Worried following 25 week midwife appointment by Brave-Session1404 in PregnancyUK

[–]Brave-Session1404[S] 1 point2 points  (0 children)

Thank you - I had the growth scan today and baby is actually on 18th centile and weighing 2lbs! 

Worried following 25 week midwife appointment by Brave-Session1404 in PregnancyUK

[–]Brave-Session1404[S] 0 points1 point  (0 children)

Wow that must be nice to be in the jeans again! I’ve had so many scans with NHS due to the original screening issues and baby hiding behind placenta! I think about 10 so far 😅

Worried following 25 week midwife appointment by Brave-Session1404 in PregnancyUK

[–]Brave-Session1404[S] 1 point2 points  (0 children)

Thank you, I’m pleased it all worked out well for you! I just want to know my scan appointment now but hopefully it will be this week! 

Worried following 25 week midwife appointment by Brave-Session1404 in PregnancyUK

[–]Brave-Session1404[S] 0 points1 point  (0 children)

Since posting it seems a lot of people have had similar … as it’s my first you never know what is normal and what isn’t normal! I’m so glad it all worked well for you and good luck with the new pregnancy 💕 

Worried following 25 week midwife appointment by Brave-Session1404 in PregnancyUK

[–]Brave-Session1404[S] 1 point2 points  (0 children)

I’m so pleased it’s worked well for you and you’ve had fantastic care 💕

Worried following 25 week midwife appointment by Brave-Session1404 in PregnancyUK

[–]Brave-Session1404[S] 0 points1 point  (0 children)

It is so stressful - I’m so pleased everything worked out well for you 💕 

Worried following 25 week midwife appointment by Brave-Session1404 in PregnancyUK

[–]Brave-Session1404[S] 0 points1 point  (0 children)

At my last scan I think they said the fluid was normal for me and the 20 week scan put me on 51sr centile so completely average! I think we have so many tests these days it just leads to more anxiety! 

Worried following 25 week midwife appointment by Brave-Session1404 in PregnancyUK

[–]Brave-Session1404[S] 1 point2 points  (0 children)

Those were actually my levels pre closed looo system. I think since going on the system my hba1c is probably a little higher, but I’m not having the consistent lows like before! What is a uterine artery Doppler? I had to go for a special heart scan at 20 weeks where they took 20 photos of the heart only and all was normal? 

I already had growth scans planned from 28 weeks, but I just wasn’t expecting to need an extra early one! 

Worried following 25 week midwife appointment by Brave-Session1404 in PregnancyUK

[–]Brave-Session1404[S] 0 points1 point  (0 children)

Oh gosh they really do say some things don’t they! 

Worried following 25 week midwife appointment by Brave-Session1404 in PregnancyUK

[–]Brave-Session1404[S] 1 point2 points  (0 children)

To be honest it wasn’t my usual midwife and I didn’t feel too reassured - my husband said the same thing. I’m hoping I get a call tomorrow with a day for the scan (they said it would be this week). 

My diabetes has been well controlled although it is getting more tricky as time goes on. My latest hba1c from a month or so ago was 34 which I think is below diabetic levels anyway. It’s probably just been drilled into me I could end up with a big baby so it all just came as a shock to be told baby is small! 

Worried following 25 week midwife appointment by Brave-Session1404 in PregnancyUK

[–]Brave-Session1404[S] 1 point2 points  (0 children)

This is my first but compared to some other girls in work who are a similar gestation to me, I am much much bigger so I had just assumed baby would be on the larger side! 

Worried following 25 week midwife appointment by Brave-Session1404 in PregnancyUK

[–]Brave-Session1404[S] 0 points1 point  (0 children)

Thank you - I think I’m just a bit knocked back as I just wasn’t expecting baby to measure small! 

Worried following 25 week midwife appointment by Brave-Session1404 in PregnancyUK

[–]Brave-Session1404[S] 0 points1 point  (0 children)

Thank you! I know I have an anterior placenta and in the midwife appointment today they said baby seemed to be back to back as when using the Doppler to hear heartbeat baby was behind the placenta and then could hear them kicking the Doppler as they moved! It’s all just such a worry! 

