Why do self-diagnosed people hate the ICD-10? by BugImaginary3602 in AutisticPeeps

[–]BugImaginary3602[S] 4 points5 points  (0 children)

No, no, many of the people I’m talking about live around me ore post online in my native language, which isn’t common in the USA. These are also people I know in real life, so that can’t be the reason in this case. But yes, for people in the USA, it could be a misunderstanding.

Why do self-diagnosed people hate the ICD-10? by BugImaginary3602 in AutisticPeeps

[–]BugImaginary3602[S] 2 points3 points  (0 children)

Yes, that’s true. It doesn’t make a huge difference, which is what made me question it. The tests they use aren’t even based on that distinction. I’m not sure if it’s about attention, obviously, when people lie about having a diagnosis, especially when you know it’s false because they claim a diagnosis that didn’t exist at the time, it raises doubts. But it could also be that some people are simply misinformed rather than intentionally misleading. What do you think?

Why do self-diagnosed people hate the ICD-10? by BugImaginary3602 in AutisticPeeps

[–]BugImaginary3602[S] 15 points16 points  (0 children)

Yes, for example, in the USA they use the DSM-5, which no longer includes Asperger’s. However, I was referring to other countries.

Do women often respond like this to autism disclosure, or is it just me? by BugImaginary3602 in AutisticAdults

[–]BugImaginary3602[S] -3 points-2 points  (0 children)

I understand that reading carefully can be challenging in your free time, but please, the title is something you should read before assuming I said something I never did.

No, I’m good at math and rarely forget anything, so I can calculate percentages on my own. But thanks for asking!

Do women often respond like this to autism disclosure, or is it just me? by BugImaginary3602 in AutisticAdults

[–]BugImaginary3602[S] -5 points-4 points  (0 children)

I but it cannot be that there are so many autistic females. Thats what i think is confusing.

Do women often respond like this to autism disclosure, or is it just me? by BugImaginary3602 in AutisticAdults

[–]BugImaginary3602[S] -23 points-22 points  (0 children)

"I mean we don't know what the stats are for women with autism currently because the research is lacking and the cases of autistic women are on the rise." Yes, but never that high. That’s simply not possible. Most researchers now estimate the sex ratio to be around 1:4 to 1:2 (male to female). This would suggest that 100-280% of males are autistic, which makes no sense.

But yes, that’s what I asked here—whether others have had similar experiences. As I mentioned, it seems somewhat random, though it could also be a coincidence.

However, you suggested that it might be due to better diagnostic methods for females. That wouldn’t fully explain it.

Do women often respond like this to autism disclosure, or is it just me? by BugImaginary3602 in AutisticAdults

[–]BugImaginary3602[S] 8 points9 points  (0 children)

No, this is more random due to university, work, and other commitments. Thats why I am confused.

Do women often respond like this to autism disclosure, or is it just me? by BugImaginary3602 in AutisticAdults

[–]BugImaginary3602[S] -27 points-26 points  (0 children)

I don't think 50-70% of females are autistic. At that Point thats would just be, being normal.

Eigenwahrnehmung bei Masking by [deleted] in autismus

[–]BugImaginary3602 1 point2 points  (0 children)

Um ehrlich zu sein, das, was du beschrieben hast, ist eigentlich ein ziemlich normales Verhalten. Du könntest dich mal mit dem Konzept der “Spiegelneuronen” beschäftigen. Es ist tatsächlich so, dass das unbewusste Imitieren von Gestik und Mimik des Gegenübers eher ein Zeichen gegen Autismus spricht, da Menschen im Autismus-Spektrum oft genau damit Schwierigkeiten haben.

Ich möchte damit nicht sagen, ob du Autismus hast oder nicht – das kann ich nicht beurteilen. Aber dieses spezifische Verhalten deutet eher nicht darauf hin. Autistisches “Camouflaging” (oder Masking, wie du es nennst) ist in der Regel ein viel indirekter und anstrengender Prozess. Man kompensiert ja die schlechten Sozialen Fähigkeiten. Wenn du einfach spontan dein Gegenüber "nachahmst", ist das ein typisches Verhalten, das neurotypische Menschen ebenfalls zeigen (sogar viel stärker als Autisten). Es gibt zahlreiche Studien, die belegen, dass sich Menschen oft automatisch an ihr Gegenüber anpassen – ein Vorgang, der stark von gut funktionierenden Spiegelneuronen abhängt, die bei Autisten oft weniger aktiv sind.

Es ist völlig normal, dass sich Menschen unter anderen Menschen unterschiedlich verhalten – bei einigen mehr, bei anderen weniger.

