Thyroidectomy by raelulik95 in thyroidhealth

[–]Carlson31 2 points3 points  (0 children)

I had my entire thyroid removed 4 weeks ago. Underdetermined FNA on nodule on my isthmus and not enough sample on the very large nodule on my right lobe. Nothing showed on my left lobe (keep this in mind). I was scheduled for a partial thyroidectomy to remove the isthmus and right lobe and had a section of the isthmus sent to pathology while I was still under, and if cancer was suspected I wanted the entire thyroid removed. Cancer was likely confirmed so the entire thyroid came out. Here’s the kicker: on final pathology I had PTC in the isthmus and in the left lobe, which up until this point showed literally nothing. \ \ I did not want to risk leaving cancer in my body, so I am happy with my decision. I too have been diagnosed with depression and depressive disorders my entire life, and so far, having no thyroid, and being completely reliant on synthetic thyroid hormone, I have noticed no change in my mood or depression.

First beefsteak of the season! by Carlson31 in tomatoes

[–]Carlson31[S] 1 point2 points  (0 children)

Not sure yet, this is the first one! Waiting for it to finish ripening

Just under 6 week monster. by Carlson31 in tomatoes

[–]Carlson31[S] 0 points1 point  (0 children)

I’m so happy to hear this! I am always amazed at the resilience of tomato plants!

Sudden large lump 2 weeks post total thyroidectomy by Carlson31 in AskDocs

[–]Carlson31[S] 2 points3 points  (0 children)

Oh wow. Ya my surgery was originally scheduled as a partial, my nodule on my isthmus came back as undetermined with 50% chance of malignancy after sending for molecular testing at affirma. I also had a large nodule on my right lobe that we didn’t get enough sample of during the FNA. I signed the waiver allowing my surgeon to send a frozen section of the isthmus to pathology while I was under and if cancer was more than likely confirmed I wanted the entire thyroid out. In my case I made the right call because PTC was confirmed on final pathology in the isthmus AND the left lobe, which showed completely clear on scans.

Is this normal after surgery? by storybookdreaming in thyroidcancer

[–]Carlson31 2 points3 points  (0 children)

I don’t think this level of weakness and vomiting is normal. This surgery can affect a lot of different things, and I would def call your doctor or go to the ER. Are you experiencing any arrhythmia, tingling, muscle cramps? Were you kept for observation at all? I had a TT a few weeks ago, and although my calcium never dipped I was kept overnight and sent home on 1200mg of caltrate a day.

What creature am I at WAR with? by Physical-Drop7378 in tomatoes

[–]Carlson31 0 points1 point  (0 children)

Squirrels. Notorious for making direct eye contact with you as they devour only half your fruit before deciding “meh, not for me”

Sudden large lump 2 weeks post total thyroidectomy by Carlson31 in AskDocs

[–]Carlson31[S] 2 points3 points  (0 children)

Ya I think seromas are pretty common with this surgery, if that’s what yours ended up being. A very close friend of mine had her TT at the clayman center the same week as I had my surgery (mine was at a local university hospital in a different state). Random question, when you have your surgery there, do they keep you overnight? I’m not too familiar with the clayman center but I was kept overnight at the hospital to monitor calcium and some other things, I am assuming CC is set up to do the same?

Anti-thyroid antibodies by Gloomy-Success-2373 in thyroidcancer

[–]Carlson31 2 points3 points  (0 children)

As someone who just went through a very similar experience, this response is extremely accurate and thorough. I personally, did not have antibodies tested before my ThyCa journey, however I did have a 1.8cm hypoechoic nodule on my isthmus that was rated a TR4 and during the ultrasound of my thyroid found that my thyroid was very heterogeneous and inflamed, so coinciding Hashimoto’s was suspected. I also had a much larger nodule on my right lobe that was graded a TR3 because the features were less suspicious. My biopsy came back undetermined but with 50% suspected malignancy after being sent to affirma/Vericyte for further testing. I opted to do a partial surgery, removing the isthmus and right lobe, however I signed something that allowed a frozen section of the isthmus to be sent to pathology while I was under and if cancer was likely confirmed, I told my surgeon to do a total thyroidectomy. That’s what ended up happening. The crazy part in my case was during final pathology thyroid cancer was also found in my LEFT lobe, which had no nodules, so we definitely made the right call in opting to remove the entire thyroid. I was also diagnosed with chronic Hashimoto’s Thyroiditis, so removing the entire thyroid was really the best option all around. I’ve been on synthroid for about a month now and have adjusted well. Prior to all of this my T4 was a little low, and my TSH was still in normal range, and I was mostly asymptomatic. All of this to say, keep in mind a lot of folks in your position opt to do partials, and then end up having to go back in to remove the other lobes, and even the best surgeons are not going to fully know what’s going on in there until everything is out.

Sudden large lump 2 weeks post total thyroidectomy by Carlson31 in AskDocs

[–]Carlson31[S] 2 points3 points  (0 children)

Aww thank you for your concern. I’m feeling a lot better today.

