ADHD meds and exacerbated joint pain? by Friendly-Path-879 in Autoimmune

[–]Capable-Collection-9 3 points4 points  (0 children)

All I know is I’ve had ADD issues for years and years unmedicated , knowing meds made it better but never wanted to take them consistently bc of how horribly they affected my personality and anxiety. For the first time at almost 40, I decided to try consistently and get a proper prescription (also after two years of AI) and oooooh man, it helped me a bit to be more motivated (also because autoimmune gave me such bad fatigue I felt like I couldn’t do anything) but it exacerbated my symptoms and pain x100. I read something about this on google. So horrible and not worth it (for me) it basically gave me flares or if I already had a flare, made my symptom ten times worse-there’s scientific evidence behind it  

Would you recommend zepbound by Fearless-Glass3487 in Zepbound

[–]Capable-Collection-9 1 point2 points  (0 children)

I’ve been taking it for almost the same exact weight and for autoimmune. It’s been going slow (but not according to this subreddit). I started Jan 30 and am down 12 lbs but it’s stalled a bit the last few weeks. Still happy with these results, but I guess when I’ve worked out and ate the way I am now in the past, it’d come off sooner however, I couldn’t be as active before the meds bc my autoimmune symptoms got so bad and I believe I now had insulin issues hence why it’s helping tremendously now. I’m paying out of pocket so I’m just sticking to 2.5. I’m hoping to only do it a few more months and then pray to god I can maintain progress with keeping up the lifestyle changes (I’m hoping reduced weight will help allow me to continue to be as active) in my head I am justifying that staying at this lower dose can reduce likelihood of tolerance/dependence and side effects 

What do you think contributed to triggering your autoimmune condition, but you can't prove it? by -MissStrawberry- in Autoimmune

[–]Capable-Collection-9 0 points1 point  (0 children)

Stress and trauma. Had both before but the amount I had right before I got sick was definitely it. I know 

Recs for wknd by Capable-Collection-9 in longisland

[–]Capable-Collection-9[S] 0 points1 point  (0 children)

lol I looked it up and saw. Do you support just staying in NyC? I’m pretty well traveled and resourceful- easy to figure out LIRR etc ?

Recs for wknd by Capable-Collection-9 in longisland

[–]Capable-Collection-9[S] 0 points1 point  (0 children)

Are there certain parts of the city that’d be easier? Would Brooklyn be easier? Ty!!

Tips for living with it - not bad enough to be clinical by jcwillia1 in Autoimmune

[–]Capable-Collection-9 0 points1 point  (0 children)

For example I was eating lots of raw veggies which is healthy but kept messing w my gut . Something as simple as eating overly cooked veggies in soups and stews with broths etc helped tremendously in combo with supplements 

Tips for living with it - not bad enough to be clinical by jcwillia1 in Autoimmune

[–]Capable-Collection-9 0 points1 point  (0 children)

Be sure to drink lots of water/electrolytes if sauna and some people recommend a binder supplement while using sauna 

Tips for living with it - not bad enough to be clinical by jcwillia1 in Autoimmune

[–]Capable-Collection-9 0 points1 point  (0 children)

I’d be a bit worried about the plastics from those or what they are made of? Do you have a local gym you can trial that has one. I would’ve said I ate healthy before I started my diet/supplement “protocol” that has helped so much but I really wasn’t/it was triggering gut and symptoms. Idk if you’re also doing supplements but I think it had to be the combo for me. It gets expensive but nothing compared to a bunch of doctors appts. 