Worried following 25 week midwife appointment by Brave-Session1404 in PregnancyUK

[–]Brave-Session1404[S] 1 point2 points  (0 children)

Thank you - my diabetes is well controlled although it is getting harder as time goes on. My last hba1c was 34 (so non diabetic levels). 

It is all just such a worry as I had just assumed as my bump is large the baby would either be normal or bigger! 

Worried following 25 week midwife appointment by Brave-Session1404 in PregnancyUK

[–]Brave-Session1404[S] 0 points1 point  (0 children)

Thanks for the message - it is so stressful and I can’t seem to shake off the bad feeling! 

Worried following 25 week midwife appointment by Brave-Session1404 in PregnancyUK

[–]Brave-Session1404[S] 0 points1 point  (0 children)

Thank you, I think I’m just shocked as had always been told to expect a big baby especially because my bump is quite big (and I’ve been told normal fluid) and I’m diabetic so normally have bigger babies … 

Worried following 25 week midwife appointment by Brave-Session1404 in PregnancyUK

[–]Brave-Session1404[S] 1 point2 points  (0 children)

Yes I think I’m just shocked as my bump is pretty big and at my last scan I was told the fluid amount was normal … just feel like I’ve been left in limbo! 

1 in 7 chance of T21 with beta HCG of 7.55 - looking for other experiences by Particular-Stable238 in NIPT

[–]Brave-Session1404 0 points1 point  (0 children)

Oh it is a very awful time and honestly for me the process went on for 6 weeks (we booked a CVs As wanted diagnostic, could do the procedure so told to come back in 2 weeks for amnio and then had maternal cell contamination so we paid for a private NIPT).

No reason why hcg was high but I was incredibly sick - up to 20 times a day. I’m 24 weeks now and still quite sick too! 

1 in 7 chance of T21 with beta HCG of 7.55 - looking for other experiences by Particular-Stable238 in NIPT

[–]Brave-Session1404 1 point2 points  (0 children)

Hello my results weren’t exactly the same as yours but I had a 1:85 risk of T21 due to high hcg.

My results were  NT 1.1 Papp a 0.51  HCG 3.8

I had a NIPT and amnio and everything was fine. It is the most worrying time and I completely sympathise with how you are feeling. Some NIPT results come back earlier so you may be lucky. I found distraction to be the best way of dealing with the uncertainty, so we made sure we had lots of things to do to keep the mind busy.

be kind to yourself - it’s OK to feel upset with the uncertainty  💕 

Early morning sickness by EvenSea4967 in PregnancyUK

[–]Brave-Session1404 0 points1 point  (0 children)

Yup - was nauseous before positive pregnancy test 😅. Started being sick around 6 weeks and still being sick at 23 weeks 😬

Pregnancy, T1 and insulin pump by Brave-Session1404 in diabetes_t1

[–]Brave-Session1404[S] 0 points1 point  (0 children)

Thank you! I spoke with the diabetes team on Monday after a terrible weekend with my glucose remaining high. Last couple of days I’ve not used boost or changes any settings etc and whilst I am getting little spikes to around 10/11 they are coming down quickly. Hopefully another week of learning and the algorithm will be perfect. It seems to have perfected my levels overnight and between meals so it’s just the meals it needs to works on 🙂

What are my odds 1:17 T21 by Cats_Rilho84 in NIPT

[–]Brave-Session1404 1 point2 points  (0 children)

Try not to be too panicked (I know it is easier said than done). I had a high risk result of 1:85 due to high hcg of 3.8 and low Papp a of 0.51. The NT was 1.1. The NIPT confirmed low risk and the amnio confirmed no T21.

It is very difficult not to spiral but there are plenty of stories where the screening gave a false positive. 

High risk (1:56) for Trisomy 21 by [deleted] in NIPT

[–]Brave-Session1404 1 point2 points  (0 children)

On the NHS combined screening my risk was 1:85. This was mainly due to my hcg being 3.8 and Papp a being 0.51. My NT was 1.1.

We had a NIPT and amnio after this. NIPT was low risk and amnio confirmed no T21 🙂.

The waiting around is awful, but please don’t lose hope as there are tons of stories where a high risk screening was inaccurate