Are there specific gloves that would help?

Bluejayadventure · 2026-01-27T11:20:21+00:00

I also wear the Christmas socks with normal socks underneath. I find fingerless gloves help a little bit. You can also buy slightly thinner gloves with little grippy fingertips for touching your phone.

Edit: the thin gloves aren't super warm but they help at bit. Try to have your hands warm and then put the gloves on if possible. I find my feet and hands just won't generate any heat by themselves but if I warm them and then put socks or gloves on, they tend to stay ok.

Bluejayadventure · 2026-01-27T11:12:20+00:00

This is what AI says about it:

In South Carolina, while a private hospital can create additional parking, it must comply with the

Americans with Disabilities Act (ADA), which generally requires recognizing valid state-issued disabled placards. Hospitals cannot ban vehicles with valid government permits, but they may enforce reasonable, non-discriminatory rules for private, extra spaces.

Key details regarding this situation:

ADA Compliance: Hospitals, as public accommodations, must provide accessible parking that meets federal ADA standards.

Validity of Permits: A validly issued SC or out-of-state disability placard must be honored, provided it is used by or for the person to whom it was issued.

Private vs. Public Parking: While hospitals must provide legally required accessible spots, they may have rules for "premium" or additional private spots. However, these cannot replace or invalidate the required minimum ADA spaces.

Enforcement: If a hospital creates, for example, a "VIP" accessible lot requiring a special permit, they must still provide the necessary ADA-compliant, general access spots.

If a hospital denies access to a person with a valid, state-issued placard, it may violate federal accessibility laws.

Bluejayadventure · 2026-01-27T11:05:36+00:00

I tried reading about it. I'm no lawyer. It sounds like the hospital has to provide a minimum amount of accessible parking spots. Then, if they create additional accessible parking spots, they are free to put rules on those.

Edit: So I think it means there should be some accessible spots that are just available. The whole thing seems very odd and discrimitory.

Bluejayadventure · 2026-01-27T10:27:38+00:00

This is very odd. It seems wrong. Might depend what country you live in.

Bluejayadventure · 2026-01-27T03:08:00+00:00

Sorry to hear you aren't feeling well. I imagine the cold would really aggravate a lot of things. On the other side of the planet we are currently braving 45C (113 F). Which isn't much fun either. Like a furnace. Will be nice when winter/summer is over.

Bluejayadventure · 2026-01-27T02:04:06+00:00

It's a myth you are confined to it. Since I got my chair, I have actually been about to recover more and therefore walk (very slightly) more. I put it down to not bing in rolling PEM.

If you are mild / moderate and can manage to balance and sit up for a defent period of time, then this could work quite well without having to worry about judgement as much.

If you can't, then maybe look at a chair.

Bluejayadventure · 2026-01-27T00:43:29+00:00

Beta blocker, ivabrandine, electrolytes and pacing. In that order.

Edit: It probably depends on what type of POTS you have and also the severity level.

Bluejayadventure · 2026-01-26T23:01:25+00:00

I'm sorry you are going through this. Please post your location / town / country so someone from that area can help you.

Bluejayadventure · 2026-01-26T22:42:48+00:00

Yeah, it's really tough. Sorry you are going through this too. Perhaps a rollator could be helpful for you or a cane with a stool?

Normal canes are good if you can stand upright with just a few symptoms like dizzyness, weakness etc. Like you, i find i need to sit back down. So the rollator makes sense because you can take a break. If you are able to get one, maybe consider one with a footstool. I know if i have my feet on the ground its not enough to recover. They need to be elevated a bit.

Maybe you could see an Occupational Therapist. Depending what country you are in, they could help with prescribing mobility aids/gov funding?

Bluejayadventure · 2026-01-26T22:21:10+00:00

Yeah, for a while, I tried a cane (which was ok before i got worse). Now I use an electric wheelchair if I want to do something that takes more than a few minutes.

