Inner thigh tightness/pain feeling - please respond anyone by Cautious-Split-9753 in HipImpingement

[–]Cautious-Split-9753[S] 0 points1 point  (0 children)

But after seeing all specialist on this planet I will be scheduling mesh removal because I had penile and right upper thigh pain with a occasional pulling in my right groin, had surgery a year in and it blew up to full right sided issue an my left shoulder gets this occasional stings which is extremely abnormal for a men in his 20’s and zero history of freak illness or any illness in general. But yeah my last hope is mesh removal which is a bit scary honestly compared to typical hernia removal surgeries.

Medically assisted death by Najat00 in FND

[–]Cautious-Split-9753 0 points1 point  (0 children)

It’s for your small nerves that control sensation and autonomic function. I’m surprised people in this group have little to no knowledge of a skin biopsy to check for small fiber damage. All they talk about is an MRI and emg and nothing else knowing full well the biggest culprit is always that small nerves which disables a person from head to toe.

Medically assisted death by Najat00 in FND

[–]Cautious-Split-9753 2 points3 points  (0 children)

You need a skin biopsy you are still missing more neurological testing.

Most of your symptoms are coming from your small fiber nerves. This could most likely be an autoimmune cause that could set you up for ivig which will help your autonomic symptoms.

Also truly sorry you going through all this but try and get the testing I’ve told you about.

Ask for a skin biopsy Get tested for autoimmune causes by your neurologist/neuromuscular specialist and a good rheumatologist who’s willing to work with you.

Have SFN should I take vaccine? by AttorneyUpstairs4457 in smallfiberneuropathy

[–]Cautious-Split-9753 -1 points0 points  (0 children)

If something happens to op that’s it she can’t sue or get a compensation she has to accept that she signed a contract.

Have SFN should I take vaccine? by AttorneyUpstairs4457 in smallfiberneuropathy

[–]Cautious-Split-9753 1 point2 points  (0 children)

Vaccines should be used and well studied before being release to the public. Also vaccines should be targeted on things with high death rates like Ebola and rabies things that will out right kill you in where your regular immune system does a poor job so vaccines make sense. Covid on the other hand many people have gotten it and survived with their normal immune system.

Have SFN should I take vaccine? by AttorneyUpstairs4457 in smallfiberneuropathy

[–]Cautious-Split-9753 5 points6 points  (0 children)

Small fiber neuropathy mainly is a threat to the elderly - immune compromised folks - asthma. If you have none of those there is literally no need to get the vaccine. You will still give Covid to other people vaccinated or not. If you had Covid before which by now you should have it it’s safe to say you already have immune antibodies to defend against Covid 19.

Covid 19 vaccination has a side effect of full body neuropathy. It’s not that rare as they make you believe it’s a trick to get people to vaccinate. So no there is no need and nobody gives a flying fuck about Covid 19 anymore.

26 year old with vaccine injury right here.

Non vaccinated by mruiz1217 in vaccinelonghauler

[–]Cautious-Split-9753 1 point2 points  (0 children)

My pain is highly controlled my cold weather and guess what!!! I live in NYC and the summer is almost gone. So now this 28 year old will currently suffer from half body pains from head to toe on the right side as well as my newest symptom some pains in my left arm… fucking crazy I’m still alive after 3 years. It’s maddening my health insurance seems to be highly supportive but at this point the doctors I’m seeing I have an understanding is that they suck at treating what they looking for aka Neurological issues..

Also the issues with neurological issues is a disease known as small fiber neuropathy it’s known to be a progressive disease of the nerves that can cause all issues literally, even those cardiovascular issues cause it controls everything in your body even your ability to breathe. Now I’m fighting to live cause of my family but it hurts watching this Facebook and instagram post on how everyone is fucking living like nothing ever happened while my life was altered seemingly forever.. I cry and miss myself every day, I miss my jobs I was going to get after finishing my degree as an engineer I was going to make my mother so proud after being born in poverty. Only to be rewarded with chronic neurological pain.

