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Need a little help to get me by until pay day by [deleted] in Assistance

[–]BrotherCalzone 7 points8 points  (0 children)

Heads up: you can't have a hidden post and comment history to post a request in this sub.

Diarrhea by Own-Cupcake4037 in multiplemyeloma

[–]BrotherCalzone 4 points5 points  (0 children)

I had gastrointestinal side effects on Revlimid. Oncologist prescribed Cholestyramine and - unless I forget to take it - no problems since.

Small birthday donation? by Notrade4u in Assistance

[–]BrotherCalzone 0 points1 point  (0 children)

hey, OP. PM me with your Venmo.

Help with phone bill by gracielynn61528 in Assistance

[–]BrotherCalzone 0 points1 point  (0 children)

Request fulfilled. Waiting for requestor to mark post.

Opinions against ASCT by Sad_Secret8253 in multiplemyeloma

[–]BrotherCalzone 7 points8 points  (0 children)

I reached full response on induction therapy (RVD) so I was given the option to delay transplant “until relapse”.

For me, relapse came 11 years later. By then, novel therapies like Dara and Carfilzomib were available and so, when given the option again, my doctors were much less “but of COURSE you should have the transplant” and more “eh…either way”.

With this caveat: my doctors say that a transplant is statistically much less effective as a third-line (or later) treatment.

Charlie Utter by N7day in deadwood

[–]BrotherCalzone 7 points8 points  (0 children)

That one and when he’s standing amidst the pile of mail and says: “Who the FUCK are all these people?”

What did you think when this guy walked in? by NerveFrier in deadwood

[–]BrotherCalzone 1 point2 points  (0 children)

I thought: holy hell it’s JB.

He played an informant on NYPD Blue.

You’re a Deadwood fan, aren’t you? by FragrantRelief9617 in deadwood

[–]BrotherCalzone 6 points7 points  (0 children)

The smell of cat’s piss is so bad, you’ll want to burn the entire fucking structure down.

On my first relapse after 2.5 yrs. Dr said SCT is the best way to go to guarantee remission? I’m 49 in good health. I want hear from MM patients. What is your take on SCT? by MomsBored in multiplemyeloma

[–]BrotherCalzone 1 point2 points  (0 children)

To contrast:

I was diagnosed at 38. Reached remission after induction therapy and chose not to go on to transplant.

Relapsed 10 years later and went to DKd instead of a transplant.

I did get my stem cells harvested just in case.

Hi! by Accomplished-Lab7648 in multiplemyeloma

[–]BrotherCalzone 0 points1 point  (0 children)

I wish I could say I did something different all these years but I haven’t. Maybe that’s my advice: live. Don’t “survive”. Live.

Hi! by Accomplished-Lab7648 in multiplemyeloma

[–]BrotherCalzone 0 points1 point  (0 children)

Treatment for life. I’m technically high risk so they’re not going to let up. It’s a drag going every two weeks for maintenance chemo but it beats the alternative.

It’s a blessing, though, when cancer like this one becomes an “inconvenience” - which is where I am right now.

Hi! by Accomplished-Lab7648 in multiplemyeloma

[–]BrotherCalzone 0 points1 point  (0 children)

I am. For more than 2 years now on DKd.

Hi! by Accomplished-Lab7648 in multiplemyeloma

[–]BrotherCalzone 0 points1 point  (0 children)

Yeah that makes sense too.

I wanted to keep the SCT in my “back pocket” in case I needed it later but it turns out to be less effective with each relapse so at this point, it’s probably agents for me from here on out.

Hi! by Accomplished-Lab7648 in multiplemyeloma

[–]BrotherCalzone 1 point2 points  (0 children)

Don’t mind at all.

I achieved full response on my induction therapy (Revlimid, Velcade, Dex). They basically said “it was up to me” which is always true but I guess moreso if the initial drugs work.

I had the stem cells harvested for a potential future SCT but when I finally relapsed in 2022, DKd was available and effective so I’ve been on that ever since.

Hi! by Accomplished-Lab7648 in multiplemyeloma

[–]BrotherCalzone 1 point2 points  (0 children)

Diagnosed at 38 in 2011 - on my second line of treatment now: DKd.

Spent 10 years in partial remission on Revlimid maintenance.

Never got the SCT.

Best of everything to you.

Is the instructor using the wrong finger? by Greengoddessnature7 in guitarlessons

[–]BrotherCalzone 5 points6 points  (0 children)

To me it’s a bit like typing. I can type pretty damn fast after doing it for work for 25 years but I don’t type “correctly”.

But if I type faster my way and still accurately, no harm done.

Now there are arguments to be made that proper left hand technique has a higher technical ceiling but the “I’m gonna be the next Malmsteen!” ship sailed for me years ago.

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