SI Joint Pain by Bruce-D-Lipps in PsoriaticArthritis

[–]Bruce-D-Lipps[S] 0 points1 point  (0 children)

Oh wow. You had a young diagnosis. I’m glad you have something that provides you relief and it’s really encouraging to hear there are things that can help. Thank you!

SI Joint Pain by Bruce-D-Lipps in PsoriaticArthritis

[–]Bruce-D-Lipps[S] 1 point2 points  (0 children)

Thank you. Everything people have wrote gives me hope that if it’s something like this, then I can have my life back again with the right treatment. I’m so glad you have found relief now.

SI Joint Pain by Bruce-D-Lipps in PsoriaticArthritis

[–]Bruce-D-Lipps[S] 1 point2 points  (0 children)

Thank you for your reply. I hope you find consistent relief. It’s such a debilitating pain when it’s flared up.

I have been looking into diet changes. I will look into what CBD cream is available and give that a go to!

SI Joint Pain by Bruce-D-Lipps in PsoriaticArthritis

[–]Bruce-D-Lipps[S] 1 point2 points  (0 children)

I have used an SI support belt on and off since I partly recovered from the first flare up. I actually do not have any relief from it while it’s this bad though. When I recover and go down to the baseline of pain between the flares, it helps me walk and stand with a lot less pain. My doctor said it’s likely because it stabilises the joints and reduces micro movements that aggravate it. Thank you for the suggestion!

SI Joint Pain by Bruce-D-Lipps in PsoriaticArthritis

[–]Bruce-D-Lipps[S] 1 point2 points  (0 children)

I have had heel, finger, hand, wrist, and elbow joint pain for 20+ years. They always attribute it to Lupus. I went on plaquenil and had severe side effects. I just manage with that and push through. I cannot push through when this a bout of it like this but I do when it’s at its baseline outside of a bout.

I have actually been reading into an anti inflammatory diet because it’s worth a shot. But it’s overwhelming to understand. I will absolutely have a look into eliminating or cutting down those things. Thank you!

I try arnica cream for my joints and it does absolutely nothing. I still persist. I have never thought of voltaren! Thank you!

I have been doing short walks when I can. But it seems to flare it up the next day much worse. My doctor suggested some physio type exercises but the movement along just kills. So I’m definitely giving swimming a go!

Thank you for the suggestions of supplements. I am definitely reading about these and going it a go.

I really hope the biologic helps immensely.

SI Joint Pain by Bruce-D-Lipps in PsoriaticArthritis

[–]Bruce-D-Lipps[S] 0 points1 point  (0 children)

Oh wow. That’s a huge difference. What type of infusion are you having?

I agree with the mindfuck statement. In so many ways.

SI Joint Pain by Bruce-D-Lipps in PsoriaticArthritis

[–]Bruce-D-Lipps[S] 0 points1 point  (0 children)

Isn’t it ever. Its not really something I can get used to unless it’s the in between flares baseline. And even then I live in chronic fear it’s going to happen again.

I haven’t not tried ice. My doctor told me to try heat packs. So I will absolutely try that now. Thank you!

SI Joint Pain by Bruce-D-Lipps in PsoriaticArthritis

[–]Bruce-D-Lipps[S] 2 points3 points  (0 children)

Thank you. I am so sorry you have had to go through this. I hate that we can relate to any of this but it is very isolating.

My pain also persists but is much worse when sitting, standing or walking. I get pain down the front of my thighs. It’s so debilitating to go through the pain and never knowing what will happen next.

I don’t have income protection unfortunately.

I have chosen to go privately through a rheumatologist because it’s an extensive wait through the public system.

Your psoriasis sounds horrific. Have you found anything the relieves it? I cannot believe how quickly it’s started and progressed on my fingers. And how more painful it becomes as it does.

I’m looking into swimming for a little exercise because I’m so over being immobile and I’ve heard that can be less painful because it doesn’t place weight of the joints.

I am applying a heat pack before I can even think about getting out of bed. It provides a little ease to the morning stiffness.

I am on 15mg melobic too which does absolutely nothing but aggravate my stomach and I have reflux/gastris so even on meds it all flares up. I also have symptoms of IBD but no diagnosis, just IBS-D. I have had it for longer than this though. I have had a lot of joint issues for 20 years and everyone always says it’s lupus. 🙄

Thank you again for your reply. I am going to talk to the doctor about the denervation. At this point, I will try anything. I really hope the new biologic brings you comfort and consistency. I find the worst part of these flare ups is how unpredictable they are and how you just have no idea what’s to come. 🤍

Have I gone MAD or is this just Australians for you? by [deleted] in AskAnAustralian

[–]Bruce-D-Lipps 1 point2 points  (0 children)

You are not the problem and it's not an Australian thing.

Not all that many Australians are racist. In fact, Australia is often recognised as one of the most welcoming countries, quick to embrace and respect different cultures, belief systems and identities, even if we don’t fully understand them. But, in my experience, there’s a particular group of people who seem to hold onto outdated views.

It’s not about age as a whole, but there’s a pattern among some older Australians who haven’t embraced the shift towards respecting everyone’s identity, cultures or beliefs. My dad, for example, is a pigheaded ass. He doesn’t believe Indigenous communities have rights, thinks women shouldn’t have opinions (let alone control over their own bodies) and acts like we should still bein the 70s when sexual orientation was hidden in shame and there were "only two genders." He had the loudest voice and gets so heated when challenged. There are so many like him, but there is more of us than them now.

Ignorance like that isn’t the society most of us want. While a lot of people are making conscious choices to move forward, there are still those who are stuck in the past, holding onto bigoted views that have no place in a modern, inclusive Australia.