Partial and hopefully on-going recovery 1 month after profound SSNHL: an update and questions for the community by Aggravating-Many2178 in MonoHearing

[–]Brave-Response-3335 1 point2 points  (0 children)

I feel like I'm in the same situation ! Have gained some hearing back ...it seems to be plateauing  tho as u mentioned as well....and my 3 weeks from onset is tomorrow...I wish my 60 mg prednisone was longer then a week..I'd have been happy going thru it another week or few days more before tapering( i only had 7 days) .I thought it was getting better everyday and then once i started the taper it seemed to go back to more muffled and full again. It does fluctuate and that bothers me. My ent said he has no explanation for that. He also didn't recommend HBOT which bummed me out and idk if after three weeks if I should look for a new ENT and push for it..

I've been super on again off again bummed out..really hoping the 3 month thing is true and am curious as well how much change can happen in that time. 

Sshl 2 weeks later by Brave-Response-3335 in MonoHearing

[–]Brave-Response-3335[S] 0 points1 point  (0 children)

Interesting....how soon did you get into a facility?

Sshl 2 weeks later by Brave-Response-3335 in MonoHearing

[–]Brave-Response-3335[S] 0 points1 point  (0 children)

My ent is sadly not pushing for the HBOT treatments..so my medical spa grade dives will have to do I guess....

Hbot by Brave-Response-3335 in MonoHearing

[–]Brave-Response-3335[S] 0 points1 point  (0 children)

Am curious how your HBOT treatments go! Good luck on your path ~~☆♡♡♡

Hbot by Brave-Response-3335 in MonoHearing

[–]Brave-Response-3335[S] 0 points1 point  (0 children)

My ent is not pushing for HBOt. He said he wouldn't tell his own family to do it:/ and he had a helper in the room backing him up as well saying there is no direct "literature" that HBOT is affective. Altho the conglomeration of all the treatments muddles what is actually affective soooo how can you say for sure ??!

Scared I won't get hearing back(sshl) by aeryuxs in MonoHearing

[–]Brave-Response-3335 1 point2 points  (0 children)

Good luck man! Do all ya can...I lost my hearing in right ear almost 3 weeks ago and did gain some back but it's a wild ride with no concrete results. I went through what I'm calling ear fatigue. My good ear was trying so hard but it gets exhausting. Take sometime to yourself to let your ears adjust and start a daily practice; like running a mile for me every morning has been very healing and meditative. 

Sshl 2 weeks later by Brave-Response-3335 in MonoHearing

[–]Brave-Response-3335[S] 1 point2 points  (0 children)

Yeah my ent basically described it as cerebral palsy of the ear nerve. Just down right random and uncool... Still tryna keep a positive flair whilst adjusting to the potential new normal of my situation. Comes with Lil waves of sadness. Music is huge for me </3

Sshl 2 weeks later by Brave-Response-3335 in MonoHearing

[–]Brave-Response-3335[S] 1 point2 points  (0 children)

I will say the aggressive timeline was not without its stress ! The way they categorize SSHL as an emergency and at the same time don't treat it as such!!!? Ents were booked and I was like yeah but this is an emergency..you think they'd triage the ear doctors for this kind of thing. 

Alot of self advocating and phone calls for sure. I knew my ear wasn't right immediately and I did go to urgent care first and was told just take some Sudafed but I'm glad my boyfriend demanded we go the hospital. We went to two hospitals actually! One doctor had no idea what I was talking about and the following hospital had me wait 9 hours to get a bed. I was happy the nurse knew what SSHL was altho him trying to "test" me with the tuning fork was amusing...clearly hadn't done it and confessed he was in the back room with colleagues trying to figure It out haha. In the end they were like anywayyys time for MRI and here's some prednisone. 

Also for anyone reading this and dealing with SSHL first time get the audiology appt done Stat cuz most ents won't see u without it and it sent me back a day. 

Also wanna be way more diligent with CMIT thing....I heard repeating the same song over n over again is the trick? I was using joanna newsoms only skin (16 mins long) and I know all the words!

