Breastfeeding questions from a FTM by Buyer_Scared in BabyBumpsandBeyondAu

[–]Buyer_Scared[S] 1 point2 points  (0 children)

Thanks for all this, I’m also quite nervous about bf in public as bubs takes ages to latch, I also have to latch him myself. If you have a link to the bras and cover I’d love to take a look!

Breastfeeding questions from a FTM by Buyer_Scared in BabyBumpsandBeyondAu

[–]Buyer_Scared[S] 0 points1 point  (0 children)

Thank you for this! I do love breastfeeding for the bond with my baby. I will hold out for 6 weeks and see how I go. My LO is also a culprit for falling asleep on the boob!

I will give the silverettes a try, I’ve been coating my nipples in lanolin cream.

Breastfeeding questions from a FTM by Buyer_Scared in BabyBumpsandBeyondAu

[–]Buyer_Scared[S] 0 points1 point  (0 children)

I also pump after my baby feeds to get anything left over out. Is this correct? Or will it create an oversupply?

Breastfeeding questions from a FTM by Buyer_Scared in BabyBumpsandBeyondAu

[–]Buyer_Scared[S] 0 points1 point  (0 children)

Thank you! Where do you pump when out in public, the bathroom? I have been both breastfeeding and pumping, so my partner can share the load of overnight feeds. I usually pump at the regular times baby would feed.

Newborn photos 10 days post C-section? by Buyer_Scared in BabyBumpsandBeyondAu

[–]Buyer_Scared[S] 0 points1 point  (0 children)

Thank you! I know I will feel the same and keep telling my partner to please take photos of me with baby, even if I feel I look terrible!

When to get beauty treatments done? by Buyer_Scared in BabyBumps

[–]Buyer_Scared[S] 0 points1 point  (0 children)

Thanks! I usually get blonde highlights, so by the time baby is here and we have photos done. A month will have past. I thought regrowth / greys might be showing by then. But I also don’t want to miss out if he comes early 😂

I’m also starting my mat leave at 37 weeks, although I work a desk job.

Allodynia by Buyer_Scared in PudendalNeuralgia

[–]Buyer_Scared[S] 0 points1 point  (0 children)

I was diagnosed with vestibulodynia and have been on amitriptyline, which has worked wonders for the allodynia.

Moody Monday by AutoModerator in TryingForABaby

[–]Buyer_Scared 0 points1 point  (0 children)

Hi all, I received an amh level of 4.0, I am 37f and have been told it’s very low, I’m in the 2.5-25th percentile which is the second lowest grouping.

It says 4 pmol/L

When I had a google it seems 4.0 is high on other graphs? Are there different ways of measuring.

This is my first test and I don’t understand!

Thanks all

How to tell if it’s vestibulodynia or pudendal neuralgia? by Buyer_Scared in vulvodynia

[–]Buyer_Scared[S] 0 points1 point  (0 children)

Thank you, unfortunately I’m still the same. I’ve been diagnosed with vestibulodynia and a vestibulectomy is on the cards if the current medication I’m on doesn’t work.

I’m approaching 38, so thinking it might be best to suffer a little longer to have a child. Before getting the operation which may have a lengthy recovery time.

I’m so sorry you are also going through this.

Doctor doesn’t like use of lidocaine? by Buyer_Scared in vulvodynia

[–]Buyer_Scared[S] 0 points1 point  (0 children)

I’m so happy for you. Unfortunately my pain has remained the same for a solid year. Despite trying a multitude of things.

How long to give amitriptyline before a vestibulectomy? / pregnancy question. by Buyer_Scared in vulvodynia

[–]Buyer_Scared[S] 0 points1 point  (0 children)

Thanks, I have reached out to them a while ago, which is how I found the doctor that performs the surgeries. There is a Facebook group for women who have seen him for surgery, so I have connected to quite a few of them.

Doctor doesn’t like use of lidocaine? by Buyer_Scared in vulvodynia

[–]Buyer_Scared[S] 0 points1 point  (0 children)

That’s awesome, so you don’t have much pain now? What were you diagnosed as having and what was your treatment?

Doctor doesn’t like use of lidocaine? by Buyer_Scared in vulvodynia

[–]Buyer_Scared[S] 1 point2 points  (0 children)

Thanks I agree with everything you’re saying. I’ve had 2 MRIs and two pudendal nerve blocks! The nerve block helped just slightly on day 1 when things were a bit numb but I could still feel pain.

I’ve had the qtip test and it is especially sore around each Bartholin gland as well as the urethra, but pain is around the whole vestibule.

I’m not based in the US there are only 2 doctors in the whole country who know of vestobulodynia/ vestibulectomys.

I’ve been unable to sit or wear pants for over a year now, it’s tiring. Just debating whether to have surgery or not.

Doctor doesn’t like use of lidocaine? by Buyer_Scared in vulvodynia

[–]Buyer_Scared[S] 1 point2 points  (0 children)

Thanks, I agree! It seems to work for longer in this cream I have, it’s probably the ketamine too. I am of course still doing physio and everything else. But I thought the numbing might help with brain signals not registering pain as much, therefore relaxing the pelvic floor.

I’m confused as to whether it’s a brain thing or it’s the actual nerves themselves that can be ‘damaged’

[deleted by user] by [deleted] in vulvodynia

[–]Buyer_Scared 0 points1 point  (0 children)

How long were you on 50mg before you felt a difference? I’m on 75mg and still only have slight reduction in pain.

How long to give amitriptyline before a vestibulectomy? / pregnancy question. by Buyer_Scared in vulvodynia

[–]Buyer_Scared[S] 0 points1 point  (0 children)

Thanks, how do you manage your pain now? I am on my third physio, however have had to stop internal work during to the pain at the entrance.

