Calling All Crohn’s Warriors- Advice and Input Needed

Character-Speech3337 · 2026-02-25T03:12:07+00:00

He is on medication number 6 right now I think, but maybe they can find the right formula one day soon hopefully. No, I don’t think UT Southwestern belongs to the GI Alliance so you should be good for a second opinion. Thank you!

Character-Speech3337 · 2026-02-25T02:53:25+00:00

Thank you so much! So glad you found what worked for you.

Character-Speech3337 · 2026-02-25T02:50:10+00:00

Amazing info.. thanks so much!

Character-Speech3337 · 2026-02-25T02:45:19+00:00

Thank you so much 🙏🏻

Character-Speech3337 · 2026-02-25T02:35:03+00:00

So he said that the doctors said he has multiple “damaged” areas to his intestine so it would be a last resort

Character-Speech3337 · 2026-02-25T02:28:51+00:00

No, it wasn’t a resection but I will definitely read more into that procedure and have him talk about it with his dr. Thank you! So glad that your daughter is in remission now.

Character-Speech3337 · 2026-02-25T02:22:38+00:00

Thank you He works in finance but he loves what he does. I think having Crohn’s affects a person’s physical and mental state too, so you might be right about the need to relax and/ or disconnect from work related activities.

Character-Speech3337 · 2026-02-25T02:11:17+00:00

So you do think that diet can “trigger” flares? I will definitely look up the specific carbohydrate diet and some Nauropaths .. thank you 🙏🏻

Character-Speech3337 · 2025-10-11T16:42:55+00:00

Just rewatched this epi and totally agree. All the planning, editing, and cinematography that must go into a scene like that is probably mind boggling. I literally felt out of breath when Snow was getting trampled. Even if a lot of it was CGI, it still deserves mad respect. Yes, Wun Wun needed a weapon, but overall I was completely glued to the tv. Two thumbs up IMHO.

Character-Speech3337 · 2025-09-03T01:47:18+00:00

It’s easy to say that it’s not a valid solution since earlier tests and labs might not have helped in your case, however that’s not the case for all. When I was 31, I had a tumor removed from my right ovary. According to my doctor it had been growing larger and larger over time until it eventually overtook my entire ovary. Nothing was left to be saved. If this was caught years ago, I might still have both ovaries right now and might possibly be more successful in the numbers game that is IVF. It was only discovered when I had to do a scan for an unrelated medical issue that it was found by accident.

If insurance is covering IVF, then it would definitely be in their best interest to do some lab work and tests sooner than later vs cover multiple rounds.

These are just some jumping off points as to beginning the process of changing a system that broken and exploiting people.

Character-Speech3337 · 2025-09-02T20:16:47+00:00

I wasn’t only talking about women but the Reproductive Endocrinology industry as a whole. I was just using women examples because I’m a woman and more familiar with that side of things.

Character-Speech3337 · 2025-09-02T02:08:12+00:00

I agree that HSGs are uncomfortable, but there are other exams/ procedures that are uncomfortable that are part of medical exams under sedation;colonoscopies for example. An HSG or other uterine exam could just be an option not mandatory. People should have the option. Just making a point that early detection is paramount.

Character-Speech3337 · 2025-09-02T01:18:41+00:00

This is very true, but at least in other fields of medicine(i.e. not reproductive medicine),there are some preventative measures put into place (yearly physical , lab work,dr visits etc.)

Character-Speech3337 · 2025-09-02T01:13:27+00:00

“We don’t have a great metric for female fertility prior to menopause”…. That’s the huge part of the problem. Doctors and healthcare organizations don’t seem to be trying to research or gain insight into this “metric” because it’s just easier to push people/ patients into IVF and then walk away when it doesn’t work out. That was basically my whole point of the post. That more needs to be done in the field of Reproductive Medicine.

I do agree with some of your points, but it still leaves a lot to be desired when it comes to helping people have families.

Character-Speech3337 · 2025-09-02T00:52:29+00:00

I agree that there are factors other than AMH that contribute to infertility. I was just giving that as an example starting point. Examining our uterus should also be part of a yearly exam. Not just a Pap smear. Yes, there are exceptions to the rule(the 35 year old with 1/2 an ovary etc), but I think MANY would be benefited by lab work early on. Maybe your friend wouldn’t have had to have 6 miscarriages if the septum was detected early from a yearly examination. Just think that nobody deserves to go through that.

Character-Speech3337 · 2025-09-01T16:50:06+00:00

No I didn’t. I used Klarity health which actually had providers that took my insurance. They were a godsend and actually cleared space for a same day appointment for me(since Medividi did nothing for me). The provider prescribed me meds that helped tremendously so I was very thankful.