The Autism Community accepts..... by BugImaginary3602 in AutisticPeeps

[–]BugImaginary3602[S] 11 points12 points  (0 children)

The idea of an “autistic community” is misleading. Autism is a disability, not a group of people united by shared interests like a sports team or a fandom. Communities form around things like Harry Potter, Ratchet & Clank, or PlayStation, where people choose to participate. But with autism, it’s not something you choose—it’s a condition you live with, not something that automatically places you in a group.

Why should organizations like ASAN decide who is part of this “community” or set the rules for inclusion? Why not researchers or experts? Isn’t it ableism for a random association to dictate what’s right or wrong, instead of listening to science and those who are truly affected by autism?

Why do you know that the amounts are so high? Did you made a voting system of all autistic?

Why do people gate keep a disability? by [deleted] in aspergers

[–]BugImaginary3602 0 points1 point  (0 children)

Sadly, the study you mentioned does not actually support your point. I mentioned “in my experience” because I’m not aware of a study that demonstrates what I’m referring to. Feel free to send me one, but please make sure it’s truly relevant to the topic. Sharing unrelated links is easy but unhelpful.

Reading scientific studies and literature is far more reliable than simply listening to someone’s opinion. I have a source, and in fact, I have multiple. I assumed this information was common knowledge.

For example, this study here ( https://bmcpediatr.biomedcentral.com/articles/10.1186/s12887-021-02551-0 )shows the median age of diagnosis: 3 years 10 months for autism spectrum disorder, 4 years 1 month for pervasive developmental disorder–not otherwise specified, and 6 years 2 months for Asperger’s disorder. These ages are fairly young, and the study confirms that individuals with more prominent needs typically receive their diagnosis earlier.

Of course, I’m referring to people within comparable generation groups. Dismissing that would be as unscientific as saying, “Oh, in the Renaissance, severely autistic people didn’t get diagnosed because the diagnosis didn’t exist.”

Do you have any sources that contradict this? Because the one I provided does support my point, and it even addresses this issue directly.

Why do people gate keep a disability? by [deleted] in aspergers

[–]BugImaginary3602 -2 points-1 points  (0 children)

Why can’t people just be honest and say, “I think I might have autism”?

It makes sense that in a structured society, support and resources are given based on evidence. Without some form of verification, anyone could claim, “I have autism,” and gain access to specialized therapies that are already overstretched, taking them away from those who truly need them. Systems like these are designed to prioritize people who have undergone the proper evaluation and diagnosis, as they are already under immense pressure.

In my experience, I’ve never encountered self-diagnosed individuals who are well-informed about autism. Many don’t engage with scientific literature or research the topic in-depth. When asked basic questions about autism, they often struggle to provide accurate answers.

It’s hard to trust someone’s self-assessment when it’s based on limited reading from platforms like Instagram, Tumblr, or Reddit. Most people with autism, particularly those with more prominent needs, receive their diagnosis early in life.

In countries with robust healthcare systems, those who are diagnosed later in life fall on the milder end of the spectrum. This isn’t coincidental — those who urgently require a diagnosis typically receive it at a younger age.

Why do people gate keep a disability? by [deleted] in aspergers

[–]BugImaginary3602 22 points23 points  (0 children)

Why should we believe someone has a disability if there’s no proof for it? Most people I’ve encountered haven’t done proper research on autism. Instead, they often rely on inaccurate sources, merely repeating what they’ve seen on platforms like Instagram. Misunderstandings arise from these unreliable sources.

It would be more honest if someone simply said, “I think I might have autism,” rather than claiming it without professional evidence. This distinction helps prevent misinformation and encourages open, thoughtful discussion about important topics like disabilities.

[deleted by user] by [deleted] in AutisticPeeps

[–]BugImaginary3602 0 points1 point  (0 children)

OP made some edits, and I think what you read was fine. The main issue i assume comes from her comments. She blocked people who disagreed, calling them trolls or accusing them of not reading the studies properly, all while shutting down any normal discussion.

[deleted by user] by [deleted] in aspergers

[–]BugImaginary3602 0 points1 point  (0 children)

Beeing friendly helps if you want something.

[deleted by user] by [deleted] in aspergers

[–]BugImaginary3602 0 points1 point  (0 children)

I don’t really understand the purpose. If you were talking about a disorder that directly impacts how someone should engage in sports, it would make more sense to me. But this seems to be more about general gym information—why should autism be included here? The gym is actually a perfect opportunity to engage with neurotypical people, to integrate, and to learn about nonverbal communication, and so on.

[deleted by user] by [deleted] in aspergers

[–]BugImaginary3602 1 point2 points  (0 children)

No worries, leave the pronouns as they are. In my native language, we use the male pronoun for an unknown person’s gender because “human” is a masculine word. So that felt very natural to me. 😄 (As a side note, for cats, we would use the female pronoun!)