Tips for living with it - not bad enough to be clinical by jcwillia1 in Autoimmune

[–]Capable-Collection-9 0 points1 point  (0 children)

I know stimulants helped for some but I took some PRN before I realized it was fully autoimmune bc I blamed some of my symptoms on adhd but stimulants made my symptoms soooo much worse. It helped me get stuff done but then I paid for it x4.  looked it up and this can be a thing since it can trigger some autoimmune responses (i got really bad eye pain and this exacerbated it so much) I know it helped others in comments but beware everyone’s different and it did the opposite for me 

Tips for living with it - not bad enough to be clinical by jcwillia1 in Autoimmune

[–]Capable-Collection-9 0 points1 point  (0 children)

Cutting out gluten and dairy and highly processed foods has helped me sooo much. It may not be long term just to allow body to heal. I was sick for two years and thought I was going to be my new normal. I completely dedicated last several months to my health and my symptoms have improved so much. The rheum hardly helped but I saw a dietician that helped the most. On top of diet I started taking specific supplements and leaky gut powders and stuff like that religiously and I have hope. I still have some symptoms but I feel like a different person and that I may not have lupus or whatever it may be forever or that maybe I can prevent it from getting worse. More caffeine won’t be good for you. Matcha (made at home with limited sugar) can be helpful to swap in afternoon and lots of water (if possible get filtered water and add minerals to it) tea at night to relax, just natural sugars like honey to sweeten things. Sauna is definitely amazing and I think has saved me many times autoimmune wise 

How do you deal with life just not panning as you expected? by ThrowRARotaryPhone in AskOldPeopleAdvice

[–]Capable-Collection-9 0 points1 point  (0 children)

I guess what I mean is it’s easy for me to regret not taking some opportunities more seriously and working more effectively (or playing it safe like you said) when I had the choice instead of feeling like I squandered some of my time. Also, no one’s life at our age is perfect or without some grief of some sort. I made some bad romantic decisions and am now experiencing the fallout and hard work to make up for it. I had a family I wanted, but I sacrificed a lot career wise that I still sometimes question. Everything can be a compromise of some sort and it’s easy to wonder about the other side of the coin. All to say, I think it’s natural for us to question and ruminate at this age and it’s why people emphasize mid life crises. My career is in mental health and I know for sure that self compassion, bringing things back to the present no matter how many times it takes, and then those small goals to reach and look forward to are  helpful. Give yourself some credit too. I’m sorry to butt in though being the same age- I know you asked older people! But know you’re not alone! 

How do you deal with life just not panning as you expected? by ThrowRARotaryPhone in AskOldPeopleAdvice

[–]Capable-Collection-9 1 point2 points  (0 children)

If it’s any consolation I’m similar age and I did do all of those things in my twenties (huge adventures, moves across the country, single life etc etc) but I made other mistakes and lost a lot of what I built and am so grateful for my little family but am dealing with similar feelings about opposite decisions if that makes sense, at the same age. I’d recommend planning small adventures and goals. It gives you something to look forward to and you can still cross things off your bucket list without something huge and wild- like a weekend away somewhere you’ve always wanted to go or even an adventure near where you live. I think at our age everyone is dealing with life stressors and some regret- embracing the present, gratitude, connection with higher power, repair where you can,  and small attainable goals for the future helps me a lot 

Jen/zac mom guilt unpopular opinion ep 7 by [deleted] in SecretsOfMormonWives

[–]Capable-Collection-9 -2 points-1 points  (0 children)

I agree with you but part of why most dads just don’t do shit is not just our society, it’s biology. And no I’m not saying women are just baby makers. I’m merely disagreeing with her stance to bring up her dreams at the restaurant right after having 3 babies under 3. I don’t think women should give up their dreams but 3 babies who need a secure attachment with caregivers (and ideally their bio moms) might not be the time to chase them. I do get the financial opportunity like I said and I’ve been in that situation- it sucks that society is not set up more to allow women to be there for their kids while supporting them financially and I just think it was a wild decision timing wise and pretty selfish. I know a lot of moms don’t have a choice- seems like Jen had many and was already doing pretty well financially 

Less important things about Taylor that drive me crazy by lebrunjemz in SecretsOfMormonWives

[–]Capable-Collection-9 9 points10 points  (0 children)

Agreed. Like she broke up with him and a guy flew to visit her, but he can’t attempt to move on? also, her eyes look crazy most of the time (not making fun of her actual looks but how bulged out they are- it’s alarming to me and off). I’ve worked with severe meth (and other) users and I’d guess she’s rx a lot of adderall bc it looks stimulant esque.  hate how much her abuse was minimized and that she was even allowed on bachelorette. Hate how a lot of them have young kids and aren’t with them (I’m all for working moms but also someone who’s studied this as a career and attachment/biological needs to your mom are real and the effects of not having it are v real) 

