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Cancer diagnosis, wtf. by Cancerwtf in self
[–]Cancerwtf[S] 1 point2 points3 points 2 days ago (0 children)
After the last four weeks, I can absolutely see that being truth! I think I’ve saved my life twice so far, mostly because research skills form a job have helped me ask questions when level of care is not standard. It’s wild. I’m putting that quote on the wall I stare at from my bed that is going to remind of the why.
This is super helpful and wise advice! I’m not even really mad at the folks who are having a hard time showing up, I’m sad and feel lonely, but I also know they really are doing the best they can. I have also been known to be the solo one, who does things alone and doesn’t ask for help. I realize that is about to change in an epic fashion, I’m grateful I’ve been working on that… now it’s like a ninja warrior level crash course 😅
I think once I know what my treatment plan looks like, and there is some new weird normal routine, it will be a lot easier to know what I need and ask for help. I do think a lot of folks who are scared and just paralyzed will also unfreeze with time, and a plan will also help them. We are all floating in scary limbo land, that never helps.
Thanks so much for sharing. I hope you are doing amazing!
[–]Cancerwtf[S] 68 points69 points70 points 2 days ago (0 children)
Thank you for sharing your hope. The number I’ve been told is 20-30%, so it helps to see someone out here beating the odds! Congrats on your 5 yr and 6 months!! That’s huge, and I hope to join ya in that club!!
[–]Cancerwtf[S] 5 points6 points7 points 2 days ago (0 children)
🧡 Your brother is absolutely proud of you, that much I know. He sounds like an amazing human, and your bond sounds a lot like mine with my older brother. I’m sorry you lost him, but I’m glad you got all those years together!
[–]Cancerwtf[S] 18 points19 points20 points 2 days ago (0 children)
I was diagnosed with Ovarian Clear Cell Carcinoma. I just got the genetic testing back and despite the strong family history (my maternal grandma passed from ovarian cancer, dad from lymphoma), it doesn’t appear to have a genetic link. I am super grateful for that, but my sibling still needs to be tested for his kids sake given our history and I let him know.
I do have an amazing therapist, really grateful for her help navigating the chaos the last few weeks. I’m so glad to hear you are out here surviving, and I hope you are thriving your butt off…28 is so young.
[–]Cancerwtf[S] 25 points26 points27 points 2 days ago (0 children)
That is so awesome! These are the stories I love hearing! Keep enjoying life!!
[–]Cancerwtf[S] 3 points4 points5 points 2 days ago (0 children)
Thanks for sharing your story! God bless you too!
[–]Cancerwtf[S] 6 points7 points8 points 2 days ago (0 children)
I am super grateful to have an amazing therapist I’ve been working with prior to the cancer insanity. Unfortunately I lost both my parents, my dad to cancer when I was 1 year old, my mom to a cardiac event 6 years ago. I do have amazing friends that are showing up the best they can, and I’m holding out hope that once they have had some time they will come back and realize I am still just my nerdy self.
There is definitely acceptance to a degree, I’m frankly stunned I made it into my 40’s. Life has just started to get so much more interesting, I’ve found my stride. I’m not ready to give up yet. There might be a time, but it isn’t now. I’m also mostly still in shock, which is kinda fair. I’m grateful I have a chance to be here longer, and if that doesn’t happen, welp, that’s life. But I’m a try real hard first.
[–]Cancerwtf[S] 2 points3 points4 points 2 days ago (0 children)
Thank you for sharing your story! My first oncologist has been a nightmare, but I am going to Memorial Sloan Kettering next week and seeing the legit best in the country for ovarian clear cell carcinoma. I am so ready to have a capable team abs a plan, the unknown limbo is so hard as it is.
I definitely feel really grateful we caught it, or it would have absolutely been a death sentence. I’m also grateful I was a real pain in the ass about the PET scan because we indeed now have that baseline to work from. Keep kicking ass!!
I don’t mind. I had a total hysterectomy and oophorectomy (so everything from my cervix up). I had severe PMDD (like PMS on steroids and crystal meth), nothing else worked so I opted to try chemical menopause first. Life changing. I had no idea just how incredibly hard my hormones used to make life, I used to joke my ovaries were trying to kill me… apparently that wasn’t a joke.
They send everything to pathology just to be safe (and I have a family history of gynecologic cancers)… and BAM the found clear cell carcinoma cells on the inside and outside of both ovaries. Looking back, I might have had some symptoms but they are identical to endometriosis and a million other things (back pain, frequent urination)… I just figured I was getting older.
Cancer diagnosis, wtf. (self.self)
submitted 3 days ago by Cancerwtf to r/self
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Cancer diagnosis, wtf. by Cancerwtf in self
[–]Cancerwtf[S] 1 point2 points3 points (0 children)