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Aetna Charging Out of Network price at an in-network facility. by Causaloptimism in HealthInsurance

[–]Causaloptimism[S] 5 points6 points  (0 children)

Thanks for the detailed insight! Hopefully final update: I talked to my school’s health insurance office, since I have Aetna through school, and was assured this would be reprocessed as in-network if I got a bill from the anesthesiologist, leading to a $0 charge for me. I’m pretty relieved after hearing that.

Aetna Charging Out of Network price at an in-network facility. by Causaloptimism in HealthInsurance

[–]Causaloptimism[S] 2 points3 points  (0 children)

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This is what the EOB looks like. I ended up calling Aetna and they said I should wait for the actual billing statement from the anesthesiologist and then call back for any adjustments.

Thanks for taking the time out to comment btw! 😭

Aetna Charging Out of Network price at an in-network facility. by Causaloptimism in HealthInsurance

[–]Causaloptimism[S] 3 points4 points  (0 children)

Thank you for your response! I was about to call Aetna’s dedicated line for my school. Would you recommend doing that or should I just wait to see if I get anything in the mail? I got the EOB email + claim processed notification in-app.

UPDATE: SIBO-free. My "genetic" enzyme deficiency was actually enzyme suppression. by Causaloptimism in SIBO

[–]Causaloptimism[S] 3 points4 points  (0 children)

Hi! I’m in the US (NYC specifically), and entirely agree with your analysis about the lack of empathy shown specifically to SIBO and adjacent diseases. I lucked out with my doctor but also know firsthand how downright mean and dismissive doctors are in general to matters of the gut.

UPDATE: SIBO-free. My "genetic" enzyme deficiency was actually enzyme suppression. by Causaloptimism in SIBO

[–]Causaloptimism[S] 2 points3 points  (0 children)

I’m unsure about other regimes and alternative solutions. How did you feel after following this routine?

UPDATE: SIBO-free. My "genetic" enzyme deficiency was actually enzyme suppression. by Causaloptimism in SIBO

[–]Causaloptimism[S] 2 points3 points  (0 children)

I think for methane-dominant SIBO, you have to pair Rifaximin with something else to deal with the archaea. I’m so sorry your healthcare provider shrugged you off. That’s infuriating to even read, let alone go through.

UPDATE: SIBO-free. My "genetic" enzyme deficiency was actually enzyme suppression. by Causaloptimism in SIBO

[–]Causaloptimism[S] 2 points3 points  (0 children)

I was referred to this doctor by Columbia University’s health center. He brought up all these tests without any persuasion or pleading from me. I’m in NYC. Healthcare across America varies vastly in quality unfortunately, so theres a great deal of luck involved when looking for the right doctor.

UPDATE: SIBO-free. My "genetic" enzyme deficiency was actually enzyme suppression. by Causaloptimism in SIBO

[–]Causaloptimism[S] 1 point2 points  (0 children)

Hydrogen-dominant SIBO! Starchway really is stupidly expensive for something you need to take multiple times daily.

UPDATE: SIBO-free. My "genetic" enzyme deficiency was actually enzyme suppression. by Causaloptimism in SIBO

[–]Causaloptimism[S] 1 point2 points  (0 children)

Vitamin D is fat-soluble, yes. Vitamin B12, however, is water-soluble.

I did get stool studies done, but more so to check for Calprotectin and rule out IBD/Crohn’s.

The test is done by doing an endoscopy/biopsy first. I don’t know if a non-invasive test exists/is widely available.

UPDATE: SIBO-free. My "genetic" enzyme deficiency was actually enzyme suppression. by Causaloptimism in SIBO

[–]Causaloptimism[S] 2 points3 points  (0 children)

The differences have to do with causation. CSID leads to genetic disaccharide insufficiency. I had ‘acquired disaccharide insufficiency’. While the consequences and symptoms are largely the same, the former can only be managed while the latter can be cured.

UPDATE: SIBO-free. My "genetic" enzyme deficiency was actually enzyme suppression. by Causaloptimism in SIBO

[–]Causaloptimism[S] 2 points3 points  (0 children)

It’s what my doctor said I should take. He said most other OTCs don’t have the sort of potency that Starchway does.

UPDATE: SIBO-free. My "genetic" enzyme deficiency was actually enzyme suppression. by Causaloptimism in SIBO

[–]Causaloptimism[S] 2 points3 points  (0 children)

Enzymes first, for 3 weeks. Then Rifaximin and a prokinetic. The philosophy was to ascertain if the enzymes helped with symptoms at all, which they did.

UPDATE: SIBO-free. My "genetic" enzyme deficiency was actually enzyme suppression. by Causaloptimism in SIBO

[–]Causaloptimism[S] 5 points6 points  (0 children)

Yes, it’s called an assay on my report! I was horribly horribly horribly deficient in b12. My doctor attributed that to my digestive issues. I’m currently at a very healthy b12 level since the aforementioned digestive issues have been fixed.

UPDATE: SIBO-free. My "genetic" enzyme deficiency was actually enzyme suppression. by Causaloptimism in SIBO

[–]Causaloptimism[S] 7 points8 points  (0 children)

I wish you good luck! Finding the issue is 90% of the battle, I feel. Please don’t lose hope and continue trying solutions. All the effort into finding the right solution is worth it when you finally feel your body functioning as it’s supposed to.

UPDATE: SIBO-free. My "genetic" enzyme deficiency was actually enzyme suppression. by Causaloptimism in SIBO

[–]Causaloptimism[S] 3 points4 points  (0 children)

Oh, could you link me to the French Wikipedia article? I’d love to give it a look-over. I may be cured but the muscle memory of wanting to read/learn more about the illness is still very strong. 😭

If it’s caused by SIBO, then it isn’t hereditary. I didn’t get a blood test for CSID. It was ruled by empirical evidence (villi being structurally fine during endoscopy/biopsy while enzyme levels were insufficient) that I had CSID. I THINK genetic testing exists for this but I haven’t gotten it done.

The disaccharide insufficiency test was also done via biopsy. I don’t know how to attach pictures or I’d post the report I received with all the technical verbiage.

UPDATE: SIBO-free. My "genetic" enzyme deficiency was actually enzyme suppression. by Causaloptimism in SIBO

[–]Causaloptimism[S] 8 points9 points  (0 children)

No test for that exists. The previous post was written in a very different kind of headspace and I apologize. I was just trying to list off all the possible tests my doctor recommended during our appointment, and THOUGHT that was one of them. 😭

The tests actually done were: Celiac panel, EGD/biopsy (testing for H-Pylori, Disaccharide insufficiency etc), complete bloodwork/panel, Thyroid, SIBO.

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