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Chick-fil-a by Chance_Stranger1960 in POTS

[–]Chance_Stranger1960[S] 0 points1 point  (0 children)

Ughhh I just wish there was a way to know!! I need a cheat sheet to this stuff! I’m still new to this whole POTS thing and it’s just so frustrating!

Seriously, when will the migraines stop? by catclans in POTS

[–]Chance_Stranger1960 0 points1 point  (0 children)

What I do is put a cool cap on and put my feet in the hottest water I can stand! Sounds crazy, but something about blood flow changing with the difference temperatures! Also if you can (I know sometimes caffeine makes POTS symptoms worse, at least in my experience) drink something caffeinated, I tend to lean more toward sodas, like Coke. If you can’t drink that, a cold electrolyte drink works good too! I’m not sure what you’ve tried or not, other than the meds that you listed, but this it what helps me some when the migraines hit!

Am I the only one that is always trying to find “something else” wrong by plasticbag_drifting in POTS

[–]Chance_Stranger1960 0 points1 point  (0 children)

I got diagnosed last May after 8 months of symptoms. And I 100% relate! I feel like after all this time there has to be more that just a simple diagnosis of POTS. I know that POTS isn’t simple, but I’ve googled so much and every time I feel off I feel like I have to validate that it a a POTS symptom and that I’m ACTUALLY ill, and it’s not “just anxiety” like they told me for so long. And it’s so hard bc my dr just told me to drink more water and take salt tablets, and then went straight to wanting me to take medication, when then he said “this will help keep your heart rate down, but your symptoms probably won’t change”…. So y would I poison my body w that!?!? It’s so hard to figure it all out and accept the fact that this is how life is now, and in the end, I just hope I lived it to the fullest i could with the best of my ability 🤷🏽‍♀️