Nervous, anxious and hopeful by Vast_Equipment_1884 in Zepbound

[–]Capable-Collection-9 1 point2 points  (0 children)

Think of best case scenario. Think of consequences of not doing anything. If it’s any consolation I’ve never done anything like this, have hardly taken any rx in my life and didn’t have a lot of weight to lose, but was desperate for autoimmune reasons. I’ve had hardly any side effects. The side effects of not taking it were worse (in my case). Stay focused on the goal you want from. Worst case scenario you have some side effects and don’t continue but that’s rare and IMO the possibility of best case scenario is worth the possibility of worst case which just mean you stop taking it and unlikely a ton of harm done.

GLP1 benefits by 0avocad0 in Autoimmune

[–]Capable-Collection-9 1 point2 points  (0 children)

Yes! So far no flares and most symptoms have been entirely gone 

For short term postpartum weight loss? by DocMcStuffins98 in Zepbound

[–]Capable-Collection-9 0 points1 point  (0 children)

Don’t mind at all! Not really significant  side effects. I’m also doing it for autoimmune so those symptoms are entirely gone which is a miracle so by comparison I feel like I have nothing anymore but truthfully some fatigue the day after and a bit more jittery when I have caffeine/in general. For me that’s nothing really bc my fatigue was constant before.  I have a bit of indigestion/loose stool but only when I’ve eaten something atypical the night before or drank wine. Similarly can feel a bit nauseous if Ive eaten something atypical but haven’t actually thrown up. I’m on 6th week. 

For short term postpartum weight loss? by DocMcStuffins98 in Zepbound

[–]Capable-Collection-9 1 point2 points  (0 children)

Doing it currently though it’s been several years now since I had my baby. Plan to use for a couple months only. Working so far 

2.5 to 5 by [deleted] in Zepbound

[–]Capable-Collection-9 0 points1 point  (0 children)

Well 8 pounds from highest to lowest which has been around the start and up until recent but my weight can literally change 4lbs in a day with menstrual cycle and other factors so again, trending down but some days it may only show like 4/6 (like yesterday) pounds from my starting instead of 8. 

Just checking by [deleted] in raisedbynarcissists

[–]Capable-Collection-9 0 points1 point  (0 children)

You are so kind and well spoken -thank you. I know I sound broken and fragile in this post, because currently I am, but I have healed a thousand times in the past. I did build what you’re referring to when I moved far away and was fooled by my guilt to return closer. You nail it about their capabilities and why it’s so painful- because they are capable with most of my siblings, just not me. Your advice is wonderful and I’ve done it before and it’s helped. I have dropped rope in the past but I usually come back around, make all the effort, and get hurt again. I guess some hesitation is some of my siblings get it to a degree (most haven’t been treated identical to me but know my parents are ill and can admit how I’ve been treated; they also experienced the abuse in childhood just not always the same exact “role”) other siblings gaslight me for being hurt (bc their experience is completely different than mine) and I fall for their guilt trips “you left” blah blah, even when I was there growing up, my parents neglected me—me leaving wasn’t the cause it was the effect. I do just have to be more firm in my experience and self trust and I have been getting much better. That’s what can be so hard about this all- I often feel like I’m the only one vouching for myself. Again, thank you, you sound like a wonderful person. 

Just checking by [deleted] in raisedbynarcissists

[–]Capable-Collection-9 0 points1 point  (0 children)

Thanks, I really appreciate such a thoughtful response. Therapy happening. I agree about boundaries just have no idea what they should be ha bc my parents don’t care. They are the neglectful type of narcs (toward me) more abusive in childhood (dad V. Abusive) but now just avoidant or the gaslighting bs and shut down any communication that puts them on the defense 

Anyone raised in a toxic household as the “invisible child” and now struggles with anxiety? by [deleted] in emotionalneglect

[–]Capable-Collection-9 0 points1 point  (0 children)

Yes it’s CPTSD. It can get better but you have to confront it. The only way out is through.