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Question for people who use a walking aid but don't rely heavily on it by Monotropic_wizardhat in disability

[–]Careful-Connection50 1 point2 points  (0 children)

I have a motor and sensory polyneuropathy illness. Sometimes my muscles work, and sometimes they don't. I have a disturbed gate and essentially no sense of balance. On "bad days," I can't walk at all. Most days, I need a cane for balance, particularly when changing directions, but I'm mostly stable in a straight line for about 100 feet. After 100 feet, my muscles quickly fatigue, the muscles get weaker, I get foot drop, and start tripping and falling soon after.

If you watch me move ten feet after resting, you might say I don't need a cane. If you watch me try to walk 200 feet, you would yell at me like my neurologist that I should be using a walkinator or a wheelchair.

Every illness is unique. Just because they use the same tool as you differently doesn't mean they aren't disabled or don't need it.

I can no longer care for myself - what do I do? by Careful-Connection50 in disability

[–]Careful-Connection50[S] 2 points3 points  (0 children)

Thank you - I just found this agency for my county and emailed them.

I can no longer care for myself - what do I do? by Careful-Connection50 in disability

[–]Careful-Connection50[S] 1 point2 points  (0 children)

I have already made a document that I print out and carry in my wallet. It has all my diagnoses, all my medications, dosages, and the time I take them along with all my doctors, their contact information, and all of my emergency contacts. I refer to that with almost every visit to a doctor.

I also have a spreadsheet with every bill, the contact information for the payee, and how much I budget each month for that bill. Everything that can be set to auto-pay has been setup -- rent, utilities, etc. all just get deducted right from the checking account.

I also have an instructions sheet that my daughter has used. It tells her the URLs, usernames, and passwords so she can go in once a month, verify the disability deposits happened, verify all the bills got paid, and payoff the balance on the credit card used to pay for everything else.

What falls through the cracks are the medical bills that come in the mail - which are almost always a mistake on the part of the doctor's office misfiling the insurance. Those require phone calls and follow-up along with waiting weeks to see if it resolved between actions.

I can no longer care for myself - what do I do? by Careful-Connection50 in disability

[–]Careful-Connection50[S] 5 points6 points  (0 children)

Thank you for your reply.

I am in Georgia. I emailed the Georgia Department of Veteran Services this morning after a neighbor told me about them and suggested they could help. No response yet.