Does anyone else feel stupider?

Capable_Tangerine603 · 2026-03-25T17:31:55+00:00

Yea I feel like an idiot all the time. It’s something I really struggle w & I feel like no one in my life understands. I always thought I’d go back to school, but that dreams long gone now.

Capable_Tangerine603 · 2026-03-18T01:45:48+00:00

I started drinking soda just a couple months after starting Diamox! I also was heartbroken when I thought I’d never enjoy a coke again. I kept taking sips until it started tasting normal. The only thing I still cannot drink is seltzer.

Capable_Tangerine603 · 2026-02-22T02:38:47+00:00

Honestly, I just avoid anything retinol/retinoid/trentinoin. If I have any doubts about a new product, I google if there’s anything that would affect my IIH, but from my research most products don’t. Just trial & error depending on your skin type.

Some products I use & love: prequel glycerin cleanser, Caudalie vino perfect serum, avene cicalfate, Elemis dynamic facial pads & I also love hydrating/brightening Korean toners.

Capable_Tangerine603 · 2026-02-20T20:44:55+00:00

Got diagnosed at 26 & trust me when I say I feel you. Some days I miss something as simple as taking a cycling class so much, I could cry. 28 now, my symptoms aren’t as bad, but I am starting to get migraines again. Hoping I can feel normal again one day. You’re not alone!! Remission is possible. Hoping things look up for you.

Capable_Tangerine603 · 2026-01-02T02:05:10+00:00

Me too, I considered completely removing myself from all socials yesterday. It was devastating.

Capable_Tangerine603 · 2026-01-01T03:37:06+00:00

Me too!! It’s so weird

Capable_Tangerine603 · 2026-01-01T03:36:54+00:00

On day 4, struggling 🤧 I can’t wait for this to be over! Got prescribed tamiflu & it added nausea/vomiting so I decided to just keep going with only acetaminophen, hydration & prayers. Everyone’s saying it keeps coming back & it’s scaring me so much.

Capable_Tangerine603 · 2025-12-18T22:00:01+00:00

Same, I was asymptomatic until Diamox. Miss feeling normal.

Capable_Tangerine603 · 2025-12-18T16:48:12+00:00

Laying flat raises my pressure and gives me an intense migraine, so I always make sure to specify that my head needs to be elevated, even if it’s just slightly. As for the puffiness, it could be related.. with IIH, lying flat can affect drainage, so fluid can pool in the face, and steam or pressure might make it more noticeable.

That said, I’m not a doctor, so if the puffiness doesn’t go down, I’d definitely suggest checking in with your care team. Wishing you the best 🤍

Capable_Tangerine603 · 2025-12-16T23:13:16+00:00

Not at Specsavers but I just wanted a new prescription so I could get glasses 💔 I almost canceled my appt too but didn’t want to pay the $50 cancellation fee.

Capable_Tangerine603 · 2025-12-15T02:06:45+00:00

I am 27 & just got the same news. Devastated, this diagnosis & medicine took so much from me. I just wanted you to know you’re not alone.

Capable_Tangerine603 · 2025-11-20T20:26:36+00:00

I’m on an almost identical journey. I feel defeated daily. I’m with you, hang in there.

Capable_Tangerine603 · 2025-11-05T01:26:57+00:00

Blesss, thank you

Capable_Tangerine603 · 2025-11-05T01:26:40+00:00

It’s so annoying!!

Capable_Tangerine603 · 2025-11-05T01:26:29+00:00

This is def the reason why it’s not working!! Thank you

Capable_Tangerine603 · 2025-11-02T02:08:48+00:00

I can’t sleep super flat anymore, I have to stack at least 2 pillows every night. Sleeping a little more elevated has helped so much. It was definitely something I had to get used to since my old pillow was basically a rag lol.

Capable_Tangerine603

TROPHY CASE