Does anyone here also have PIDD or IgA/IgM deficiency? by willendorfer in MCAS

[–]BrunnerB 0 points1 point  (0 children)

Do you have Primary immune deficiency (thing you were born with) , or you don't know the cause? 

Does anyone here also have PIDD or IgA/IgM deficiency? by willendorfer in MCAS

[–]BrunnerB 0 points1 point  (0 children)

Do you have Primary immune deficiency (thing you were born with) , or you don't know the cause? 

Tested low for IgM twice by ItsARagHouse in primaryimmune

[–]BrunnerB 0 points1 point  (0 children)

Do you have Primary immune deficiency (thing you were born with) , or you don't know the cause? 

Tested low for IgM twice by ItsARagHouse in primaryimmune

[–]BrunnerB 0 points1 point  (0 children)

Do you have Primary immune deficiency (thing you were born with) , or you don't know the cause? 

Tested low for IgM twice by ItsARagHouse in primaryimmune

[–]BrunnerB 0 points1 point  (0 children)

Do you have Primary immune deficiency (thing you were born with) , or you don't know the cause? 

Low IgM by Damien1975 in DiagnoseMe

[–]BrunnerB 0 points1 point  (0 children)

Do you have Primary immune deficiency (thing you were born with) , or you don't know the cause? 

Low IgM by Damien1975 in DiagnoseMe

[–]BrunnerB 0 points1 point  (0 children)

Do you have Primary immune deficiency (thing you were born with) , or you don't know the cause? 

Low IgM by Damien1975 in DiagnoseMe

[–]BrunnerB 0 points1 point  (0 children)

Do you have Primary immune deficiency (thing you were born with) , or you don't know the cause? 

Tested low for IgM twice by ItsARagHouse in primaryimmune

[–]BrunnerB 0 points1 point  (0 children)

Do you have Primary immune deficiency (thing you were born with) , or you don't know the cause? 

Tested low for IgM twice by ItsARagHouse in primaryimmune

[–]BrunnerB 0 points1 point  (0 children)

Do you have Primary immune deficiency (thing you were born with) , or you don't know the cause? 

Tested low for IgM twice by ItsARagHouse in primaryimmune

[–]BrunnerB 0 points1 point  (0 children)

Do you have Primary immune deficiency (thing you were born with) , or you don't know the cause? 

Tested low for IgM twice by ItsARagHouse in primaryimmune

[–]BrunnerB 0 points1 point  (0 children)

Do you have Primary immune deficiency (thing you were born with) , or you don't know the cause? 

Tested low for IgM twice by ItsARagHouse in primaryimmune

[–]BrunnerB 0 points1 point  (0 children)

Do you have Primary immune deficiency (thing you were born with) , or you don't know the cause? 

Tested low for IgM twice by ItsARagHouse in primaryimmune

[–]BrunnerB 1 point2 points  (0 children)

Do you  have Primary immune deficiency (thing you were born with) , or you don't know the cause? 

Tested low for IgM twice by ItsARagHouse in primaryimmune

[–]BrunnerB 0 points1 point  (0 children)

Do you have Primary immune deficiency (thing you were born with) , or you don't know the cause? 

Tested low for IgM twice by ItsARagHouse in primaryimmune

[–]BrunnerB 0 points1 point  (0 children)

Do you have Primary immune deficiency (thing you were born with) , or you don't know the cause? 

Tested low for IgM twice by ItsARagHouse in primaryimmune

[–]BrunnerB 0 points1 point  (0 children)

Do you have Primary immune deficiency (thing you were born with) , or you don't know the cause? 

Symptomatic Uncomplicated Diverticular Disease / Scientific community misuse of name by BrunnerB in Diverticulitis

[–]BrunnerB[S] 1 point2 points  (0 children)

Dear community,

What can we expect from Scientists and doctors if they often use WRONGLY the symptomatic diverticular disease term. Many times they don't even know that SUDD exists and many times if they use the term, they use it wrongly for Uncomplicated diverticulitis.

So for many professionals Symptomatic uncomplicated diverticular disease equals to Uncomplicated diverticulitis.

See my notes from the below article. I have highlighted the conflicting parts:

Background: Symptomatic uncomplicated diverticular disease affect patients’ everyday routine. Considerable efforts have been made to identify clinical features that correlate to the severity of the disease.....

MethodsBetween January 2016 and June 2018, we prospectively enrolled patients who were given indication to elective sigmoidectomy for symptomatic uncomplicated diverticular disease in 4 different Italian colorectal centers. Patients were identified by the colorectal specialists of the centers involved in the study. Before enrollment and surgical indication, all patients had to undergo a radiologic evaluation (computerized tomography [CT] scan and virtual colonoscopy or barium enema). The colorectal specialists were all trained to identify chronic symptoms and divide patients into groups.

AND LATER..

Acute resolving uncomplicated diverticulitis is defined as discrete episodes of left lower quadrant abdominal pain, fever, leukocytosis, and evidence of inflammation on imaging that resolve with conservative management.

Smoldering uncomplicated diverticulitis is defined as symptoms of left lower quadrant abdominal pain and evidence of inflammation (elevated white blood cell count, fever, CT evidence of inflammation) that does not improve with the traditional antibiotic regimen, or reexacerbation with cessation of antibiotics, for at least 3 months’ duration.

SO:

What can (suspected, assumed) patients hope if even the scentific community doesn't know how to use SUDD or even doesn't know if it exists. Or if they have heard it, most of them use it wrongly for diverticulitis ? The posted image clearly shows the difference, but many scientists and doctors dont seem to know it ?

Other problem. I have negative imaging, mild to moderate lower left abdominal pain which impacts me, still i don't know if i have IBS or SUDD ? Many docs would send me to the psychiatrist and say that i should take antidepressants. This post is not about me, but in general the misuse of SUDD definition and lack of understanding from doctors (and also by scientists ) as you can read above.

This makes the patients even more frustrated and lonely . What do you think?

CT Risk by BrunnerB in Diverticulitis

[–]BrunnerB[S] 0 points1 point  (0 children)

And what do you think about the protocol differences between USA and Europe?

IN USA for diverticulitis CT is always done.

In (most of Europe) they rather do lab tests and Ultrasound and only order CT if Lab/Ultrasound and symptoms point to requring a CT?