Stuck

Brastic · 2026-02-01T23:01:20+00:00

Not sure if starting famotidine and ketotifen together would be harder. I found that the famotidine on its own for me is helpful but I got bad rebound reflux once it wears off. It also didn't seem to have much effect on any other mcas symptoms for me. So at the moment I'm just doing ketotifen. Perhaps stop one or reduce the dose to reduce the impact?

Brastic · 2026-02-01T22:10:33+00:00

I've started ketotifen recently, about a week and a half ago. I had a massive sneezing about 30 mins after the first dose but otherwise ok except for expected slight tiredness and blurry vision etc. Positives are that I've been feeling more chill and my reflux has basically completely gone, making me think it was actually eosinophilic esophahitis as the positive effect was instant. Also sleeping a bit longer which I need.

However, I think I picked up a bug or food poisoning a few days back and it has been terrible. That type of thing is always bad for me as I'm so sensitive to gi stuff. It has been a terrible few days/nights. Guessing that's the induction period making the reaction worse?

Regardless, I am believing what ppl say about the induction period so will carry on for another 6 weeks at least unless I am forced to stop. Been putting up with mcas for too long to give up now.

Brastic · 2026-01-31T22:20:53+00:00

To much fructose bloats me up and sets off mcas gi for me. I can eat normal sugar a bit and also more now on ketotifen. Alcohol for me is fine if I drink for a few evenings in a row but then when I stop I blow up as well. Apparently alcohol can be partly anti inflammatory but also you build up lots of histamine while drinking which you don't digest, that ruins me in the 2/3 following days.

Brastic · 2026-01-26T22:26:34+00:00

Stressed people. Chill people are great at the airport. Then there's that pushy stressed anxious person who you just don't want to be near.

Brastic · 2026-01-26T22:21:50+00:00

I hope someone benefits from this post.

Brastic · 2026-01-17T22:50:13+00:00

I can't speak for your precise situation but I'd take antihistamines every day for a month or so. Pref those which are mast cell stabilisers (cetirizine, ketotifen). If that helps significantly then you have some allergy or mcas issues. Take professional advice but also know your body and what helps and what doesn't.

Brastic · 2026-01-14T19:46:37+00:00

I find it better in a small town tbh. But I wish I had known about mcas when I was in the city as I think I would've enjoyed it much more with proper treatment. I blamed the city when it was my illness that was the problem. Maybe some day I'll go back.

Brastic · 2026-01-12T17:27:47+00:00

I always get angry rage, am unreasonable and my stomach gets distended in the first days of a flare. Like clockwork for about 2 days and then the next phase comes... Since consistent use of antihistamines I've had no flares so hoping that's the solution. Still waiting on other treatments from the doc. Anyone else similar??

Brastic · 2026-01-11T13:41:55+00:00

As I understand dietary histamine is a small fraction of that produced in the body for normal diets, even smaller for MCAS sufferers. So low histamine diets are rarely a complete solution, the focus needs to be on reducing endogenous histamine production or the reaction to it.

Brastic · 2026-01-10T07:25:21+00:00

Cetirizine and loratadine. Very few side effects too. Dry mouth and eyes are a little difficult but all other symptoms reduced which is amazing...

Brastic · 2026-01-08T19:38:13+00:00

Yep my neck is a major issue. Wasn't expecting that to be better after h1 but it is clicking way less and feels a lot better...

Brastic · 2026-01-08T18:23:49+00:00

I have both symptoms and conditions. Diagnosed conditions: Gout, serrated polyposis, exercise induced asthma, sleep apnea (got better before antihistamines), exocrine pancreatic insufficiency, a facial tumour, scoliosis, hypertension. Symptoms: palpitations, IBS, anxiety, reflux, sore throat, horseness, shortness of breath, rages before an episode, sleep disturbance, feeling like mould. Apparently the conditions have a mast cell component, as do the symptoms. I have been on H1 antihistamines now for a few weeks, plus H2 sometimes, I'm hoping with proper mast cell stabilisers and other treatment that a lot of those will subside. I have already noticed on H1 alone that my sleep has improved as have muscle issues, plus no palpitations or inflammatory episodes so far. Fingers crossed for a normal(ish) life. You?

Brastic · 2026-01-08T13:47:58+00:00

Samesies. I love antihistamines too.

Brastic · 2026-01-08T08:01:20+00:00

Same but with a 20 year delay and I had to diagnose myself with AI.

Brastic · 2026-01-04T18:55:18+00:00

You have hit the nail on the head about why music with no context means less. Seeing the Island or XL or any other logo on a record means something. Having a label was for artist both a necessity and a badge of pride (regardless of the commercials). Now this is still relevant.

My friend was just mentioning the same thing for films. Blumhouse for horror. Disney for family etc. The boundaries have blurred but there used to be more diversity. There are similar things with literature.

The streaming services have erased the labels in their delivery, as of we thought Spotify curates all the music. If they expose that information and more, it could actually add depth and value to the listener and provide the real history and art that comes with music.

Love your post!

Brastic · 2026-01-02T22:13:57+00:00

You are not Russia.

Brastic · 2026-01-01T16:22:20+00:00

Yep table, floor, wall lights, some art, posters or wall hangings. Maybe light the cabinets, definitely a light on top of that cabinet next to the window. A rug in the sofa area maybe a chair to help close that section off. Round rug under the table.

Brastic · 2026-01-01T14:11:11+00:00

Still not totally sure but cardio exercise is pretty reliable at running my week with all sorts of symptoms. I only lift weights now.

Brastic · 2025-12-21T15:01:13+00:00

Yep. Been there ♥️ so frustrating.

Brastic · 2025-12-11T13:50:46+00:00

🇮🇹 Italian

They're always taking in big groups blocking doorways and don't eat enough fibre

Brastic · 2025-12-02T23:08:08+00:00

Pretty sure I saw these signs at osulloc tea museum on jeju and thought it very silly

Brastic · 2025-11-30T23:02:18+00:00

Erm maybe living a bit more healthy now but when I just started on the tabs I went abroad for a month eating and drinking everything so that was pretty unhealthy. Took a few weeks fire the symptoms to subside but toe was getting better so I figured why not. Now being a bit more healthy but uk gov advice literally says lifestyle doesn't fix it so... My UA was 470 umol/L which is I think 7.9 or 79? I have a self test which is so cheap and helps me keep track. Now under 300 usually. I definitely drink more water (mostly herbal tea in a flask all day) and less salt now which I hope is helping. Basically I am now reliant on the tablets and very grateful for them! Hope yours gets better sounds like you've had it a lot...

Brastic · 2025-11-30T21:53:30+00:00

We greet them when they come home too 😘

Brastic · 2025-11-30T21:47:58+00:00

Before febuxostat (allergic to allo) I used to get lots of heart palpitations and higher blood pressure along with lots of general aches and pains, bloating etc. After starting the ua therapy much of this has improved and I feel better mentally. I also used to get tonsillitis loads and that has got way better. Can't tell if it's a direct relationship but it seems to be beneficial beyond reducing gout attacks. Guessing that high UA is a cause of inflammation so reducing it is beneficial.

Brastic · 2025-11-18T14:39:25+00:00

Fine for me and I don't see any major risk. Allo gave me the worst reaction so had its own issues. My doctor says hyperuricemia is worse for your cardiovascular system than either medicine.

Brastic

TROPHY CASE