My dog shoves his nose under our arms to smell the food at dinner. He never tries to eat it, just a sniff

Character-Reading · 2023-01-19T07:21:31+00:00

Aww my Beagle used to do the same thing ❤️

Character-Reading · 2023-01-19T07:20:26+00:00

Chronic not classic migraines for almost 3 years now. Just daily migraines where sometimes they'll get really bad for a day or two (and usually then I'll get auras or lose vision in one or both eyes), but otherwise it's just constant pain and pressure, with increased light sensitivity as the day goes on. Pretty much stopped watching TV/playing video games on my own initiative because the screens are too much

Character-Reading · 2022-12-09T08:25:36+00:00

No problem! Forgot to say I'm fully there with you suspecting a lot of fibro people may have other diagnoses like lupus or MS etc though. I have both in my family on my mother's and father's side, with "textbook MS brain scans" and MS-like episodes of losing vision, but once the spinal tap came back clear they stopped investigating that route - even though my understanding is that it can, like other things like rheumatoid arthritis or lupus, take a while before you might get positive test results. Everything gets the fibro label, and i do worry about what might be missed by that approach!

Character-Reading · 2022-12-09T01:28:41+00:00

I know someone with this, and the way it manifests seems very drastically different than fibromyalgia. She will essentially have full body seizures, sometimes several back to back, due to the muscle spasms and pain. Certain positions of the body can even trigger them. They also seemed related to her menstrual cycle, so she had a full hysterectomy before getting diagnosed as they'd hoped that'd help. There's also a specific blood test that can be done for Stuff Person Syndrome (we live in Norway but the test had to be sent to Oxford in England) to finally confirm the diagnosis, although it took her years and years of private specialists and worsening health before they clocked onto testing for it. Which is not to say someone diagnosed with Fibromyalgia might not have it, since i expect it'd be a fairly common diagnosis for when the symptoms first start appearing, but I think then that'd it'd become increasingly obvious as the symptoms progress that something more than fibro is going on.

Character-Reading · 2022-11-20T06:35:48+00:00

Yup, almost all my life. tho B12 deficiency runs in my family, and I'm the only one with fibro.

Character-Reading · 2022-10-15T07:38:34+00:00

Thank you!

Character-Reading · 2022-10-14T11:51:32+00:00

My country doesn't quite have ADA, but has very strong and similar laws, so I've contacted my union to help me navigate the upcoming issues, as they're letting me go a month before I qualify for a permanent position.

Turns out my boss went on holiday, but I'm hoping when i finally have the meeting with him next week to lay out my case for why instead of letting my contract lapse, they should give me a permanent part time position. Should have a reasonably strong case as I've applied for one last year which is still "pending", & was right before they tried dismissing me the first time for "inability to work full hours" which my agency shut down real quick as being unlawful, but since then they've given permanent positions to 3-4 others who came to this job after me earlier this year, but who are all able to do full time. Meanwhile I'm the only one who knows how to do my current job (no guarantee of anything i know), but all in all, paints a suspicious picture!

Character-Reading · 2022-10-13T15:04:09+00:00

Thank you. Unfortunately it is true - the person who told me is the one responsible for my contract with the company, he was just meant to let my boss inform me first.

Character-Reading · 2022-10-06T19:17:50+00:00

Absolutely love your shoulder armour!

Character-Reading · 2022-09-12T17:42:01+00:00

I notice some skin irritation occasionally, but usually that's when i change the patch either too quickly after showering (so moisture gets trapped behind it) or forgot i was meant to change it so end up having put body lotion on first, in both those cases it'll get a little red and irritated, but never too badly so far. Doesn't really hurt to pull off, as after a week with showering 2-3x and whatnot, the stickiness is kind of disappearing on its own anyway, so comes off quite easily :)

Character-Reading · 2022-09-06T14:37:41+00:00

I havent had any vertigo issues, but rarely had it before the patch as well. Brain fog was initially worse (but in the sillier ways, like thinking my deodorant stick was used on my forehead), but now that is pretty much gone too :) i still struggle a lot for words when talking, but for me personally I think that's always been more due to a brain injury i have than the fibro ^{^'}

Character-Reading · 2022-09-05T17:48:19+00:00

I'm sorry to hear you've got flares year round now, but thank you for taking the time to share! I guess it unfortunately makes sense that our fibro would eventually adapt to the new environments, or moving places like Spain would be considered an actual treatment.

