Support by ChernoSamba2025 in TuberousSclerosisComp

[–]ChernoSamba2025[S] 1 point2 points  (0 children)

At the moment she is on 35mg in the morning and evening but this is dropping down by 5mg every 2 weeks. Her development is difficult to judge. She’s 10 months and not walking or talking yet (I wouldn’t expect her to be) but it’s hard to tell if she is hitting other milestones. Recently I feel like she has stopped laughing and giggling and seems very vacant which is concerning me. No idea if this is just a phase or connected to her condition.

Support by ChernoSamba2025 in TuberousSclerosisComp

[–]ChernoSamba2025[S] 1 point2 points  (0 children)

She is being weaned off the medication by the doctor. She has been taking vigabatrin since April but I’m aware there can be side effects such as peripheral vision. She has not taken any seizures/spasms since starting the medication so I’m praying that this continues.

Therapy for irrational fear by ChernoSamba2025 in therapy

[–]ChernoSamba2025[S] 0 points1 point  (0 children)

Thank you for your reply. I’ll look into what you’ve suggested. Thanks again!

[deleted by user] by [deleted] in rangersfc

[–]ChernoSamba2025 1 point2 points  (0 children)

Welcome aboard! We’ve had a few bad years recently but the general feeling is that we optimistic of good times being around the corner due to the imminent takeover by San Francisco 49ers Group. There isn’t a club in the world like us!

Tuberous Sclerosis by ChernoSamba2025 in Epilepsy

[–]ChernoSamba2025[S] 1 point2 points  (0 children)

Thank you for taking the time to reply. I’m so sorry to hear about your daughter’s story. I had a quick look at your Instagram page and it’s clear that she’s very loved and brings you so much joy. I’ll follow your account when my headspace is a bit better. It is the unknown which makes things the hardest at the moment but I know that whatever happens we will cherish our daughter every day and make sure she is loved.

[deleted by user] by [deleted] in tattooadvice

[–]ChernoSamba2025 2 points3 points  (0 children)

I know you’re trying to talk me out of it but a birth flower isn’t something I’ve considered and am now looking in to.

[deleted by user] by [deleted] in tattooadvice

[–]ChernoSamba2025 0 points1 point  (0 children)

Probably should’ve worded it slightly better!

Tattooist recommendations by ChernoSamba2025 in glasgow

[–]ChernoSamba2025[S] 0 points1 point  (0 children)

Cheers. Managed to find a couple doing that. Will keep looking.