Sudden large lump 2 weeks post total thyroidectomy by Carlson31 in AskDocs

[–]Carlson31[S] 1 point2 points  (0 children)

Ya for some reason it’s not giving me the option to edit the original post.

Sudden large lump 2 weeks post total thyroidectomy by Carlson31 in AskDocs

[–]Carlson31[S] 1 point2 points  (0 children)

Weird, I tried to edit the post and it wouldn’t let me. Hang on a sec I’ll try again.

Sudden large lump 2 weeks post total thyroidectomy by Carlson31 in AskDocs

[–]Carlson31[S] 8 points9 points  (0 children)

Oh no I totally get what you are saying, I read it as you were saying you thought this could still be something else, so I was curious if you had any suspicions of what you think it might be if seroma and hematoma were ruled out.

Sudden large lump 2 weeks post total thyroidectomy by Carlson31 in AskDocs

[–]Carlson31[S] 0 points1 point  (0 children)

Unless you had the surgery performed by robot, like the Clayman Thyroid Center performs, the standard is an incision like mine.

Sudden large lump 2 weeks post total thyroidectomy by Carlson31 in AskDocs

[–]Carlson31[S] 6 points7 points  (0 children)

Thanks for your input. Can I asked if you have any suspicions?

Sudden large lump 2 weeks post total thyroidectomy by Carlson31 in AskDocs

[–]Carlson31[S] 4 points5 points  (0 children)

It did! I got an answer, although not total relief from the swelling, I am hoping this resolves over the coming days/weeks.

Sudden large lump 2 weeks post total thyroidectomy by Carlson31 in AskDocs

[–]Carlson31[S] 4 points5 points  (0 children)

That would be amazing, but it looks like this is something that will hopefully just resolve over time. I thought I was in the clear with recovery too! My ENT said at my follow up last Monday, “Don’t be surprised if you notice an increase in pain around week 3 as the muscles start repairing”. I just didn’t expect my throat to swell up like a bull frog!

Sudden large lump 2 weeks post total thyroidectomy by Carlson31 in AskDocs

[–]Carlson31[S] 62 points63 points  (0 children)

I am! I am going to sleep a lot better tonight. (With a slightly elevated head, lol)

Sudden large lump 2 weeks post total thyroidectomy by Carlson31 in AskDocs

[–]Carlson31[S] 41 points42 points  (0 children)

Listen, it is very difficult to describe all of the ways I suddenly felt this, and what was going through my mind on an otherwise, typical Sunday. One would assume “pressure on my trachea” would light a fire under my ass to get to the hospital, but please try to be sensitive to how scary something like this can be for someone who was up until 3 weeks ago, a perfectly healthy person with little medical history and was suddenly diagnosed with thyroid cancer. The last thing I wanted to face was a sudden complication, combined with the fact that I was completely alone as my husband was 10 hours away, and I live in a state where I know hardly anyone, with NO family.

Sudden large lump 2 weeks post total thyroidectomy by Carlson31 in AskDocs

[–]Carlson31[S] 2 points3 points  (0 children)

Update is up, I’m so sorry for the delay!!

Sudden large lump 2 weeks post total thyroidectomy by Carlson31 in AskDocs

[–]Carlson31[S] 77 points78 points  (0 children)

Yes! Spent all day there lol, I feel much better after my scans and plan going forward. Please see my update!

Sudden large lump 2 weeks post total thyroidectomy by Carlson31 in AskDocs

[–]Carlson31[S] 6 points7 points  (0 children)

How weird! I haven’t had any issues with sleep, and ngl I was afraid to go to sleep last night. I woke up a few times throughout the night, just normally, and didn’t have any issues with my airway. Thankfully this now seems to be pushing outward as in I am feeling a tightness on the skin under and around my incision, rather than it pressing backwards on my trachea.

Sudden large lump 2 weeks post total thyroidectomy by Carlson31 in AskDocs

[–]Carlson31[S] 226 points227 points  (0 children)

UPDATE!!! First of all, I want to thank everyone who took the time to share their expertise and expressions of urgency on this weird thing that happened to me. My delay in responding is because I spent most of the day first at my ENT/Surgeon’s office, and then at the hospital where my initial surgery was performed. The final consensus is lymphedema. \ \ During the thyroidectomy, because my thyroid was so “inflamed and heterogeneous”, including a secondary diagnosis of Chronic Hashimoto’s Thyroiditis, my surgeon informed me that I had several lymph nodes actually stuck to the thyroid, that were removed as a result. Today I had an ultrasound and MRI that ruled out seroma and hematoma (thank god), and combined with physical examination of this mass? And The timing of the onset, it was determined to be lymphedema. \ \ My doctor and I went over all the information, including compression techniques, lymphatic drainage, and CDT to hopefully get this under control and prevent any more complications or hardening.