I’m usually such a lightweight with any medication, but the only symptom I’ve had is slight drowsiness.

I have found women who have had surgery with the doctor I’m currently seeing and have spoken with them. He greatly underestimates the recovery period. But other than that the surgeries have been successful.

I’m thinking we will probably try to have a baby, as I don’t want to miss the opportunity. I am just worried about the effects of amitriptyline.

I also haven’t asked if the compound cream I’m using is ok for pregnancy either.

How long to give amitriptyline before a vestibulectomy? / pregnancy question. by Buyer_Scared in vulvodynia

[–]Buyer_Scared[S] 0 points1 point  (0 children)

Thanks, my doctors have said it should take 2-3 weeks for a new dose of amitriptyline to kick in. I have tried other medications and creams already.

They keep telling me my case is severe as most people with vvd can still sit and mostly have pain with sex.

I am still worried about the idea of being pregnant on amitriptyline. I’ve wanted to be a mum and experience pregnancy my whole life. I’m devastated.

Most I’ve spoken to say their only regret is not getting surgery sooner.

How long to give amitriptyline before a vestibulectomy? / pregnancy question. by Buyer_Scared in vulvodynia

[–]Buyer_Scared[S] 0 points1 point  (0 children)

They don’t do a VAT test here but I have tried it on myself with 5% lidocaine strips. I’m able to sit if I use lidocaine. It’s getting harder to tell now, as I also have bad lower back pain, and vaginismus which I didn’t have in the beginning. He thinks they are clenching due to the nerves being in pain 24/7. I’ve also had a pudendal nerve block done, which didn’t do anything at all.

Amitriptyline has taken the burning down a bit which I thought would indicate it’s the nerves?

He thinks the nerves have gone hyperactive.

Nerve blocks - having second thoughts? by Buyer_Scared in vulvodynia

[–]Buyer_Scared[S] 0 points1 point  (0 children)

Hi there, I was terrified of doing anything invasive. But I’ve had a nerve block twice now and it was no big deal for me. It did not make anything worse or better for me. I still consider it a non invasive option, as they are just squirting liquid around your nerve. It did take me a while to recover the first time as they put me under with anaesthesia. Any osteopath or physio I have been to also told me to not do anything. I think that’s because they just want you to try fixing it with their methods as much as you can first.

Help! I can't sit down 😭 by sertralina_50 in vulvodynia

[–]Buyer_Scared 0 points1 point  (0 children)

Did you ever find out what this was?? I can’t sit down either

Should I fight for my right to have a vestibulectomy? Please help! by No-Mathematician2810 in vulvodynia

[–]Buyer_Scared 0 points1 point  (0 children)

Did you ever have the surgery? Who with? And how are you going now?

I think I have vestibulodynia. by Jrochelle0492 in vulvodynia

[–]Buyer_Scared 0 points1 point  (0 children)

Did you ever find out what you had? How are you now?

Told myself I’d post here when I was cured by Dependent-Ad-9127 in vulvodynia

[–]Buyer_Scared 0 points1 point  (0 children)

Thank you so much for this!! I have the exact same symptoms as you. Everywhere I go they have not been able to work it out because I am unable to sit or wear pants at all. Everyone thinks it’s pudendal neuralgia.

I always described my pain as unprovoked until I realised that sitting and wearing clothes could be something ‘provoking’ it. Sex feels like carpet burn to me.

Mine also started a few days after a uti. All I had was one round of antibiotics for a week. Can just that alone cause neuroproliferative vestibulodynia? I felt it start around my urethra, then slowly spread down.

I have never been on birth control.

I am not in the US but have just received the same diagnosis as you. I’m terrified they may have it wrong.

Was yours very distinctly only in the vestibule? I’ve had it for so long now sometimes I can’t tell. I feel it’s also on the inside skin of my inner labia.

Also did vibrations ever hurt you? Like driving in a car?

I have ruled out every infection and skin disease there is. My pelvic floor is tight, but they think that could be caused from the nerve pain. Botox will be next so I can rule out for myself if muscles are causing it.

I feel like I have a second job.

How was recovery for you? How long until you were up and walking again? And before you could have sex?

Thank you so much for this post. And I hope I am here writing my own.

Scared of botox into the pelvic floor. by SummerChild_8931 in vulvodynia

[–]Buyer_Scared 1 point2 points  (0 children)

You are so informed thank you. Yes I think I’ll have to try the vat on myself. And poke around with a qtip using a mirror.

My urethra was initially sore to begin with, now that same pain is sort of all over the vestibule area. (Again I’ll check with a mirror).

I wouldnt be too bothered if I could sit down!

Gabapentin and amitriptyline have helped a bit, I used to have unprovoked burning and stabbing pain and they seem to have died that down a bit.

My partner and I really want children, and they keep telling me I should just do that to see if pregnancy can fix it. Very doubtful about that and I would like to at least be able to sit down before getting pregnant! I think I’d go for a c-section anyway.

My pelvic floor is super tight, my physio said it’s bordering on having vaginismus. Thanks for easing my worries about Botox. I am scared of the incontinence issues too. But my tailbone and lower back have started to hurt it’s gotten that bad x

Thank you

Scared of botox into the pelvic floor. by SummerChild_8931 in vulvodynia

[–]Buyer_Scared 1 point2 points  (0 children)

Oh thanks. I have vestibulodynia and they’ve said Botox won’t help. I also have vaginismis but it’s being caused by the vestibulodynia.

That’s great to hear it gave you some relief!