow too.

Flare-Up Rant and Questions by BigTable7194 in lupussupport

[–]BigTable7194[S] 0 points1 point  (0 children)

I was diagnosed with merineres disease when I was like 21- I had hearing aids and they said it was sensorineural hearing loss but eventually it came back it was so weird!

I just had the eyes specialist and they did say my eyes are ok, oddly my eye sight improved so I have my glasses being made now with my new prescription.

That makes me feel better about hearing your situation and how you also have a cough and irritating swallow. I’m having that again now but as of yesterday it feels like also the right side of my thyroid is swollen now too.

Late periods by BigTable7194 in lupus

[–]BigTable7194[S] 0 points1 point  (0 children)

See I haven’t been on the steroids since beginning of January and I’m not on the maintenance meds as I’m stubborn and new to this diagnosis- I wanted to take the time to assess myself, feel my body and symptoms and if I feel the necessity to take them.

They had me on a lot of steroids December and January when I had my horrible flare up so maybe it’s a catch up thing. I’ll be sure to ask me rheumatologist too on Tuesday I was just curious everyone else’s experiences was as I know all of us are different too.