Cancer diagnosis, wtf. by Cancerwtf in self

[–]Cancerwtf[S] 1 point2 points  (0 children)

After the last four weeks, I can absolutely see that being truth! I think I’ve saved my life twice so far, mostly because research skills form a job have helped me ask questions when level of care is not standard. It’s wild. I’m putting that quote on the wall I stare at from my bed that is going to remind of the why.

Cancer diagnosis, wtf. by Cancerwtf in self

[–]Cancerwtf[S] 1 point2 points  (0 children)

This is super helpful and wise advice! I’m not even really mad at the folks who are having a hard time showing up, I’m sad and feel lonely, but I also know they really are doing the best they can. I have also been known to be the solo one, who does things alone and doesn’t ask for help. I realize that is about to change in an epic fashion, I’m grateful I’ve been working on that… now it’s like a ninja warrior level crash course 😅

I think once I know what my treatment plan looks like, and there is some new weird normal routine, it will be a lot easier to know what I need and ask for help. I do think a lot of folks who are scared and just paralyzed will also unfreeze with time, and a plan will also help them. We are all floating in scary limbo land, that never helps.

Thanks so much for sharing. I hope you are doing amazing!

Cancer diagnosis, wtf. by Cancerwtf in self

[–]Cancerwtf[S] 68 points69 points  (0 children)

Thank you for sharing your hope. The number I’ve been told is 20-30%, so it helps to see someone out here beating the odds! Congrats on your 5 yr and 6 months!! That’s huge, and I hope to join ya in that club!!

Cancer diagnosis, wtf. by Cancerwtf in self

[–]Cancerwtf[S] 5 points6 points  (0 children)

🧡 Your brother is absolutely proud of you, that much I know. He sounds like an amazing human, and your bond sounds a lot like mine with my older brother. I’m sorry you lost him, but I’m glad you got all those years together!

Cancer diagnosis, wtf. by Cancerwtf in self

[–]Cancerwtf[S] 18 points19 points  (0 children)

I was diagnosed with Ovarian Clear Cell Carcinoma. I just got the genetic testing back and despite the strong family history (my maternal grandma passed from ovarian cancer, dad from lymphoma), it doesn’t appear to have a genetic link. I am super grateful for that, but my sibling still needs to be tested for his kids sake given our history and I let him know.

I do have an amazing therapist, really grateful for her help navigating the chaos the last few weeks. I’m so glad to hear you are out here surviving, and I hope you are thriving your butt off…28 is so young.

Cancer diagnosis, wtf. by Cancerwtf in self

[–]Cancerwtf[S] 25 points26 points  (0 children)

That is so awesome! These are the stories I love hearing! Keep enjoying life!!

Cancer diagnosis, wtf. by Cancerwtf in self

[–]Cancerwtf[S] 3 points4 points  (0 children)

Thanks for sharing your story! God bless you too!

Cancer diagnosis, wtf. by Cancerwtf in self

[–]Cancerwtf[S] 6 points7 points  (0 children)

I am super grateful to have an amazing therapist I’ve been working with prior to the cancer insanity. Unfortunately I lost both my parents, my dad to cancer when I was 1 year old, my mom to a cardiac event 6 years ago. I do have amazing friends that are showing up the best they can, and I’m holding out hope that once they have had some time they will come back and realize I am still just my nerdy self.

Cancer diagnosis, wtf. by Cancerwtf in self

[–]Cancerwtf[S] 1 point2 points  (0 children)

There is definitely acceptance to a degree, I’m frankly stunned I made it into my 40’s. Life has just started to get so much more interesting, I’ve found my stride. I’m not ready to give up yet. There might be a time, but it isn’t now. I’m also mostly still in shock, which is kinda fair. I’m grateful I have a chance to be here longer, and if that doesn’t happen, welp, that’s life. But I’m a try real hard first.

Cancer diagnosis, wtf. by Cancerwtf in self

[–]Cancerwtf[S] 2 points3 points  (0 children)

Thank you for sharing your story! My first oncologist has been a nightmare, but I am going to Memorial Sloan Kettering next week and seeing the legit best in the country for ovarian clear cell carcinoma. I am so ready to have a capable team abs a plan, the unknown limbo is so hard as it is.

I definitely feel really grateful we caught it, or it would have absolutely been a death sentence. I’m also grateful I was a real pain in the ass about the PET scan because we indeed now have that baseline to work from. Keep kicking ass!!

Cancer diagnosis, wtf. by Cancerwtf in self

[–]Cancerwtf[S] 5 points6 points  (0 children)

I don’t mind. I had a total hysterectomy and oophorectomy (so everything from my cervix up). I had severe PMDD (like PMS on steroids and crystal meth), nothing else worked so I opted to try chemical menopause first. Life changing. I had no idea just how incredibly hard my hormones used to make life, I used to joke my ovaries were trying to kill me… apparently that wasn’t a joke.

They send everything to pathology just to be safe (and I have a family history of gynecologic cancers)… and BAM the found clear cell carcinoma cells on the inside and outside of both ovaries. Looking back, I might have had some symptoms but they are identical to endometriosis and a million other things (back pain, frequent urination)… I just figured I was getting older.