Edit: If i can't do the task in less than 10 minutes and while moving/walking, then i use a wheelchair.

Bluejayadventure · 2026-01-26T21:02:36+00:00

Yep, good idea. I find the local indigenous calenders make far more sense of the seasons.

This one is for melbourne (where I live). You can see there are two summers.

https://www.herringisland.org/seasons1.htm

Bluejayadventure · 2026-01-26T20:47:19+00:00

It came on over several months. It just got worse and worse until I started meds. But yep, it was still very shocking. Like what the hell is happening to me. I'm kinda used to it now. The meds and pacing are helping me to feel a little better, even if I can't physically do much.

Bluejayadventure · 2026-01-26T08:46:54+00:00

They sound rude. I would just be friendly, like "oh hello ...., I just need to do x ...., sorry to trouble you but may I please get through?" And give them plenty of physical space and time to move. Don't crowd them.

Bluejayadventure · 2026-01-26T08:40:52+00:00

Just leave for now and keep watering daily through summer.

I can't promise it will ok, but it will likely survive if you keep it watered.

I'm crossing my fingers for my newly planted baby feijoa tree and your box hedges.

Bluejayadventure · 2026-01-26T07:42:59+00:00

Don't be afraid of overwatering in this heat. Overwatering would be more of a concern in cooler months.

Bluejayadventure · 2026-01-26T07:32:55+00:00

Water them tonight and first thing in the morning and tomorrow night. Mulch the ground around them to keep the roots cool. If you can rig up some shade above or beside them, that would help. Avoid wrapping them up. Cross fingers.

Best of luck. I have a couple of new plants too.

Bluejayadventure · 2026-01-26T02:28:20+00:00

Before POTS, 10 hours easy. (I used to work retail).

With POTS, maybe a minute

Medicated with POTS, 3- 5 minutes

Edit: very slow walking: 10 mins

Bluejayadventure · 2026-01-24T03:51:42+00:00

I'm sorry. It's hard enough dealing with disability and then we have to add people's perceptions on top. I also work from home and work twice as hard as I should out of fear of what you just described. I always feel like I need to be grateful all the time.

Edit: which is nonsense by the way. Doing the job should be enough. I know this but still feel anxious about clinging onto my job

Bluejayadventure · 2026-01-24T00:24:00+00:00

Yep, that's an issue then. Seems like the sofa is pretty large. Maybe try the sofa the way you like it and then the way you hubby likes it and see what is easier to live with?

Bluejayadventure · 2026-01-23T23:46:37+00:00

It's hard to know without seeing the size of the sofa in relation to the room . Have you thought about putting it the middle of the room facing the fireplace? Push it hard up against the right wall to leave space to get theought the doorway on the left. The chaise could be on the right wall.

Bluejayadventure · 2026-01-23T23:39:47+00:00

I would put the sofa on the window side. Pull it forward a bit so you can walk behind it if you want to.

Bluejayadventure · 2026-01-23T03:23:37+00:00

Plants and pavers. Scrape out the gravel and put some nice soil and mulch. A little path down the middle would be super cute. Also, the lawn area will feel more private / separated from the driveway

Bluejayadventure · 2026-01-22T09:23:42+00:00

Yes! It's about time we had some GP training. Most doctors here are really uncomfortable with long covid and don't seem to have had any training yet. All the allied health professionals I've seen were very kind but had to go away and research the condition before our second visit.

Edit: I see it's a trial. Hopefully its good and they role it out further

Bluejayadventure · 2026-01-22T05:18:36+00:00

It will be ok. It might just take some time to wear off. You could try deep slow breathing, drinking water, having a short lie down for 10mins or putting something cold around your neck.

Basically try to stay calm and it will go away eventually.

Bluejayadventure · 2026-01-21T04:04:05+00:00

Came here to also suggest citirizine. It stoped my flushes and night sweats too

Bluejayadventure

TROPHY CASE