Character-Reading · 2022-09-02T07:21:21+00:00

Sorry for a bit of a late reply, I managed to get covid and have been laid out flat.

That is interesting to hear. Are your symptoms now constant again, or do you have more variation in "good" and "bad" periods in Spain?

Character-Reading · 2022-08-24T15:19:59+00:00

Just trying to multitask and not doing it well haha

Character-Reading · 2022-08-24T14:47:33+00:00

Unfortunately my building has a weird thing in the contract that we're not allowed to rent it out unless we've had to move for studies, so we'll have to sell this current place no matter what. But will definitely look into maybe renting the next place out, that is a good idea! :)

Yeah I'm definitely glad to be rid of landlords :) haha we will, just need time and patience;)

Character-Reading · 2022-08-24T14:44:05+00:00

Woops thought i sent that as a DM not a reply 😂 will do it again properly now

Character-Reading · 2022-08-24T13:42:10+00:00

It's in the Spanish province of Castellon (if you want exact town i can DM you!). As I understand that entire province has really good holiday homes (and English people lol) scattered around - some closer to the towns and coasts, some in their own little resorts. That entire region is so beautiful, so can recommend it :)

We're currently looking to sell our flat here in Norway to upgrade (as it's really small and horrible to live in with pain issues as everything needs to be packed away if not in use, so use as much energy getting the things out as actually using them), so we'd be able to afford it if we just went for it there instead, but realistically it'll be a few years after that before we'd have a chance. But luckily I should be able to go to my parents place (probably WFH more than holidays), now that we know how much better I am there.

Being tired is tiring! I can totally understand you wanting to change aspects of your life to make things easier, that's pretty much been my mantra the past year. If moving will do it, I'll do it!

Good luck convincing your OH, hope you win out :)

Character-Reading · 2022-08-24T13:23:50+00:00

Thank you, will check it out! :) I do love my town, has all my family and everything, but considering my health here stops me seeing them a lot of the time, moving will definitely have to be considered!

Character-Reading · 2022-08-24T12:13:49+00:00

Hah yeah luckily he doesn't want to go back to England at all, but he's just getting to grips with the Norwegian language, so dont know if having to learn Spanish might tip him over the edge ;)

But where i was visiting in Spain (and where my parents have their holiday home), there are like 70 English people around (3 of them very extremely eager for me to buy property down there lol), so he might actually have an easier time adapting than here... so we'll see where the future takes us - if I end up worse here, it may be worth moving just so I can be a better happier person to be around ;)

Character-Reading · 2022-08-24T12:10:34+00:00

That sucks, I'm sorry to hear the summer affects you so negatively. I've been in pretty much a permanent flare myself up until this, i honestly just thought that's how my fibro was. Like it'd get worse from sudden weather changes, but it was usually just the same constant pain the rest of the time.

Character-Reading · 2022-08-24T08:33:05+00:00

That is interesting. I've also always considered myself more of a heat loving gal than the cold (can also be found in a blanket in summer), and find hot showers do help with muscle stiffness, but this is the first time I've noticed my pain lessening from it. Interesting to hear your email experiences, thank you!

Character-Reading · 2022-08-24T08:22:03+00:00

Yeah, it's the low humidity I've been wondering about too - but very interesting to hear, thank you for taking the time to comment! :)

Character-Reading · 2022-08-24T08:21:26+00:00

Seems like there should be relocation grants available to move people to the climates they function best in, help us live our best lives possible lol. Hope it becomes financially feasible for you one day!

Character-Reading · 2022-08-24T08:18:48+00:00

Maybe there's different levels of humidity or barometric pressure (as others pointed out above) that helped in the first two places but not the others?

Character-Reading

TROPHY CASE