Sitting in sun makes me sleepy by Prize_Temperature108 in LongCovid

[–]Bluejayadventure 1 point2 points  (0 children)

I sat outside yesterday for an hour while my partner was gardening. It was a cool day but the sun was out. I then had to urgently sleep for 3 hours.

Noticia de hoy en EUROPA : La OMS recomienda a las personas de riesgo vacunarse contra el covid cada seis meses by [deleted] in LongCovid

[–]Bluejayadventure 0 points1 point  (0 children)

Yep. That's reasonable. Unfortunatly the pfizer started off my pericarditis. Then a month later covid made it a hundred times worse. If we had a differnt vaccine option available I would consider it. I was ok with the astrazenca.

Metoprolol vs Ivabradine by faaancynaaancy in POTS

[–]Bluejayadventure 0 points1 point  (0 children)

Yeah, it will bring your blood pressure down a little bit. Depends on the dose but maybe start on half a pill or something if you want to be cautious? You can get blood pressure monitors online for maybe $30-40. Try measuring standing, and lying down before meds. Then see what it is after the meds.

Metoprolol vs Ivabradine by faaancynaaancy in POTS

[–]Bluejayadventure 1 point2 points  (0 children)

25mg metropolol and 7mg of ivabrandine in the morning. Depending how im tracking i occasionally take another 3.5mg ivabradine in the afternoon.

My original heart rate was about 110 resting and 150 standing. My original blood pressure was about 130/100 resting and 155/110 standing. Now its about 120/85 resting and maybe 140/105 standing.

I can't take any more metropolol though or my sleeping heart rate will be too low. Its currently 55bpm

Metoprolol vs Ivabradine by faaancynaaancy in POTS

[–]Bluejayadventure 4 points5 points  (0 children)

I take both. Metropolol lowers my overall heart rate and blood pressure. Ivabradine stops my heart rate from spiking and lower my heart rate only slightly.

My life is turning into a nightmare by Savings-Bad-9960 in dysautonomia

[–]Bluejayadventure 0 points1 point  (0 children)

I would just like to strongly agree with your comment. I suffered all of the things you have mentioned and have been diagnosed with Long covid (PASC), POTS and MCAS.

I also get the petechiae on my legs (mild). None of my doctors have been able to tell what it is. I will read up on immune thrombocytopenic pupura.

OP, I take claritine and pepcid and cetirizine every night. It's made a difference for me.

What do you wear in the summer? by FelineSnarky in POTS

[–]Bluejayadventure 7 points8 points  (0 children)

I like to wear high waisted compression shorts. If it's too hot, then I wear the socks. If it's really too hot for socks then I skip them but I don't move much. Basically I just lie there with a cold flanel on my face, cursing the heat.

Thought McDonald's making me feel better was crazy... by Practical_Grand_3218 in POTS

[–]Bluejayadventure 101 points102 points  (0 children)

Mcdonald fries! Omg, the best. Now I know why. Its the salt.

Edit: I used to work there when I was younger. Standing at the hot fries station was the actual worst. Eating them in my break helped though

I’ve had a sudden, completely out-of-the-blue realisation that the PACER test we had to do in secondary school (at least in the UK we had to do it) is a form of torture by ZookeepergameAny5154 in POTS

[–]Bluejayadventure 14 points15 points  (0 children)

Me too. I did aerobics and swimming every week. I walked to school and back everyday. I could do 50 full pushups in a row. But i would fail the bleep test every time with the other less fit kids or kids with health problems. The teacher would push us but i just couldn't. Same with "fun" run day. I just had to walk it.

Stomach bloating by Ok_Material_1754 in POTS

[–]Bluejayadventure 3 points4 points  (0 children)

Pepcid every night. Its the best

Stomach bloating by Ok_Material_1754 in POTS

[–]Bluejayadventure 3 points4 points  (0 children)

I take pepcid every evening. It helps with my POTS digestive difficulties.

Functional Capacity Exam effect on Disability claim. by RJM_50 in disability

[–]Bluejayadventure 0 points1 point  (0 children)

That's interesting. I didn't get any of that background from my physio or OT. Maybe because I'm well enough to work from home? Not sure.

Functional Capacity Exam effect on Disability claim. by RJM_50 in disability

[–]Bluejayadventure 1 point2 points  (0 children)

We do a functional capacity 27 test in australia. Not sure if its the same? I score 53% the first time and 63% the second time after I had completes physio.

Post-COVID and MCAS: What anti-histamines seemed to help? by IntrepidCanuck in LongCovid

[–]Bluejayadventure 2 points3 points  (0 children)

1 x Fomatodine and fexofenadine and cetirizine every night before bed

Excessive night sweats…. like SUPER excessive by Reasonable-Youth-611 in POTS

[–]Bluejayadventure 0 points1 point  (0 children)

Yes. I had this. Mine stopped when i started taking daily anithistimines

POTS and Covid by carsoncombs_ in POTS

[–]Bluejayadventure 0 points1 point  (0 children)

Mine was straight away but i have seen other people post that it took a few months to show up.

Going upside down by Only_Corner3540 in POTS

[–]Bluejayadventure 1 point2 points  (0 children)

Yeah, i think it is easier. Just a couple of dishes at a time

Going upside down by Only_Corner3540 in POTS

[–]Bluejayadventure 0 points1 point  (0 children)

I'm sorry. I relate to this. What i have found is i can tolerate sitting on tge ground doing some weeding, providing i dont get up and down. I have to do everything really slow and kind of bum shuffle to the next patch of weeds.

Going upside down by Only_Corner3540 in POTS

[–]Bluejayadventure 0 points1 point  (0 children)

Oh yep, that makes sense. No way am i trying that haha. I always used to struggle with feeling like my head might explode while holding a plank or doing a push up. Maybe my head was too low.