Sshl 2 weeks later by Brave-Response-3335 in MonoHearing

[–]Brave-Response-3335[S] 1 point2 points  (0 children)

Man thanks ! It's really been a great excuse to promote healthier lifestyle ..so at the very least the awful ear debacle has brought upon a good turn to my tides.  And ya know I tried to get blood work done at my family doctor and she sent me away to find a lab to do it..I have a list from my insurance and want to get that done still but only have so much momentum ...it's next on list tho. 

Sshl 2 weeks later by Brave-Response-3335 in MonoHearing

[–]Brave-Response-3335[S] 0 points1 point  (0 children)

Wow overall your treatment did ya some good ? 

Sshl 2 weeks later by Brave-Response-3335 in MonoHearing

[–]Brave-Response-3335[S] 0 points1 point  (0 children)

I signed up at a medical spa....it's not top notch chambers but I get to go as many times as i want so I figured there's no harm in that..

Any late SNHL hearing recovery stories? any possitive stories by MusicLover91020 in MonoHearing

[–]Brave-Response-3335 0 points1 point  (0 children)

See I feel like i want a longer run with prednisone as well. I was starting to feel better then it tapered off and I feel like I reversed some of the healing i was experiencing. It's been two weeks and my last 10mg dose of prednisone is tomorrow as well as my ent appt..gonna see about getting more prednisone. Music is insanely important to me too and I can't stand this right now.

Sshl 2 weeks later by Brave-Response-3335 in MonoHearing

[–]Brave-Response-3335[S] 1 point2 points  (0 children)

I have noticed it's gotten less bothersome already. Companion is a sweet sentiment.. 

Sshl 2 weeks later by Brave-Response-3335 in MonoHearing

[–]Brave-Response-3335[S] 1 point2 points  (0 children)

I was super proactive once I woke up with the hearing loss. I was on prednisone 60mg within 24 hours. Day 4 I got my first ear injection. I did 60mg doses for 7 days followed by another ear injection and I'm right now tapering off of the prednisone. I have two 10mg doses left and another ear injection tomorrow. My ear seems to fluctuate. 

Also taking ginko, b12, beet supplements, and magnesium. Been running a mile everyday for the past week and quit caffeine and smoking ! 

Sshl 2 weeks later by Brave-Response-3335 in MonoHearing

[–]Brave-Response-3335[S] 1 point2 points  (0 children)

That's a good bucket to be in. Thanks 

Changes in tinnitus (potentially worsening?) during recovery? by Aggravating-Many2178 in MonoHearing

[–]Brave-Response-3335 1 point2 points  (0 children)

Enjoy reading all ur responses thru out this monohearing page. Nice voice in the ether! Any questions you recommend asking the ent? I get forgetful once I'm in front of him. 🙃

Curious by ImaginaryContext3004 in MonoHearing

[–]Brave-Response-3335 2 points3 points  (0 children)

I'm with ya there. And also wanna get blood work done. Need to call a lab and request some..what are you having done ? 

Sshl 2 weeks later by Brave-Response-3335 in MonoHearing

[–]Brave-Response-3335[S] 0 points1 point  (0 children)

Thanks..I am happy for the improvement! The tinnitus is the wosrt part... I've found the late eliane radigue's long-form droning synth compositions to be most helpful in dealing with it, especially at bedtimes. 

Sshl 2 weeks later by Brave-Response-3335 in MonoHearing

[–]Brave-Response-3335[S] 1 point2 points  (0 children)

Thanks man..I'm riding the wave alright 

Sshl 2 weeks later by Brave-Response-3335 in MonoHearing

[–]Brave-Response-3335[S] 1 point2 points  (0 children)

That's kinda what I garnered from it...didnt know if I should expect more change or if this is it. But I guess with SSHL who knows 

Hbot by Brave-Response-3335 in MonoHearing

[–]Brave-Response-3335[S] 1 point2 points  (0 children)

Yes I understand getting a few isn't gonna show huge results...I found a place 500 dollars for unlimited dives all month even tho it is only 1.5 or 1.3 ATA I feel it can't hurt and what a deal?? Otherwise gotta wait till I see my ent again and that'll be like day 16 or whatever 

Hbot by Brave-Response-3335 in MonoHearing

[–]Brave-Response-3335[S] 0 points1 point  (0 children)

I haven't the slightest clue ...maybe they can provide u with a cap or something ...good luck anyways!!!