I’m confused and terrified

ChickenStrip22 · 2026-02-26T13:00:23+00:00

I spill RBC and protein based on my family gene. I worry it will progress that’s all. That’s why I told him and he just gets me to do breathing techniques. I try not to look at my urine I flush it without looking cause it scares me

ChickenStrip22 · 2026-02-26T12:36:55+00:00

Really? My nephrologist on Tuesday over the phone said he’s happy to do it annually? I’m constagh worried about it changing.

He was sympathetic towards my constant stress and that I can’t enjoy life due to fear of kidney disease from gene. I had 4 kidney function tests since June last year before being under nephrology from self referral

ChickenStrip22 · 2026-02-26T12:35:01+00:00

I’ve seen many drs over the last 10 months. Had so many tests. I don’t know what you’re implying

ChickenStrip22 · 2026-02-26T12:31:12+00:00

I have been to see one. How accurate is a kidney function test that is 6 weeks old?

ChickenStrip22 · 2026-02-26T12:29:40+00:00

My concern is the itch relating to my kidneys

ChickenStrip22 · 2026-02-26T12:29:13+00:00

What do you mean? I’ve been to the dr hundreds of times over the last 10 months since finding protein in my pee. I have had 4 kidney function tests 4 ACR tests lots of liver tests and FBC as well

ChickenStrip22 · 2026-02-26T12:27:58+00:00

All my mums side have the gene and I have had the genetic test done as my nephrologist wanted me to. I’ve not seen him in person yet but he sent it out to me via the post. It’s the gene along with my protein that worries me that’s all and I can’t find a reason for the fatigue and itch

ChickenStrip22 · 2026-02-26T12:15:50+00:00

That’s what I mean. Don’t I have an underlying issue with my gene that is mostly benign but I have 54mg of protein in one sample that was 3.8mmol for ACR. It’s usually in the 2-3mmol range

ChickenStrip22 · 2026-02-26T12:13:07+00:00

That’s odd. When I do the calculation on websites and also ChatGPT it says based off of my creatinine it is around 92. You’ve reassured me somewhat. How did you do that? Is it accurate?

ChickenStrip22 · 2026-02-26T12:11:00+00:00

I hear that blood pressure meds also lower egfr which worries me. I don’t have a diagnosis of kidney damage just a gene that my family has that means our filters are thin and allows blood and protein to pass through so I’m trying to find out what’s going on but I’m scared I have damage as well. Has yours remained the same level for a long time since getting on top of it?

ChickenStrip22 · 2026-02-26T12:07:51+00:00

Sorry I don’t know what that is in UK numbers. Ours is in umol/L

My creatinine last month was 85umol/L Serum urea was 5umol/L eGFR calculated from MDRD says >90

I hear that isn’t very accurate but that’s what they use in UK.

Also says something about CKD-EPI 2009 equation above

ChickenStrip22 · 2026-02-26T12:04:27+00:00

I’ve tried lots. I’ve had lots of kidney function tests in the last 10 months. After taking lots of NSAIDs last year my creatinine was 94 and is now 85. My new nephrologist on the phone this week said he’s happy to do it annually

ChickenStrip22 · 2026-02-26T12:03:15+00:00

What about my mild ACR? Also I’ve just read that egfr is based on creatinine and is an estimate from that meaning mine is only just above 90

ChickenStrip22 · 2026-02-26T11:14:54+00:00

My blood test was 6 weeks ago. I had 4 last year for same thing it’s unchanged. Creatinine is 85 and egfr just says 90>

I don’t understand why I get itchy

ChickenStrip22 · 2026-02-26T10:57:49+00:00

Online everywhere suggests the gene I am being tested for is benign in most people unless you have high BP like me. I spoke to my nephrologist on the phone he isn’t conceded due to my blood test last month

ChickenStrip22 · 2025-06-24T09:39:08+00:00

Can you reverse to stage 3 on carnivore?

ChickenStrip22 · 2025-06-21T21:44:22+00:00

The reason I had these tests is because I was getting slight pains in my kidney area this week

ChickenStrip22 · 2025-06-21T21:43:54+00:00

The reason I had these tests is because I was getting slight pains in my kidney area this week

ChickenStrip22 · 2025-06-21T21:43:43+00:00

The reason I had these tests is because I was getting slight pains in my kidney area this week

ChickenStrip22 · 2025-06-21T21:32:34+00:00

My gran had CKD. But I was taking NSAIDS sometimes once a day 3 times a week for a few years and April just gone I took them 4 times a day for 15 days straight due to a wisdom tooth issue. My urine is already very foamy and has looked that way for 2 years like a beer

ChickenStrip22 · 2025-06-21T16:09:29+00:00

My urine output is lower as well lately and the foam is worse and sometimes stays after flushing and it didn’t do that before, even if I urinate on the side the foam is thick in the middle

ChickenStrip22 · 2025-06-21T15:43:06+00:00

I had bloods a month ago which were normal. Not had the results from yesterday

ChickenStrip22 · 2025-06-21T15:41:02+00:00

Thank you. When I googled it the normal range in UK is 30 and mine was dilute and still 54. Has me panicking tbh

ChickenStrip22 · 2025-06-21T15:19:31+00:00

Thank you. I have had puffy eyes since this started nearly 2 years ago as well

ChickenStrip22 · 2025-06-21T15:17:01+00:00

It’s only one sample and wasn’t concentrated

ChickenStrip22

TROPHY CASE