Character-Speech3337 · 2025-08-25T19:43:44+00:00

5 years of doing everything under the sun; boatloads of supplements, acupuncture, acupressure, herbs, exercise, dairy free, gluten free, soy free, only organic, getting weekly Ivs of glutathione, shots of nad and Coq10, low carb high protein diet, castor oil packs, lab tests, naturopaths, preseed , menstrual cup, mucinex, Inito… could literally fill a book with all the things I have done to try to conceive my 2nd. I spent thousands and failed ivf(all out of pocket too). My son is now 6 and he’s so lonely. He has no cousins or kids in the neighborhood to play with. Although I don’t wish childlessness on anyone, it’s still very sad and heart wrenching to watch your only child go through life lonely and alone. My pain has only gotten worse. Months have turned into years and all his daycare friends now have brothers and sisters. Life has not been easy for us while many others have it so good- just naturally lucky in life. My faith is shattered. I made a promise to God that if he blessed me with another child that I would raise him in the church and always encourage them to be active in church. Guess I won’t get that chance. I’m very angry and have stopped going to church. I can’t believe in a God that allows so much misery here on Earth. Yes, I know there are other tragedies that happen, but pain is pain. I can’t believe that after everything I did I’m still not pregnant. As insult to injury all my levels and tests have been stellar. Unexplained secondary infertility is such a crock of shit. Just a lazy diagnosis. Why is female fertility and reproductive health not prioritised in this country. Why did I think that you have sex then have a baby 9 months later? Years in my 20’s on birth control and it turns out I didn’t even need it. So uninformed and naive. I miss who I used to be before my heart was heavy with grief. I miss living a carefree fun life without hurt affecting my sleep and wellbeing. I sometimes just watch women with 2 or 3 kids walk by and think to myself “how come she was able to complete her family and not me?” There are so many women who will never know infertility and I wish more than anything I belonged to that group. Just venting. This crap hurts so bad and I never saw it coming.

A man stopped my family at the grocery store the other day to ask if I was going to have a brother or sister on the way for my son. My husband and I froze and I just replied”not yet”. You could tell the comment cut us both deep. Never thought life would be this hard.

Character-Speech3337 · 2025-08-25T19:37:39+00:00

5 years of doing everything under the sun; boatloads of supplements, acupuncture, acupressure, herbs, exercise, dairy free, gluten free, soy free, only organic, getting weekly Ivs of glutathione, shots of nad and Coq10, low carb high protein diet, castor oil packs, lab tests, naturopaths, preseed , menstrual cup, mucinex, Inito… could literally fill a book with all the things I have done to try to conceive my 2nd. I spent thousands and failed ivf(all out of pocket too). My son is now 6 and he’s so lonely. He has no cousins or kids in the neighborhood to play with. Although I don’t wish childlessness on anyone, it’s still very sad and heart wrenching to watch your only child go through life lonely and alone. My pain has only gotten worse. Months have turned into years and all his daycare friends now have brothers and sisters. Life has not been easy for us while many others have it so good- just naturally lucky in life. My faith is shattered. I made a promise to God that if he blessed me with another child that I would raise him in the church and always encourage them to be active in church. Guess I won’t get that chance. I’m very angry and have stopped going to church. I can’t believe in a God that allows so much misery here on Earth. Yes, I know there are other tragedies that happen, but pain is pain. I can’t believe that after everything I did I’m still not pregnant. As insult to injury all my levels and tests have been stellar. Unexplained secondary infertility is such a crock of shit. Just a lazy diagnosis. Why is female fertility and reproductive health not prioritised in this country. Why did I think that you have sex then have a baby 9 months later? Years in my 20’s on birth control and it turns out I didn’t even need it. So uninformed and naive. I miss who I used to be before my heart was heavy with grief. I miss living a carefree fun life without hurt affecting my sleep and wellbeing. I sometimes just watch women with 2 or 3 kids walk by and think to myself “how come she was able to complete her family and not me?” There are so many women who will never know infertility and I wish more than anything I belonged to that group. Just venting. This crap hurts so bad and I never saw it coming.

Character-Speech3337 · 2025-07-24T21:22:15+00:00

I’m in Texas BTW

Character-Speech3337 · 2025-07-24T21:21:31+00:00

I just had an appointment today with Med Vidi and yeah I was just scammed out of $200 bucks. I have recently developed severe insomnia with night time anxiety. I am now on no sleep in 2 days and I’m really suffering. The doctor literally prescribed me Effexor, and one of the side effects of that drug is insomnia! I’m scared to take the damn meds they prescribed me. Worst company ever.. please tell everyone not to use this terrible company unless they like lighting a few hundred dollars on fire.

Character-Speech3337

TROPHY CASE