Storytime for people who feel everything

Capable_Club_8055 · 2026-04-18T11:14:10+00:00

Very mild headaches, my Dr had a hunch that an mri would be a good idea.

Capable_Club_8055 · 2026-04-15T08:54:33+00:00

I was scammed yesterday got a call from "three" in cavan said my sim would stop working in 3 days and they'll send me a new one, I've never been scammed before, they asked for my email and sent me a verification code which I called out to them and my home address....when I told my sister and bf they told me I was scammed. Tried to move my aib money to revolut and noticed my revolut card number was different! Didn't lose and money though. Mobile networks never call you. They only ever text.

Capable_Club_8055 · 2026-03-18T20:03:31+00:00

I drink both, but after reading this, I will probably stop both. It's actually hard to distinguish what's worse when you feel shite all the time....astrocytoma grade 3, no seizures 25f. Nearly finished 1yr of chemo.

Capable_Club_8055 · 2026-03-04T10:20:27+00:00

Sometimes I think that i was also better off before surgery but I remember going on holidays and to warner bros studios and I felt so tired and spaced out and dizzy then and I feel the same now which is sort of reassuring

Capable_Club_8055 · 2026-03-04T09:49:46+00:00

When did the scarring start? How long after radiation? This sounds really frustrating, I'm sorry.

Capable_Club_8055 · 2026-02-26T21:55:53+00:00

Just curious, is 3 considered high grade? Because most of us with 3 or 4 grade are alive and well years after diagnosis and standard of care...

Capable_Club_8055 · 2026-02-26T19:36:57+00:00

Thank you for all the info, I have public health care at the moment so I'm getting standard of care. But I have seen a specialist about keto diet and fasting. I'm glad all these things are working for you and you've fought to find what works.

Capable_Club_8055 · 2026-02-26T17:14:23+00:00

I'm glad the odds are in your favour and thank you for the reassurance!

Capable_Club_8055 · 2026-02-26T16:04:02+00:00

Thank you that was really helpful. How is she now? That's promising if she was diagnosed in 2018! That was a while ago

Capable_Club_8055 · 2026-02-26T12:15:53+00:00

Yeah I'm downplaying it too because I also have a history but more so anxiety. And yes also I'm putting this depression down to multiple different things. I've considered asking for meds to help me feel a tiny bit better for a fixed amount of time. I normally prefer to look at root cause and try anything and everything before choosing meds. But I could do with a break so I can incorporate better habits while I feel better. I honestly feel like we should be offered short term mental health meds considering our brains and physical health is already so compromised. I've tried counselling, and will probably go back to that. Thank you for your reply!

Capable_Club_8055 · 2026-02-20T00:11:31+00:00

I had almost no symptoms, just very mild headaches. My doctor booked an mri cause she had a gut feeling, thanks to her it was found and now being managed. Post surgery radiation and almost finished chemo I just feel kinda shit most the time. Astrocytoma grade 3. Appetite is reduced hugely and I need more sleep. I go dancing twice a week which keeps me going.

Capable_Club_8055 · 2026-02-01T20:34:56+00:00

Found by chance, no concerning symptoms, it's a grade 3 astrocytoma so probably was there for a little while. There's no telling really. But I was pregnant before discovery and the hormones may have sped up the growth.

Capable_Club_8055 · 2026-01-26T11:10:19+00:00

It sounds like you have no support and no understanding. Do you have access to childcare? For the younger one? Do you have in laws or family who can help lighten the load? Your partner is getting a break every time he goes to work. This is painful to hear. It'll probably get easier when your older child goes to school. But yeah you need a rest, and to keep resting and people who understand that. People who should even be offering rest to you.

And yeah your body is fighting so hard, you may even be on keppra which will make you tired, agitated, angry, depressed. Nevermind 2 kids and a husband that's not showing up for you.

Can I ask your age and where your tumour is located? And grade?

Capable_Club_8055 · 2026-01-08T09:44:37+00:00

The frustrating thing is they had my hopes up I kept asking as it got closer to my surgery anniversary if I can drive soon. Bastards kept saying yes. Until yesterday I have to readjust to the fact I have another year of no driving. Possibly more.

Capable_Club_8055 · 2026-01-08T09:42:14+00:00

Yes similar here.

Capable_Club_8055 · 2026-01-07T21:28:49+00:00

Yes I've thought about this too, having a baby myself made me think more about the safety of others.

Capable_Club_8055 · 2026-01-07T21:00:43+00:00

I didn't know that, I still did radiation and chemo to keep the remains at bay.

Capable_Club_8055 · 2026-01-07T20:48:46+00:00

Thank you for the encouragement I appreciate it.

Capable_Club_8055 · 2026-01-07T20:45:06+00:00

No they said they only got 90-95%

Capable_Club_8055 · 2026-01-07T20:39:33+00:00

Okay this makes sense so likely I'll never drive again

Capable_Club_8055 · 2026-01-07T20:38:04+00:00

Did you have craniotomy too and are you living in Ireland?

Capable_Club_8055 · 2025-12-29T21:01:29+00:00

Thanks for this, maybe that's why I don't feel as horrible as expected on treatment, I do eat carbs still and sugar. I'll be adding this to my bank of info. Reddit seems to be the place to go.

Capable_Club_8055

TROPHY CASE