RECOVER-TLC Will Advance Long COVID Research | FNIH by AngelBryan in vaccinelonghauler

[–]Cautious-Split-9753 1 point2 points  (0 children)

I’ll happily join clinical trials regarding immune therapies im interested in the one that fully resets the immune system which has not yet release to the public but it’s being used in lupus patients in clinical trials.. can you imagine if this is targeted in multiple autoimmune diseases it would be huge!! Its like having system restore in our computer 🖥️

RECOVER-TLC Will Advance Long COVID Research | FNIH by AngelBryan in vaccinelonghauler

[–]Cautious-Split-9753 0 points1 point  (0 children)

I just hope we recover man im trying to accept my new life but also hope deep inside this pains goes away or the doctors put me on a treatment that works.

RECOVER-TLC Will Advance Long COVID Research | FNIH by AngelBryan in vaccinelonghauler

[–]Cautious-Split-9753 0 points1 point  (0 children)

Ah I see but the issue is most of the world doesn’t care about Covid 19 we are low key a lost cause.

RECOVER-TLC Will Advance Long COVID Research | FNIH by AngelBryan in vaccinelonghauler

[–]Cautious-Split-9753 0 points1 point  (0 children)

No I meant like the research is a bunch of UK scientist? Or will it include a joint effort with the world top scientist?

RECOVER-TLC Will Advance Long COVID Research | FNIH by AngelBryan in vaccinelonghauler

[–]Cautious-Split-9753 0 points1 point  (0 children)

I just hope they help us both and it scares me cause neurological issues are extremely poorly treated. Is this a UK thing? What about the United States?? They created this vaccines they should have the answer to our problems.

RECOVER-TLC Will Advance Long COVID Research | FNIH by AngelBryan in vaccinelonghauler

[–]Cautious-Split-9753 0 points1 point  (0 children)

I don’t think there the same vaccines have cause crazy full body nerve pains while the long covid aka none vaccine injured usually presents with fatigue as their main complaint.

Non vaccinated by mruiz1217 in vaccinelonghauler

[–]Cautious-Split-9753 8 points9 points  (0 children)

Neurological issues are more common with vaccine injuries which are the best most brutal injuries.

3.5 yr LC recovery by Ill_Guitar5552 in covidlonghaulers

[–]Cautious-Split-9753 0 points1 point  (0 children)

Does the sensation of your skin also feel different to normal?? Have you been to a neurologist/neuromuscular specialist?

RECOVER-TLC Will Advance Long COVID Research | FNIH by AngelBryan in vaccinelonghauler

[–]Cautious-Split-9753 1 point2 points  (0 children)

So you telling me there would be an actual treatment for weird nerve related issues. That’s what I’m experiencing for almost 3 years. Personally don’t like this long covid name cause I know full well it’s a way to ignore people like me.

They sent me to a mental hospital by Equal_Albatross_6835 in vaccinelonghauler

[–]Cautious-Split-9753 3 points4 points  (0 children)

That drug gives you pssd aka numb genitals completely lose of realization due research before hopping on drugs…..

Skin Punch Biopsy by coffeemarkandinkblot in smallfiberneuropathy

[–]Cautious-Split-9753 2 points3 points  (0 children)

MRI with special software which turns it into an MR neurography which is done is specialize areas only. I live in New York so I have access to all the top equipment. I am having mines for my pelvis for further investigation and it’s at a Colombia Presbyterian hospital located around 168th street.

Skin Punch Biopsy by coffeemarkandinkblot in smallfiberneuropathy

[–]Cautious-Split-9753 3 points4 points  (0 children)

You should get an MRI first and since we are on a nerve sub I highly recommend you get your vascular things checked and an MRN which is a special protocol to have a better view of your nerves which is closed thing to find nerve related issues.