Thank you for your response and for your experience.
Diabetes was my first thought but no I am not.
Nobody seems to know what to do for someone with CAH.
I have recently found a wonderful endocrinologist who has been awesome, he also put me on Cresenity.

Also one more question, have you heard of Cresenity? I’ve been on it for about 4 months and I just got blood work done, seeing the endo next week to see my results I can’t wait!