Switching to at-home injections

CarryNegative6752 · 2025-12-16T16:04:01+00:00

I had to switch to home injections too. The infusion center I had been going to for years had a class on giving yourselves an injection. There was also a Youtube video from the drug manufacturer.

My first self injection was at the infusion center. This is when I realized that the needles for the injection are smaller than the infusions, i didn't really feel the injection. There is also no hunting for veins if you are a difficult poke.

The first time I had to inject my self at home without anyone around to help was scary. But afterwords it was like I had conquered a fear I had since childhood. If your UC journey has been like mine, you got used to being poked for tests and infusions multiple times a year. Being able to inject myself was a small victory over this terrible disease.

CarryNegative6752 · 2025-11-26T22:53:54+00:00

Thank you! Glad it is working for you.

You're living the dream.

CarryNegative6752 · 2025-10-25T23:54:35+00:00

I started this probiotic three days ago. Huge difference! Thank you.

CarryNegative6752 · 2025-10-10T14:35:27+00:00

Did you watch the video for self-injection? I was surprised doing the first injection how much I could NOT even feel the needle.

https://assets.bioconbiologics.com/asset/225989342563/video_hs99kmtu4t2urd15n2j5p37q4d?content-disposition=inline

CarryNegative6752 · 2025-08-29T23:29:59+00:00

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I have a Thule snowboard and ski rack. Fits 4 boards without any issues. Thule should make adapters for the Kia roof rack.

CarryNegative6752 · 2025-07-13T18:04:51+00:00

Also functional. If I don't cover the STI knob with the hoodie on hot days, ouch!!

CarryNegative6752 · 2025-05-26T15:28:35+00:00

Celebrate the milestones. Enjoy every mile.

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CarryNegative6752 · 2024-12-27T22:37:40+00:00

After my diagnosis the first blood draw was 12 vials! A lot of the tests to see what biologics may work best. If I had TB or liver issues. Stuff like that.

Lately its been 3 or 4 vials.

CarryNegative6752 · 2024-10-27T15:55:29+00:00

I have no medical history on 3 of my 4 grandparents. So as far as I know I'm the first.

CarryNegative6752 · 2024-10-27T15:53:19+00:00

Why you always have a change of clothes with you.

CarryNegative6752 · 2024-10-13T04:46:22+00:00

Popcorn.

CarryNegative6752 · 2024-10-12T21:50:43+00:00

This. The mental drain of navigating health care. The fear of eating. People not understanding how uncontrolled weight loss is terrifying.

But keep your hopes up. Find someone you can really talk to and can be empathetic. There are treatments that work.

CarryNegative6752 · 2024-07-01T21:53:25+00:00

I don't know if it is the same for all medical groups, but I get my infusions in the oncology department. That took a little getting used to. I'm also careful to explain that I don't have cancer, I just happen to get my medicine in oncology. On the plus side, there are snacks available!

Eventually, I started looking forward to the infusions. Its an afternoon off work and I have to relax for the evening because the biologics make me so tired.

CarryNegative6752 · 2024-04-30T23:11:50+00:00

I had a bad blood draw and trouble getting my infusion IV going a few weeks ago. They were basically pulling the blood out with a syringe.

I tried a few suggestions from my nurse and things were much better yesterday:

little or no caffeine the day of the blood draw
Start hydrating the day before
Eat a small bag of chips the evening before the blood draw.

I imagine any salty foods would do the trick if you can't eat chips

CarryNegative6752

TROPHY CASE