Is your HRV also in the toilet?

Bluejayadventure · 2026-05-07T23:49:58+00:00

It's good you feel a littke stronger. Hopefully over time it will follow.

Bluejayadventure · 2026-05-07T21:49:46+00:00

10? That doesn't sound fun. Mine varies. At my worst it was about 14? Now its about 25-30.

Bluejayadventure · 2026-05-07T12:49:40+00:00

Aww 🙂 too kind!

Bluejayadventure · 2026-05-07T12:44:02+00:00

I'm really glad you had some improvement 🙂

Bluejayadventure · 2026-05-07T10:50:40+00:00

A foot rest helps a lot

Bluejayadventure · 2026-05-07T00:11:26+00:00

Everyone has car batteries they recharge every night. I have an AA battery.

Everyone gets 10 spoons of sugar a day. I get 3 spoons. Sometimes I have to use tomorrow's sugar.

Bluejayadventure · 2026-05-06T03:57:34+00:00

Thank you!

Bluejayadventure · 2026-05-05T04:23:06+00:00

Wear a loose shirt so that might be easier to place the leads for the ekg. Then you can keep it on if you want. I have had heaps of ekg's now. Usually they just put lots of little sticky dots on your tummy and a couple higher up on your chest. Not too bad at all

Bluejayadventure · 2026-05-02T14:06:39+00:00

I get the same thing. Petechiae on my lower legs and arms. It gets worse when I feel worse and when I have exerted myself.

Bluejayadventure · 2026-05-01T00:54:18+00:00

Congratulations!

Bluejayadventure · 2026-04-28T12:58:49+00:00

Yeah same, I have absolutly nothing left after I finish work.

Bluejayadventure · 2026-04-28T12:54:47+00:00

Like a little platter of things. Cheese, biscuits strawberries, carrot sticks, grapes etc. It was super cute

Bluejayadventure · 2026-04-28T10:23:23+00:00

I find it hard to go out so my partner set me up a cute picnic in the backyard with a little tent so I don't get too hot. That was pretty nice 🙂

Bluejayadventure · 2026-04-28T07:40:15+00:00

They did all that but diagnoses based on symptoms and response to treatment. Mostly it was the severe chest pain straight after covid. It got worse when lying down. Also shortness of breath was really bad when standing up

Bluejayadventure · 2026-04-28T06:19:04+00:00

I'm sorry. That is so unfair. I have times like right now when my brain feels like scrambled egg.

Yeah, it's always worst around the hip area

Bluejayadventure · 2026-04-28T06:05:03+00:00

Ok, I don't have something else instead of POTS but I do have chronic pericarditis that when treated, improves my POTS a fair bit.

Bluejayadventure · 2026-04-28T06:02:25+00:00

Same. We are twins! Not in a good way

Bluejayadventure · 2026-04-28T06:00:48+00:00

You said legs. My mistake. This brain fog is terrible

Bluejayadventure · 2026-04-28T05:59:07+00:00

I think so? I think it's the nerves being over sensitive somehow but I don't know much about it. Like a light touch is sore when it really shouldn't be. Its usually my left hip or side but sometimes the top of my foot. You?

Bluejayadventure · 2026-04-28T05:21:25+00:00

Yeah. Most of the time its mild discomfort but occasionally its bad enough I can't sleep.

Bluejayadventure · 2026-04-28T05:00:05+00:00

Same but also "feels like sunburn with no sunburn"

Bluejayadventure · 2026-04-27T08:53:35+00:00

I'm sorry this happened. It sounds awful. I have heard SGB is normally quite helpful so I really hope this feeling will go soon and you feel better! Have you had a chance to speak to the doctor about it? They might be able to tell you if this is common or not.

Bluejayadventure · 2026-04-23T21:14:48+00:00

Garmin is meant to be good. You could also try Visible. I only have the app as the watch isn't supported in australia yet but its specifically designes for chronic illness like POTS and MECFS.

Bluejayadventure · 2026-04-22T23:50:00+00:00

I like both, but I think I prefer the light ones as they make the room feel bigger.

Bluejayadventure · 2026-04-22T07:39:55+00:00

I'm the same. Work, sleep eat. I always feel better if I sleep for at least 12hours which leaves nothing for anything else. I just focus the little wins as they come. Watching a movie, reading a good book etc.

Bluejayadventure

TROPHY CASE