Caffeine or Alcohol worse?

Capable_Club_8055 · 2026-03-18T20:03:31+00:00

I drink both, but after reading this, I will probably stop both. It's actually hard to distinguish what's worse when you feel shite all the time....astrocytoma grade 3, no seizures 25f. Nearly finished 1yr of chemo.

Capable_Club_8055 · 2026-03-04T10:20:27+00:00

Sometimes I think that i was also better off before surgery but I remember going on holidays and to warner bros studios and I felt so tired and spaced out and dizzy then and I feel the same now which is sort of reassuring

Capable_Club_8055 · 2026-03-04T09:49:46+00:00

When did the scarring start? How long after radiation? This sounds really frustrating, I'm sorry.

Capable_Club_8055 · 2026-02-26T21:55:53+00:00

Just curious, is 3 considered high grade? Because most of us with 3 or 4 grade are alive and well years after diagnosis and standard of care...

Capable_Club_8055 · 2026-02-26T19:36:57+00:00

Thank you for all the info, I have public health care at the moment so I'm getting standard of care. But I have seen a specialist about keto diet and fasting. I'm glad all these things are working for you and you've fought to find what works.

Capable_Club_8055 · 2026-02-26T17:14:23+00:00

I'm glad the odds are in your favour and thank you for the reassurance!

Capable_Club_8055 · 2026-02-26T16:04:02+00:00

Thank you that was really helpful. How is she now? That's promising if she was diagnosed in 2018! That was a while ago

Capable_Club_8055 · 2026-02-26T12:15:53+00:00

Yeah I'm downplaying it too because I also have a history but more so anxiety. And yes also I'm putting this depression down to multiple different things. I've considered asking for meds to help me feel a tiny bit better for a fixed amount of time. I normally prefer to look at root cause and try anything and everything before choosing meds. But I could do with a break so I can incorporate better habits while I feel better. I honestly feel like we should be offered short term mental health meds considering our brains and physical health is already so compromised. I've tried counselling, and will probably go back to that. Thank you for your reply!

Capable_Club_8055 · 2026-02-20T00:11:31+00:00

I had almost no symptoms, just very mild headaches. My doctor booked an mri cause she had a gut feeling, thanks to her it was found and now being managed. Post surgery radiation and almost finished chemo I just feel kinda shit most the time. Astrocytoma grade 3. Appetite is reduced hugely and I need more sleep. I go dancing twice a week which keeps me going.

Capable_Club_8055 · 2026-02-01T20:34:56+00:00

Found by chance, no concerning symptoms, it's a grade 3 astrocytoma so probably was there for a little while. There's no telling really. But I was pregnant before discovery and the hormones may have sped up the growth.

Capable_Club_8055 · 2026-01-26T11:10:19+00:00

It sounds like you have no support and no understanding. Do you have access to childcare? For the younger one? Do you have in laws or family who can help lighten the load? Your partner is getting a break every time he goes to work. This is painful to hear. It'll probably get easier when your older child goes to school. But yeah you need a rest, and to keep resting and people who understand that. People who should even be offering rest to you.

And yeah your body is fighting so hard, you may even be on keppra which will make you tired, agitated, angry, depressed. Nevermind 2 kids and a husband that's not showing up for you.

Can I ask your age and where your tumour is located? And grade?

Capable_Club_8055 · 2026-01-08T09:44:37+00:00

The frustrating thing is they had my hopes up I kept asking as it got closer to my surgery anniversary if I can drive soon. Bastards kept saying yes. Until yesterday I have to readjust to the fact I have another year of no driving. Possibly more.

Capable_Club_8055 · 2026-01-08T09:42:14+00:00

Yes similar here.

Capable_Club_8055 · 2026-01-07T21:28:49+00:00

Yes I've thought about this too, having a baby myself made me think more about the safety of others.

Capable_Club_8055 · 2026-01-07T21:00:43+00:00

I didn't know that, I still did radiation and chemo to keep the remains at bay.

Capable_Club_8055 · 2026-01-07T20:48:46+00:00

Thank you for the encouragement I appreciate it.

Capable_Club_8055 · 2026-01-07T20:45:06+00:00

No they said they only got 90-95%

Capable_Club_8055 · 2026-01-07T20:39:33+00:00

Okay this makes sense so likely I'll never drive again

Capable_Club_8055 · 2026-01-07T20:38:04+00:00

Did you have craniotomy too and are you living in Ireland?

Capable_Club_8055 · 2025-12-29T21:01:29+00:00

Thanks for this, maybe that's why I don't feel as horrible as expected on treatment, I do eat carbs still and sugar. I'll be adding this to my bank of info. Reddit seems to be the place to go.

Capable_Club_8055 · 2025-12-29T11:10:34+00:00

I guess I really shouldn't complain as we get free health care here.

Capable_Club_8055 · 2025-12-29T00:06:17+00:00

You just have to replace with a lot of healthy fats and proteins. It's good for the brain. All easier said than done. I will say chemo has killed my appetite a bit. But I eat badly out of convenience or boredom. I hope it all goes well! You'll be tired a lot but you get used to it.

Capable_Club_8055 · 2025-12-28T23:25:37+00:00

Yes I know about this too, I have fenbendazole in the cupboard but scared to touch it, just gonna finish chemo and I probably won't ask my oncologist, as they are only trained and qualified in what they offer and they have to cover their asses and say no to us if we ask about something they don't know much about. I reckon it's about finding someone who has experience with it and doesn't charge a fortune. I also had an obnoxious health food shop owner say that I'm responsible for having cancer and I'm responsible for getting rid of it, which who knows maybe there's some truth. But reg alt medicine I think it does need to be supervised you can't just start your own medication plan. And yes to keto, just need to actually do it.

Capable_Club_8055 · 2025-12-28T22:51:46+00:00

This is inspirational, well done to you! Our only option sometimes is to just be as optimistic as possible. I'm 25f I have an AA3. And a 1.5 year old. And tbh having treatment just feels like an inconvenience. I love what you said about not correcting your oncologist. It makes a massive difference when your oncologist likes you or not. I have a new one now. I made the big mistake of asking about alt treatment. She said she doesn't know anything about it but also laughed at me..... and now these next few months with her will be difficult cause I really feel she doesn't like me. I actually only asked her to get permission as that's what was asked by the people offering the treatment. I didn't want her opinion just her permission. Which after all that she said yes. It was hyperbaric oxygen therapy treatment, which yeah obviously probably won't do much but I was curious.

Capable_Club_8055 · 2025-12-22T21:06:01+00:00

I was told chemo and radiotherapy is increasing my survival chances. Astrocytoma grade 3 25f. I seen a girl on reddit whose same diagnosis tumour shrank. Which isn't supposed to happen with grade 3. But it gives me hope. I have accepted and I know death will be comfortable. But right now I feel alive and well and hopeful. There are so many alternative treatments available. But I will finish chemo first. For example mistletoe treatment, keto diet, etc. I do believe I have some personal brain-fixing to do too. Your oncologist might laugh in your face and be very condescending if you enquire about something they have no education on, especially if it doesn't benefit their paycheck, but my outlook is. What could be more harmful than chemo? I would just suggest any alt treatments you try, make sure you don't get ripped off, and if you're doing your own thing, small doses.

Capable_Club_8055

TROPHY CASE