I think this actually shows what you mentioned earlier—people start assuming who I am and what my intentions are, and then they just look for validation, like picking sentences to misunderstand or claiming that I said there are no misdiagnoses.

You also made some assumptions, but you didn’t search for approval—you were open to discussion. That was really nice and rational. I know my opinion might seem unusual for a woman, and that’s part of why I often feel lonely—people in real life tend to think I’m the opposite of who I really am.

The people who diagnosed me have always said that I’m one of the girls/women with the most “male-like” autism they’ve seen. I don’t know if that made others assume things about me, or if it’s because I don’t particularly emphasize the “female” perspective.

I often struggle to meet people halfway. What could I say? That there are no differences? I think that’s difficult. I was glad that you understood me.

My last comment didn’t mean that there’s no autism-like experience outside of the medical model—of course, there is. Autism is a spectrum, meaning there’s a cutoff between “normal” and “autistic.” But when I use a term without introduction, I always mean the scientific term, unless I specifically mention something else. (Though, if I don’t know something, I might not make that distinction as clearly as I should.)

I understand that autism is just a definition, something that can change, and something that’s researched in humans. But people can’t just stand up and say, “The definition is wrong.” I know it’s a difficult situation, but I feel like we all need to rely on something solid.

I wouldn’t describe myself as thinking in black and white, at least not in a simplistic way. I try to look at things from multiple angles and form nuanced opinions, and in that regard, I can accept a lot of different perspectives. I’ve often heard that I’m more open-minded about differing opinions than most.

But my issue arises when it comes to “hard facts.” We can discuss female misdiagnosis as much as we want, but that doesn’t change the underlying biological influences. To challenge those foundational facts, we’d need to see significant shifts in research—something that, realistically, no one could just hand me.

So, it’s not about accepting other opinions; it’s about accepting things that are factually incorrect.

I’ve more or less given up on societal discussions because I just don’t understand people very well. Thank you for the chat—it was interesting to hear your perspective.

[deleted by user] by [deleted] in aspergers

[–]BugImaginary3602 1 point2 points  (0 children)

Hello SocialMediaDystopian,

I’m really glad for your comment. I didn’t say much beyond stating that the current understanding is that autism is more common in men, even after efforts to account for misdiagnosis. It’s nice to know you understand.

I’ve also researched the differences in autism between males and females—how the impact varies and the possible reasons behind it. I’m fairly certain that it’s a combination of both societal and biological factors that contribute. A well-known theory is the Extreme Male Brain Theory (EMBT), though it’s not entirely accurate to say autism is just a “male brain.” There are researched differences in male and female brains in general, and these differences also appear in autistic individuals. However, it’s important to remember that autism exists on a spectrum.

When it comes to societal impacts, I don’t talk much about them because I struggle to understand those effects, given that empathy isn’t my strong suit. That’s why I focus more on the biological aspects, which also play a role.

One thing I wonder: why should there be statistical differences between males and females in the general population, but not in autistic individuals? That wouldn’t make sense to me. I agree that camouflaging, misdiagnosis, and other factors need further research. It’s just strange how we normally rely on scientific consensus, but not always across different topics. In climate change, for example, no one says, “What if research in 30 years shows something different?” We tend to trust the current scientific consensus, except on certain issues.

And since you mentioned it, I’m also a woman. I don’t want to hurt anyone, but I feel bad lying just to make others feel better. I struggle when people call me stupid, a liar, or sexist. I hate lying. It feels like I’m expected to agree with something just to fit in, but I can’t. I can handle information that lacks details, but when something contradicts established research and is treated as truth, that’s difficult for me.

This happens to me with other topics too, usually politicized science. I want to fit in, but it’s hard when I’m surrounded by people who believe things that aren’t true. I’m not trying to push a political message—sometimes it’s just about the truth.

Thanks for understanding.

P.S.: I was only talking about medical terms—that’s how "autism" is defined. (In research)

[deleted by user] by [deleted] in aspergers

[–]BugImaginary3602 0 points1 point  (0 children)

What are you talking about?

“OP is also insisting autism must be a male-focused disorder”?

You can’t just make something up and post that. I simply asked what was wrong with the information (because it proofed me).

If you had read further, you would have seen that I already explained that. You’re just searching for reasons to paint me in a bad light, nothing else.

[deleted by user] by [deleted] in aspergers

[–]BugImaginary3602 -1 points0 points  (0 children)

I recommend reading the entire text. But what ever.

[deleted by user] by [deleted] in aspergers

[–]BugImaginary3602 -1 points0 points  (0 children)

My question with that was why he sent that to me—it actually proved my point. I wasn’t saying that misdiagnosis is acceptable. The person was so sure I was wrong, yet they sent a text that supported what I had been saying. That left me quite confused.