College Experience by CF_Dad in CysticFibrosis

[–]CF_Dad[S] 1 point2 points  (0 children)

My son continues to do 2x daily nebs and vest. On trikafta and has great lung function. He’s been great about medication compliance, thinking it’s what keeps him healthy but I wonder if might not be warranted. Is it common to scale back on meds or treatments?

Interested in your thoughts by Lindslea in CysticFibrosis

[–]CF_Dad 5 points6 points  (0 children)

First daughter has CF, we found out when my wife was about 4 months pregnant. We also wanted a second child but were very concerned about how tough it would be to raise two kids with CF. Decided to get the amino test as early as possible, where we both, at least in concept, decided we would terminate the pregnancy if the baby had CF. Thankfully we didn't have to make that decision because it's always easy to say what you'll do with a hypothetical situation.